Palliative care

2018 ◽  
pp. 485-500
Author(s):  
Maria Flynn ◽  
Dave Mercer
Keyword(s):  
Palliative Care ◽  
Early Stage ◽  
Health Condition ◽  
Treatment Interventions ◽  
Care Services ◽  
Life Threatening Illness ◽  
Palliative Care Services ◽  
Life Threatening ◽  
Domestic Environments

Palliative care is a specialized area of nursing practice, but also one which embraces all people who are living with a life-limiting or life-threatening illness. The purpose of palliative care is to enable a person and their family or significant others to live as full a life as possible within the constraints of the health condition. Palliative interventions often begin at an early stage of a long-term or life-limiting illness and may be concurrent with active treatment interventions. Palliative care continues until death, and although many palliative care services are delivered by specialist teams, general nurses will also be involved with people in a range of clinical or domestic environments. This chapter discusses the general principles of palliative care and considers how these may be translated into general nursing practices.

Palliative care

2019 ◽  
pp. 865-872
Author(s):  
Joseph O’Neill
Keyword(s):  
Palliative Care ◽  
Key Management ◽  
Low Resource ◽  
Care Services ◽  
Life Threatening Illness ◽  
Humanitarian Crises ◽  
Palliative Care Services ◽  
Life Threatening

This chapter covers a fundamentally important and often overlooked area of medicine, and outlines how even in humanitarian crises palliative care principles should be applied to relieve suffering for those with life-threatening illness. As not all humanitarian situations allow comprehensive textbook palliative care services for all patients, this chapter provides the underlying principles of palliation, implementation in low-resource environments, and key management components to allow adoption in varying contexts.

Challenges of palliative care for children with cancer in Iran: a review

2019 ◽  
Author(s):  
Maryam Rassouli MD ◽  
Naiire Salmani MD ◽  
Zahra Mandegari MSc ◽  
Atena Dadgari MSc ◽  
Bahare Fallah Tafti MSc ◽  
...  
Keyword(s):  
Palliative Care ◽  
Insurance Coverage ◽  
Home Care Services ◽  
Pediatric Palliative Care ◽  
Children With Cancer ◽  
Care Services ◽  
Life Threatening Illness ◽  
Relieve Pain ◽  
Palliative Care Services ◽  
Life Threatening

Pediatric palliative care is a holistic caring approach for children and families that begins with diagnosis of a life-threatening illness and continues until death; it aimed to relieve pain and other symptoms in physical, mental, social and spiritual aspects. In spite of available evidence concerning optimal outcomes of the provision of palliative care, establishment of a palliative care system for children has hardly been feasible so far due to a number of challenges. Therefore, this review study aimed at identifying the challenges of the provision of pediatric palliative care along with the relevant solutions. The identified challenges were classified into two categories including structure-based challenges (i.e. lack of a clear structure in the health system and classification of services, shortage of specialized staff, insufficient home care services, absence of health care tariffs along with insurance coverage of palliative care services) and process-based challenges (i.e. absence of guidelines, lack of educational programs for family, family attitudes and beliefs, communication barriers, and lack of access to opioids). Thereafter, the solutions for each challenge are provided in accordance with the available literature separately. Given the significance of palliative care for children with cancer and in order to improve the quality of life of the children and the families, it appears necessary that policymakers and managers take account of the challenges as well as the feasibility and the implementation of provided solutions.

scholarly journals Barriers to Access to Palliative Care

2017 ◽  
Vol 10 ◽  
pp. 117822421668888 ◽  
Author(s):  
Pippa Hawley
Keyword(s):  
Palliative Care ◽  
Health Care Professionals ◽  
Care Service ◽  
Palliative Care Service ◽  
Early Integration ◽  
Care Services ◽  
Life Threatening Illness ◽  
Barriers To Access ◽  
Palliative Care Services ◽  
Life Threatening

Despite significant advances in understanding the benefits of early integration of palliative care with disease management, many people living with a chronic life-threatening illness either do not receive any palliative care service or receive services only in the last phase of their illness. In this article, I explore some of the reasons for failure to provide palliative care services and recommend some strategies to overcome these barriers, emphasizing the importance of describing palliative care accurately. I provide language which I hope will help health care professionals of all disciplines explain what palliative care has to offer and ensure wider access to palliative care, early in the course of their illness.

scholarly journals “Death is inevitable – a bad death is not” report from an international workshop

2019 ◽  
Vol 8 (1) ◽  
Author(s):  
Adir Shaulov ◽  
Kassim Baddarni ◽  
Nathan Cherny ◽  
Dorith Shaham ◽  
Pesach Shvartzman ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Policy ◽  
International Workshop ◽  
Critical Role ◽  
Policy Research ◽  
Truth Telling ◽  
Care Services ◽  
Life Threatening Illness ◽  
Palliative Care Services ◽  
Life Threatening

Abstract Palliative care is an approach meant to improve the quality of life of patients facing life-threatening illness and to support their families. An international workshop on palliative care took place in Caesarea, Israel under the auspices of the National Institute for Health Policy Research on July 4-5th, 2018, with the goal of discussing challenges to the development and integration of palliative care services in Israel. At the workshop, both national and international figures in the field of palliative care and health policy addressed several issues, including truth telling, religious approaches to end of life care, palliative care in the community, pediatric palliative care, Israel’s Dying Patient Act, the Ministry of Health’s National Plan for palliative care, and challenges in using advance directives. We summarize the topics addressed, challenges highlighted, and directions for further advancement of palliative care in the future, emphasizing the critical role of the Ministry of Health in providing a framework for development of palliative care.

scholarly journals Reluctance to Accept Palliative Care and Recommendations for Improvement: Findings From Semi-Structured Interviews With Patients and Caregivers

2021 ◽  
pp. 104990912110126
Author(s):  
Valeria Cardenas ◽  
Anna Rahman ◽  
Yujun Zhu ◽  
Susan Enguidanos
Keyword(s):  
Palliative Care ◽  
Controlled Trial ◽  
Insurance Coverage ◽  
Healthcare Providers ◽  
Health Condition ◽  
Insurance Companies ◽  
Structured Interviews ◽  
Care Services ◽  
Home Based ◽  
Palliative Care Services

Background: Despite some insurance plans now paying for home-based palliative care, recent reports have suggested that insurance coverage for palliative care may be insufficient in expanding patient access to home-based palliative care. Aim: To identify patients’ and caregivers’ perceived barriers to home-based palliative care and their recommendations for overcoming these barriers. Design: We conducted a qualitative study using semi-structured individual interviews. Our interview protocol elicited participants’ perspectives on home-based palliative care services; positive and negative aspects of the palliative program explanation; and suggestions for improving messaging around home-based palliative care. Setting/Participants: Twenty-five participants (patients, proxies, and their caregivers) who were eligible for a randomized controlled trial of home-based palliative care were interviewed by telephone. Results: Themes related to home-based palliative care referral barriers included reluctance to have home visits, enrollment timing, lack of palliative care knowledge, misconceptions about palliative care, and patients’ self-perceived health condition. Themes related to recommendations for overcoming these obstacles included ensuring that palliative care referrals come from healthcare providers or insurance companies and presenting palliative care services more clearly. Conclusion: Findings reinforce the need for additional palliative care education among patients with serious illness (and their caregivers) and the importance of delivering palliative care information and referrals from trusted sources.

The Snog and Grog Club

2012 ◽  
Vol 23 (2) ◽  
pp. 147-155 ◽  
Author(s):  
Allison Kabel
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Day Care ◽  
The United States ◽  
Care Staff ◽  
Staff Members ◽  
Care Services ◽  
Life Threatening Illness ◽  
Palliative Care Services ◽  
End Stage

The popularity of British hospice day care signals the expanding boundaries of palliative care beyond end-stage illness. In this article, I examine the ways hospice philosophy was interpreted and implemented in an outpatient day therapy setting run by a multidisciplinary team of health professionals. Findings suggest that hospice day care staff members used several strategies to help patients cope and retain a sense of personhood while facing numerous emotional and physical challenges associated with life-threatening illness. Health professionals in the United States will need to prepare for patients accessing hospice and palliative care services earlier in the illness trajectory to take advantage of these opportunities for patient support and advocacy.

Palliative Care in Burn and Thermal Injury

2019 ◽  
pp. 119-134
Author(s):  
Alisa Savetamal ◽  
Kristin Edwards
Keyword(s):  
Substance Abuse ◽  
Palliative Care ◽  
Burn Injury ◽  
Burn Injuries ◽  
The Other ◽  
Psychosocial Needs ◽  
Care Services ◽  
Valuable Adjunct ◽  
Palliative Care Services

Burn injury can be a life-changing event for many patients, requiring prolonged hospitalization, multiple operative procedures, and extensive physical rehabilitation after hospital discharge. For the burn team, the challenges of caring for burn injuries are compounded by the psychosocial needs of the patients, many of whom have underlying medical, psychiatric, or substance abuse problems or some combination of all of these. Integrating palliative care services into the burn team is a valuable adjunct for the patients, families, and care teams involved in burn injury. Palliative care provides a framework for considering not only the acute needs of the burn patient but also the other underlying issues that may affect the patient’s hospital course, recovery, and long-term goals.

Palliative care

2007 ◽  
pp. 159-168
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Care Services ◽  
Palliative Care Services ◽  
Life Threatening

Background 160 Interface between cancer and palliative care services 162 Caring for dying people 164 Bereavement 166 Models of bereavement 167 Support for the bereaved 168 The practice of palliative care aims to enhance the quality of life of people experiencing life-threatening illnesses and their families. The principles on which palliative care is based suggest that it...

Palliative care

2011 ◽  
pp. 715-718
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Nutritional Status ◽  
Early Stage ◽  
Disease Process ◽  
Life Care ◽  
Life Threatening Illness ◽  
Incurable Condition ◽  
Life Threatening

Palliative care 716 Palliative care is the approach taken to provide comfort and quality of life to people with a life-threatening illness and their families. When curative treatment is not possible, palliative care should be implemented at an early stage in the disease process. The aim is to alleviate symptoms and to support physical, emotional, spiritual and cultural needs. Although palliative care encompasses end of life care, it should be noted that many people live with an incurable condition for many months or years. Throughout this time, optimizing an individual's nutritional status is essential if physical function and quality of life are to be maintained....

Microethical & Relational Insights from Pediatric Palliative Care

2020 ◽  
Vol 7 (4) ◽  
pp. 94-96
Author(s):  
Dr. Abhijit Shinde ◽  
Dr. Sunil Natha Mhaske ◽  
Dr. Ramesh Kothari ◽  
Dr. Sonal Shinde
Keyword(s):  
United States ◽  
Palliative Care ◽  
End Of Life ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Live Births ◽  
Care Services ◽  
Palliative Care Services ◽  
Life Threatening ◽  
Developed World

In the India, more than 30 per 1000 live births of infants die each year before, during, or after birth as do many children with life- limiting conditions. In most countries in the developed world including the United States, the vast majority of infants, children and teenagers at end of life do not have access to multidisciplinary pediatric palliative care services in their community or at a children’shospital. Pediatric palliative care is for children and teenagers suffering from life- threatening or life-limiting conditions in which survival into adulthood is or may be jeopardized if curative treatments  fail. As a result, pediatric palliative care may last over many years.

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