How breast cancer survivors cope with fear of recurrence: a focus group study

2013 ◽  
Vol 22 (3) ◽  
pp. 705-712 ◽  
Author(s):  
Jolanda De Vries ◽  
Brenda L. Den Oudsten ◽  
Patty M. E. P. Jacobs ◽  
Jan A. Roukema
Keyword(s):  
Breast Cancer ◽  
Focus Group ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Fear Of Recurrence ◽  
Focus Group Study

Experiences of Asian Women Who Live in Urban Environments and Are Breast Cancer Survivors

2021 ◽  
pp. 104365962098877
Author(s):  
Carolee Polek ◽  
Thomas Hardie ◽  
Janet A. Deatrick
Keyword(s):  
Breast Cancer ◽  
Health Literacy ◽  
Focus Group ◽  
Cancer Survivors ◽  
Generational Differences ◽  
Breast Cancer Survivors ◽  
Community Outreach ◽  
Asian Women ◽  
Semistructured Interview ◽  
Outreach Workers

Introduction Despite expanding interest in cancer survivorship, little is known about urban Asian breast cancer survivors whose experience may differ from those in suburban and rural locations. This study explores survivors’ challenges to maximize outcomes and identify common and unique themes among urban Asian survivors. Information was obtained from the survivors and outreach workers from their community. Methodology Descriptive qualitative methods including semistructured interview guides were used to plan, conduct, and analyze both individual interviews of Asian women ( n = 6) and a focus group ( n = 7) composed of community outreach workers. Results The interview and focus group findings, endorsed themes of communication/language, trust, and privacy, with generational differences. Poor health literacy in both survivors and providers was identified. Discussion Nurses are in a unique position to use the themes identified to both assist survivors expand their health literacy and lobby for resources for providers to promote culturally congruent care.

Contribution of problem-solving skills to fear of recurrence in breast cancer survivors

2014 ◽  
Vol 145 (1) ◽  
pp. 205-210 ◽  
Author(s):  
Tatuo Akechi ◽  
Kanae Momino ◽  
Toshinari Yamashita ◽  
Takashi Fujita ◽  
Hironori Hayashi ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Problem Solving ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Fear Of Recurrence ◽  
Problem Solving Skills

scholarly journals Survivorship Care Focus Group Discussions for Breast Cancer Survivors and Primary Care Clinicians

2021 ◽  
pp. 1-4
Author(s):  
Hillary Klonoff-Cohen ◽  
Hillary Klonoff-Cohen ◽  
Mounika Polavarapu
Keyword(s):  
Breast Cancer ◽  
Primary Care ◽  
Focus Group ◽  
Cancer Survivors ◽  
Nurse Practitioners ◽  
Late Effects ◽  
Primary Care Physicians ◽  
Breast Cancer Survivors ◽  
Survivorship Care ◽  
Psychological Consequences

Purpose: This is the first pilot study to examine survivors’ experiences and primary care physicians and nurse practitioners’ knowledge and behaviour practices with respect to late effects (e.g., fatigue, chemobrain, lymphodema, cardiac problems, reproductive, infertility and sexual health issues, bone problems, and pain). Methods: Two separate focus groups consisting of 5 breast cancer survivors and 5 primary care physicians and nurse practitioners recruited from a local hospital in Central Illinois answered predetermined questions about cancer survivorship care. We intentionally limited the sample in order to conduct a detailed discussion (90 minutes) to gain every participant’s perspective. Results: Breast cancer survivors expressed a void in discussion and lack of knowledge among their primary care physicians regarding late effects as well as psychological consequences, referrals to support groups, and availability of resources (e.g., finances), thereby negatively affecting survivors’ quality of life. A primary care clinician (PCC) focus group revealed a service gap for mental health services for all patients, knowledge deficit about late effects, and lack of awareness of patient resources. Both cancer survivors and PCCs were extremely supportive about a shared care survivorship model between oncology and primary care. All focus group participants were unequivocally receptive about enhancing survivorship care throughout a cancer survivor’s lifetime. Conclusion: Complementing cancer survivorship care with primary care clinicians in the areas of late effects, in addition to psychological consequences, screening, and lifestyle habits will enhance a cancer survivor’s health-related quality of life.

Post-traumatic stress disorder in young breast cancer survivors.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 202-202
Author(s):  
Danny A. Vazquez ◽  
Shoshana M. Rosenberg ◽  
Shari I. Gelber ◽  
Kathryn Jean Ruddy ◽  
Evan Morgan ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Social Support ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Stress Disorder ◽  
Stage I ◽  
Fear Of Recurrence ◽  
Anxiety And Depression ◽  
Psychiatric Comorbidities ◽  
Young Breast Cancer

202 Background: Posttraumatic stress disorder (PTSD) is associated with morbidity and mortality in affected populations. Cancer survivors experience PTSD at a rate higher than the general population, with young age and female gender identified as risk factors. While young women with breast cancer experience greater psychosocial distress in general following diagnosis (dx), little is known about PTSD in this population. Methods: Women dx’d with Stage I-III breast cancer at age ≤ 40 were surveyed as a part of a multi-site cohort study. Demographic, treatment, psychosocial characteristics (including self-reported psychiatric conditions and use of psychiatric medications prior to dx), anxiety and depression (Hospital Anxiety and Depression Scale), fear of recurrence (Lasry Scale), and social support (Medical Outcomes Study) were assessed within 1 year after dx. PTSD was measured at 30 months post-dx using the PTSD Checklist – Civilian Version; a score ≥ 50 was considered positive for PTSD. Univariable and stepwise multivariable logistic regression were used to evaluate factors associated with PTSD. Results: 572 women were eligible for this analysis; median age at dx was 37 (range: 17-40); 87% had Stage I or II cancer. 37/572 women (6.5%) met criteria for PTSD at 30 months. Lower educational attainment, less financial comfort, less social support, stage 2 (vs. 1) disease, receipt of chemotherapy, fear of recurrence, anxiety and depression, and psychiatric comorbidities were associated (p ≤ 0.05) with PTSD in univariable analyses. Chemotherapy (OR = 3.48, 95% CI = 1.09-11.06), anxiety by HADS (OR = 20.29, 95% CI = 7.83-52.53), and psychiatric comorbidities (OR = 4.22, 95% CI = 1.40-12.74) were associated with increased likelihood of PTSD, whereas college education (OR = 0.25, 95% CI = 0.10-0.59) and greater social support (OR = 0.41, 95% CI = 0.17-0.99) appeared to be protective in multivariable analyses. Conclusions: PTSD affects a minority of young breast cancer survivors, with the prevalence in our cohort similar to that seen in other breast cancer populations. Early identification of those at risk for developing PTSD is essential for the adequate treatment of affected women and for the improvement of health outcomes and quality of life in cancer survivors.

Assessing the fear of recurrence using the Cancer Worry Scale in a sample of Italian breast cancer survivors

2021 ◽  
Author(s):  
Andrea Chirico ◽  
Deborah Vizza ◽  
Moira Valente ◽  
Melania Lo Iacono ◽  
Maria Rosita Campagna ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Fear Of Recurrence ◽  
Cancer Worry

scholarly journals Comparison of Quality of Life in Breast Cancer Survivors with Lymphoma Survivors

2020 ◽  
Vol 9 (4) ◽  
pp. 262-268
Author(s):  
Dr. Mumtaz Ahmad Khan ◽  
Dr. Shaista Zaffar ◽  
Dr. Namrah Mahmood
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Well Being ◽  
Mean Value ◽  
Fear Of Recurrence ◽  
Physical Parameters ◽  
Lymphoma Survivors

Objectives: To compare the Quality of Life of Breast Cancer Survivors and Lymphoma Survivors post treatment. Methodology: A cross sectional study was performed in the departments of General Surgery and Oncology at Pakistan Institute of Medical Sciences Islamabad from 1st June to 31st December 2019. Patients who had received treatment for breast cancer and Lymphoma were included using non probability consecutive sampling technique. A standardized questionnaire (QOL-CSV) to assess quality of life in cancer survivors was filled in by the researchers after interviewing the patients and their responses were recorded with the demographic and clinical characteristics of each patient. The data was entered in SPSS version 20 and co-relations were obtained. Results: A total number of 50 lymphoma survivors (LS) and 166 breast cancer survivors (BCS) participated. Physical parameters revealed a better mean score of 75.86 ±10.53 for LS group than for BCS group (63.45 ±9.64). Psychological well being score was similar with a mean of 42.18 ±8.06 for LS and 43.04 ±7.04 for BCS group. Distress was dealt better by LS than BCS (50% scoring 41-50 in LS versus 46.6% scoring 31-40 in BCS). Fear of recurrence and spread was higher amongst BCS group (≤10 score in 46.4% participants). LS group performed worse in social factors (mean value of 26.88 ±6.67). Spiritual well being was markedly better in BCS (mean value 47.15 ±6.27). Conclusion: Considerable negative impact on physical, psychological and social well being of carcinoma survivors is noted, especially after mastectomy. Key words: Carcinoma, Lymphoma, Breast cancer

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