Interventions to support adherence to oral anticancer therapies: research challenges, lessons learned, and strategies to overcome them from Australia and Switzerland

Author(s):  
Carole Bandiera ◽  
Xiomara Skrabal Ross ◽  
Evelina Cardoso ◽  
Dorothea Wagner ◽  
Chantal Csajka ◽  
...  
2001 ◽  
Vol 11 (4) ◽  
pp. 524-534 ◽  
Author(s):  
Steven Franzel ◽  
Peter Cooper ◽  
Glenn L Denning

2016 ◽  
Vol 58 (5) ◽  
Author(s):  
Florian Schaub ◽  
Travis D. Breaux ◽  
Norman Sadeh

AbstractPrivacy policies are supposed to provide transparency about a service's data practices and help consumers make informed choices about which services to entrust with their personal information. In practice, those privacy policies are typically long and complex documents that are largely ignored by consumers. Even for regulators and data protection authorities privacy policies are difficult to assess at scale. Crowdsourcing offers the potential to scale the analysis of privacy policies with microtasks, for instance by assessing how specific data practices are addressed in privacy policies or extracting information about data practices of interest, which can then facilitate further analysis or be provided to users in more effective notice formats. Crowdsourcing the analysis of complex privacy policy documents to non-expert crowdworkers poses particular challenges. We discuss best practices, lessons learned and research challenges for crowdsourcing privacy policy analysis.


Author(s):  
Robin J. Lewis ◽  
Charlotte A. Dawson ◽  
Alexander T. Shappie ◽  
Abby L. Braitman ◽  
Kristin E. Heron

2020 ◽  
Vol 5 (1) ◽  
pp. 88-96
Author(s):  
Mary R. T. Kennedy

Purpose The purpose of this clinical focus article is to provide speech-language pathologists with a brief update of the evidence that provides possible explanations for our experiences while coaching college students with traumatic brain injury (TBI). Method The narrative text provides readers with lessons we learned as speech-language pathologists functioning as cognitive coaches to college students with TBI. This is not meant to be an exhaustive list, but rather to consider the recent scientific evidence that will help our understanding of how best to coach these college students. Conclusion Four lessons are described. Lesson 1 focuses on the value of self-reported responses to surveys, questionnaires, and interviews. Lesson 2 addresses the use of immediate/proximal goals as leverage for students to update their sense of self and how their abilities and disabilities may alter their more distal goals. Lesson 3 reminds us that teamwork is necessary to address the complex issues facing these students, which include their developmental stage, the sudden onset of trauma to the brain, and having to navigate going to college with a TBI. Lesson 4 focuses on the need for college students with TBI to learn how to self-advocate with instructors, family, and peers.


2020 ◽  
Vol 29 (3S) ◽  
pp. 638-647 ◽  
Author(s):  
Janine F. J. Meijerink ◽  
Marieke Pronk ◽  
Sophia E. Kramer

Purpose The SUpport PRogram (SUPR) study was carried out in the context of a private academic partnership and is the first study to evaluate the long-term effects of a communication program (SUPR) for older hearing aid users and their communication partners on a large scale in a hearing aid dispensing setting. The purpose of this research note is to reflect on the lessons that we learned during the different development, implementation, and evaluation phases of the SUPR project. Procedure This research note describes the procedures that were followed during the different phases of the SUPR project and provides a critical discussion to describe the strengths and weaknesses of the approach taken. Conclusion This research note might provide researchers and intervention developers with useful insights as to how aural rehabilitation interventions, such as the SUPR, can be developed by incorporating the needs of the different stakeholders, evaluated by using a robust research design (including a large sample size and a longer term follow-up assessment), and implemented widely by collaborating with a private partner (hearing aid dispensing practice chain).


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