Effect of ankylosing spondylitis on health-related quality of life and different aspects of social life in young patients

2006 ◽  
Vol 25 (2) ◽  
pp. 168-174 ◽  
Author(s):  
Ahmet Ozgül ◽  
Fatma Peker ◽  
M. Ali Taskaynatan ◽  
A. Kenan Tan ◽  
Kemal Dinçer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ankylosing Spondylitis ◽  
Social Life ◽  
Young Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Clinical phenotype, fibrinogen supplementation and health-related quality of life in patients with afibrinogenemia

Blood ◽  
2021 ◽  
Author(s):  
Alessandro Casini ◽  
Sylvia von Mackensen ◽  
Cristina Santoro ◽  
Claudia Djambas Khayat ◽  
Meriem Belhani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Thrombotic Event ◽  
Young Patients ◽  
Severe Bleeding ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Due to its low prevalence, epidemiologic data on afibrinogenemia are limited and none are available on health-related quality of life (HRQoL). We conducted a cross-sectional international study to characterize the clinical features, the fibrinogen supplementation modalities and their impact on HRQoL in patients with afibrinogenemia. A total of 204 patients (119 adults and 85 children) from 25 countries were included. The bleeding phenotype was severe: 68 (33.3%) patients having at least one bleed per month and 48 (23%) a history of cerebral bleeding. About 35% (n=72) of patients were treated with fibrinogen concentrates or cryoprecipitates as prophylaxis, 18.1% (n=37) received more than one injection per week and 16.6% (n=34) were on home treatment. A thrombotic event was reported in venous and/or arterial territories by 37 (18.1%) patients. Thrombosis occurred even in young patients and recurrence was frequent (7.4%). The total HRQoL was lower in children than in adults. Discomfort linked to treatment and limitations to sports and leisure were the main concerns. Women and children were particularly affected in family relationships. In multivariate analyses, younger age, residence in Asia or Africa and a previous thrombotic event were statistically correlated with a worse HRQoL. In conclusion, our study underlines the severe bleeding and thrombotic phenotype and their impact on HRQoL in afibrinogenemia. The optimal strategy for fibrinogen supplementation needs to be determined.

scholarly journals Reductions in health-related quality of life in patients with ankylosing spondylitis and improvements with etanercept therapy

2005 ◽  
Vol 53 (4) ◽  
pp. 494-501 ◽  
Author(s):  
John C. Davis ◽  
Désirée van der Heijde ◽  
Maxime Dougados ◽  
J. Michael Woolley
Keyword(s):  
Quality Of Life ◽  
Ankylosing Spondylitis ◽  
Health Related Quality ◽  
Etanercept Therapy ◽  
Related Quality ◽  
Health Related

scholarly journals Factors related to health-related quality of life in ankylosing spondylitis, overall and stratified by sex

2018 ◽  
Vol 20 (1) ◽  
Author(s):  
Lucy Law ◽  
Jeanette Beckman Rehnman ◽  
Anna Deminger ◽  
Eva Klingberg ◽  
Lennart T. H. Jacobsson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ankylosing Spondylitis ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals The impact of pregnancy on women’s oral health-related quality of life: a qualitative investigation

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Omid Fakheran ◽  
Mahmoud Keyvanara ◽  
Zahra Saied-Moallemi ◽  
Abbasali Khademi
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Pregnant Women ◽  
Social Life ◽  
Well Being ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Abstract Background Complex psychological and physiological changes occur in women’s body during pregnancy. These changes affect both oral health status and oral health-related quality of life (OHRQoL). In almost all of the previous cross-sectional design studies on pregnant women, generic OHRQoL instruments have been used to measure OHRQoL. While such instruments may be reliable, they may not be appropriate to evaluate the OHRQoL in special populations like pregnant women. The purpose of this study was to investigate the self-perceived factors affecting the OHRQoL among pregnant women. Methods In this qualitative descriptive study, twenty- seven pregnant women were recruited from four healthcare centers located in Isfahan city, Iran. The interpretative phenomenological analysis was used to collect and analyze the data. Four criteria of credibility, dependability, transferability, and confirmability were implemented through established procedures to confirm the study rigor. Results Three major themes and six sub-themes capturing the impacts of pregnancy on women’s OHRQoL were identified. They covered all areas of life, including daily life, psychological well-being, social life, physical impact, and also barriers to utilization of dental care services. Some new domains such as “dentists’ refusal to treat pregnant women”, “negative feelings about pregnancy” and “concerns about fetal health” were found as important factors which could influence the OHRQoL during pregnancy. Conclusion The findings help to better understand the oral health issues impacting women during pregnancy and to achieve person-centered care and improved oral health outcomes in pregnant women. The conceptual framework created based on the results of this study may help health care workers and policy makers for improving the health of pregnant women.

Impact of Oral Mucositis on Oral Health-Related Quality of Life of Young Patients Diagnosed With Cancer

2015 ◽  
Vol 120 (2) ◽  
pp. e104
Author(s):  
JAIR CARNEIRO LEÃO ◽  
ANDREZA BARKOKEBAS SANTOS DE FARIA ◽  
DEBORAH FONSECA ◽  
ADRIANA MACHADO ZARZAR ◽  
LUIZ ALCINO MONTEIRO GUEIROS ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Oral Mucositis ◽  
Young Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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