Caregiving in Dementia and its Impact on Psychological Functioning and Health-Related Quality of Life: Findings from a Colombian Sample

This study examined health-related quality of life among a sample of South African women diagnosed with endometriosis. Semistructured interviews were conducted with 25 participants in South Africa. Participants discussed the ways in which endometriosis affected their health-related quality of life. A total of 10 categories emerged from the data, namely, (1) medical factors, (2) physical functioning, (3) psychological functioning, (4) sexual functioning, (5) reproductive functioning, (6) interpersonal functioning, (7) occupational functioning, (8) information and knowledge, (9) healthcare and medical treatment and (10) financial impact and considerations. Each category was described and compared with findings from other health-related quality of life research in women with endometriosis.

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P2-148 Psychological functioning and health related quality of life in adulthood following preterm birth

Early Human Development ◽

10.1016/s0378-3782(07)70481-4 ◽

2007 ◽

Vol 83 ◽

pp. S171

Author(s):

S.R. Dalziel ◽

V.K. Lim ◽

A. Lambert ◽

D. McCarthy ◽

V. Parag ◽

...

Keyword(s):

Quality Of Life ◽

Preterm Birth ◽

Psychological Functioning ◽

Health Related Quality ◽

Related Quality ◽

Health Related

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Health-related quality of life and psychological functioning in patients with primary malignant brain tumors: a systematic review of clinical, demographic and mental health factors

Neuro-Oncology Practice ◽

10.1093/nop/npv042 ◽

2015 ◽

Vol 3 (4) ◽

pp. 211-221 ◽

Cited By ~ 4

Author(s):

Paul D. Baker ◽

Jacki Bambrough ◽

John R. E. Fox ◽

Simon D. Kyle

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Brain Tumors ◽

Psychological Functioning ◽

Methodological Quality ◽

Health Related Quality ◽

Malignant Brain Tumors ◽

Related Quality ◽

Health Related

Abstract Background The impact of primary malignant brain tumors on patient quality of life and psychological functioning is poorly understood, limiting the development of an evidence base for supportive interventions. We conducted a thorough systematic review and quality appraisal of the relevant literature to identify correlates of health-related quality of life (HRQoL) and psychological functioning (depression, anxiety and distress) in adults with primary malignant brain tumors. Method Twenty-three articles met predefined inclusion criteria from a pool of peer-reviewed literature published between January 1984 and July 2015 (N = 2407). Methodological quality of included studies was assessed using an adapted version of the Newcastle-Ottawa Scale. Results The overall methodological quality of the literature was moderate. Factors relating consistently with HRQoL and/or psychological functioning were cognitive impairment, corticosteroid use, current or previous mental health difficulties, fatigue, functional impairment, performance status and motor impairment. Conclusions Practitioners should remain alert to the presence of these factors as they may indicate patients at greater risk of poor HRQoL and psychological functioning. Attention should be directed towards improving patients' psychological functioning and maximizing functional independence to promote HRQoL. We outline several areas of future research with emphasis on improved methodological rigor.

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A prospective longitudinal study of health-related quality of life and psychological wellbeing after an implantable cardioverter defibrillator in patients with genetic heart diseases

European Journal of Cardiovascular Nursing ◽

10.1093/eurjcn/zvab060.151 ◽

2021 ◽

Vol 20 (Supplement_1) ◽

Author(s):

LM Van Den Heuvel ◽

T Sarina ◽

J Sweeting ◽

L Yeates ◽

K Bates ◽

...

Keyword(s):

Quality Of Life ◽

Psychological Functioning ◽

Heart Diseases ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

Prospective Longitudinal ◽

Genetic Heart Disease

Abstract Funding Acknowledgements Type of funding sources: Public grant(s) – National budget only. Main funding source(s): NHMRC Project Grant National Heart Foundation Future Leader Fellowship OnBehalf Cardio Genomics Program Introduction Genetic heart diseases, often affecting young people, can be clinically heterogeneous and pose an increased risk of sudden cardiac death (SCD). The implantable cardioverter defibrillator (ICD) is a lifesaving therapy. Impact on prospective and long-term psychological and health-related quality of life (HR-QoL) after ICD implant in patients with genetic heart diseases is unknown. Purpose We aimed to investigate the psychological functioning and HR-QoL over time in patients with genetic heart diseases who receive an ICD and to identify risk factors for poor psychological functioning and HR-QoL. Methods A prospective longitudinal design was used. Patients diagnosed with a genetic heart disease for which they received an ICD, were eligible. Anxiety, depression, health-related quality of life and device acceptance were measured using validated questionnaires. Baseline surveys were completed prior to ICD implantation with five-year follow-up after ICD implant. Results Forty patients with an inherited cardiomyopathy or arrhythmia syndrome (mean age 46.3 ± 14.2 years; 65.0% males) were included. Mean psychological and HR-QoL measures were within normative ranges during follow-up. We observed significant overall improvements from baseline to first follow-up with variability increasing after 36 months. The presence of comorbidities predicted worse physical HR-QoL (p = 0.014). Other predictors were not statistically significant, although lower education and female gender seemed to be an interesting predictor for higher anxiety and less mental HR-QoL, and the presence of comorbidities for less physical HR-QoL. Conclusion While the majority of patients with a genetic heart disease adjust well to their ICD implant, a subset of patients experiences poor psychological and HR-QoL outcomes.

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