scholarly journals Measurement properties of self-report questionnaires on health-related quality of life and functional health status in dysphonia: a systematic review using the COSMIN taxonomy

2018 ◽  
Vol 28 (2) ◽  
pp. 283-296 ◽  
Author(s):  
Renée Speyer ◽  
Jae-Hyun Kim ◽  
Kenji Doma ◽  
Yu-Wei Chen ◽  
Deborah Denman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Self Report ◽  
Functional Health ◽  
Measurement Properties ◽  
Functional Health Status ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Patient Reported Outcome Measures Assessing Health-Related Quality Of Life in Dupuytren´S Disease: A Systematic Review

2020 ◽  
Vol 5 (01) ◽  
Author(s):  
Diego Gómez Herrero ◽  
Rafael Sanjuan-Cerveró ◽  
Pedro Vazquez-Ferreiro ◽  
Francisco Javier Carrera-Hueso ◽  
Marina Sáez-Belló ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Outcome Measures ◽  
Patient Reported Outcome Measures ◽  
Measurement Properties ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Objective: The objective of this study is to carry out a systematic review of the outcome measures reported by the patient that are used to measure the quality of life of patients with Dupuytren´s disease (DD), assessing their relevance and effectiveness. Methods: A systematic literature search was carried out in the PubMed®, Web of Sciencie®, SciELO®, EMBASE®, Google Scholar® and Cochrane® databases. We searched for peer-reviewed articles evaluating health related quality of life (HR-QoL) in patients with DD diagnosed and/or treated until April 1, 2017, for English or Spanish language. The following keywords were used: “Dupuytren´s disease (MeSH)” AND “health related quality of life (MeSH)”. The documents were eligible for inclusion if they described data on the HR-QoL domains in relation to diagnosis or treatment of DD after a revision process by two independent authors. The checklist (STROBE) was used to evaluate the quality of the works. Results: From 352 identified articles were finally selected 26 studies in the systematic review, mostly European. A total of nine outcomes measures specifically reported by the patient were identified: DASH (used in 13 of the 26 selected studies), Quick-DASH (8/26), MHQ (7/26), briefMHQ (1/26), URAM (4/26), POS-HAND/ARM (1/26), SDSS (1/26), DDSP (1/26) and CHFS (1/26) questionnaires. We analyze their quantitative results to evaluate the effectiveness and evaluate the methodological quality of the studies on the measurement properties of the results reported by patients related to health. Conclusion: More work is urgently needed in these areas before we can reach a consensus on which instrument is the best to assess functional deterioration and improvement in patients with DD.

scholarly journals HEALTH-RELATED QUALITY OF LIFE AND FUNCTIONAL HEALTH STATUS QUESTIONNAIRES IN OROPHARYNGEAL DYSPHAGIA

2016 ◽  
pp. 1-7
Author(s):  
P. Orlandoni ◽  
N. Jukic Peladic
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Oropharyngeal Dysphagia ◽  
Functional Health ◽  
Functional Health Status ◽  
Health Related Quality ◽  
Self Assessment ◽  
Related Quality ◽  
Health Related

Background: Oropharyngeal dysphagia negatively affects the quality of life of patients. It may lead to malnutrition, dehydration, aspiration pneumonia and death, especially in older people. Dysphagia and its level of severity have to be assessed accurately and in a timely fashion, because only early intervention can prevent the onset of complications. There are numerous self-administered questionnaires to monitor both the severity of dysphagia and the effectiveness of therapeutic approaches. The objective of this article is to conduct a literature review and to illustrate the characteristics of various self-assessment questionnaires for oropharyngeal dysphagia. Methods: A search of observational studies of adult populations with dysphagia, published from 1990 to June 2014, was performed in the electronic database Pubmed. Results: A total of 23 self-assessment questionnaires, on Health-related Quality of Life and Functional Health status, were identified. Fourteen questionnaires were excluded from the analysis for the following reasons: the questionnaire was written in a language other than English or Italian (n=3); the questionnaire was specific for caregivers (n=1); the questionnaires were not specific for oropharyngeal dysphagia (n=10). Nine questionnaires, validated in adult populations, were examined. Only two self-assessment questionnaires on quality of life - DHI (Dysphagia Handicap Index) and SWAL-QOL (Swallowing Quality Of Life) - were correctly validated; other questionnaires had methodological errors. Conclusions: A specific self-assessment questionnaire for older adults was not found. Almost all of the currently available questionnaires need to be improved methodologically. Furthermore, new questionnaires specifically for older people should be developed.

scholarly journals Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29

2019 ◽  
Vol 27 (7) ◽  
pp. 2395-2412
Author(s):  
Anja van der Hout ◽  
Koen I. Neijenhuijs ◽  
Femke Jansen ◽  
Cornelia F. van Uden-Kraan ◽  
Neil K. Aaronson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Systematic Review ◽  
Measurement Properties ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Eortc Qlq ◽  
Colorectal Cancer Patients

Does functional health status predict health-related quality of life in children after Fontan operation?

2015 ◽  
Vol 26 (3) ◽  
pp. 459-468 ◽  
Author(s):  
Karolijn Dulfer ◽  
Sjoerd S. M. Bossers ◽  
Elisabeth M. W. J. Utens ◽  
Nienke Duppen ◽  
Irene M. Kuipers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Medical History ◽  
Functional Health ◽  
Functional Health Status ◽  
Health Related Quality ◽  
Medical Status ◽  
Related Quality ◽  
Health Related

AbstractPurposeIt is important to identify those children with a Fontan circulation who are at risk for impaired health-related quality of life. We aimed to determine the predictive value of functional health status – medical history and present medical status – on both physical and psychosocial domains of health-related quality of life, as reported by patients themselves and their parents.MethodsWe carried out a prospective cross-sectional multi-centre study in Fontan patients aged between 8 and 15, who had undergone staged completion of total cavopulmonary connection according to a current technique before the age of 7 years.Functional health status was assessed as medical history – that is, age at Fontan, type of Fontan, ventricular dominance, and number of cardiac surgical procedures – and present medical status – assessed with magnetic resonance imaging, exercise testing, and rhythm assessment. Health-related quality of life was assessed with The TNO/AZL Child Questionnaire Child Form and Parent Form.ResultsIn multivariate prediction models, several medical history variables, such as more operations post-Fontan completion, lower age at Fontan completion, and dominant right ventricle, and present medical status variables, such as smaller end-diastolic volume, a higher score for ventilatory efficiency, and the presence of sinus node dysfunction, predicted worse outcomes on several parent-reported and self-reported physical as well as psychosocial health-related quality of life domains.ConclusionsMedical history and worse present medical status not only predicted worse physical parent-reported and self-reported health-related quality of life but also worse psychosocial health-related quality of life and subjective cognitive functioning. These findings will help in identifying patients who are at risk for developing impaired health-related quality of life.

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