Health-related quality of life questionnaires in individuals with haemophilia: a systematic review of their measurement properties

Haemophilia ◽  
2017 ◽  
Vol 23 (4) ◽  
pp. 497-510 ◽  
Author(s):  
P.F. Limperg ◽  
C.B. Terwee ◽  
N.L. Young ◽  
V.E. Price ◽  
S.C. Gouw ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Measurement Properties ◽  
Haemophilia A ◽  
Health Related Quality ◽  
Quality Of Life Questionnaires ◽  
Related Quality ◽  
Health Related

scholarly journals Patient Reported Outcome Measures Assessing Health-Related Quality Of Life in Dupuytren´S Disease: A Systematic Review

2020 ◽  
Vol 5 (01) ◽  
Author(s):  
Diego Gómez Herrero ◽  
Rafael Sanjuan-Cerveró ◽  
Pedro Vazquez-Ferreiro ◽  
Francisco Javier Carrera-Hueso ◽  
Marina Sáez-Belló ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Outcome Measures ◽  
Patient Reported Outcome Measures ◽  
Measurement Properties ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Objective: The objective of this study is to carry out a systematic review of the outcome measures reported by the patient that are used to measure the quality of life of patients with Dupuytren´s disease (DD), assessing their relevance and effectiveness. Methods: A systematic literature search was carried out in the PubMed®, Web of Sciencie®, SciELO®, EMBASE®, Google Scholar® and Cochrane® databases. We searched for peer-reviewed articles evaluating health related quality of life (HR-QoL) in patients with DD diagnosed and/or treated until April 1, 2017, for English or Spanish language. The following keywords were used: “Dupuytren´s disease (MeSH)” AND “health related quality of life (MeSH)”. The documents were eligible for inclusion if they described data on the HR-QoL domains in relation to diagnosis or treatment of DD after a revision process by two independent authors. The checklist (STROBE) was used to evaluate the quality of the works. Results: From 352 identified articles were finally selected 26 studies in the systematic review, mostly European. A total of nine outcomes measures specifically reported by the patient were identified: DASH (used in 13 of the 26 selected studies), Quick-DASH (8/26), MHQ (7/26), briefMHQ (1/26), URAM (4/26), POS-HAND/ARM (1/26), SDSS (1/26), DDSP (1/26) and CHFS (1/26) questionnaires. We analyze their quantitative results to evaluate the effectiveness and evaluate the methodological quality of the studies on the measurement properties of the results reported by patients related to health. Conclusion: More work is urgently needed in these areas before we can reach a consensus on which instrument is the best to assess functional deterioration and improvement in patients with DD.

scholarly journals Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29

2019 ◽  
Vol 27 (7) ◽  
pp. 2395-2412
Author(s):  
Anja van der Hout ◽  
Koen I. Neijenhuijs ◽  
Femke Jansen ◽  
Cornelia F. van Uden-Kraan ◽  
Neil K. Aaronson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Systematic Review ◽  
Measurement Properties ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Eortc Qlq ◽  
Colorectal Cancer Patients

scholarly journals Health-related quality of life after TBI: a systematic review of study design, instruments, measurement properties, and outcome

2015 ◽  
Vol 13 (1) ◽  
Author(s):  
Suzanne Polinder ◽  
Juanita A Haagsma ◽  
David van Klaveren ◽  
Ewout W Steyerberg ◽  
Ed F van Beeck
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Study Design ◽  
Measurement Properties ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals The validity of health-related quality of life questionnaires in bronchiectasis: a systematic review and meta-analysis

Thorax ◽  
2016 ◽  
Vol 71 (8) ◽  
pp. 683-694 ◽  
Author(s):  
Arietta Spinou ◽  
Konstantinos C Fragkos ◽  
Kai K Lee ◽  
Caroline Elston ◽  
Richard J Siegert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Meta Analysis ◽  
Health Related Quality ◽  
Quality Of Life Questionnaires ◽  
Related Quality ◽  
Health Related
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