Pain, skin sensations symptoms, and cognitive functioning predictors of health-related quality of life in pediatric patients with Neurofibromatosis Type 1

2018 ◽  
Vol 28 (4) ◽  
pp. 1047-1052 ◽  
Author(s):  
James W. Varni ◽  
Kavitha Nutakki ◽  
Nancy L. Swigonski
Keyword(s):  
Quality Of Life ◽  
Cognitive Functioning ◽  
Neurofibromatosis Type 1 ◽  
Pediatric Patients ◽  
Neurofibromatosis Type ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Parental reports of health-related quality of life in greek children with neurofibromatosis type 1

2009 ◽  
Vol 155 (3) ◽  
pp. 453 ◽  
Author(s):  
Athanasios Vardarinos ◽  
Dimitrios I. Zafeiriou ◽  
Euthymia Vargiami ◽  
Polyxeni Pratsidou-Gertsi ◽  
Eleutherios Kontopoulos ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Parental Reports

Health-Related Quality of Life in Children with Neurofibromatosis Type 1: Contribution of Demographic Factors, Disease-Related Factors, and Behavior

2009 ◽  
Vol 154 (3) ◽  
pp. 420-425.e1 ◽  
Author(s):  
Lianne C. Krab ◽  
R. Oostenbrink ◽  
Arja de Goede-Bolder ◽  
Femke K. Aarsen ◽  
Ype Elgersma ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Health Related Quality ◽  
Related Factors ◽  
Related Quality ◽  
Health Related ◽  
And Behavior

Parental Reports of Health-Related Quality Of Life in Young Children with Neurofibromatosis Type 1: Influence of Condition Specific Determinants

2007 ◽  
Vol 151 (2) ◽  
pp. 182-186.e2 ◽  
Author(s):  
Rianne Oostenbrink ◽  
Kimberly Spong ◽  
Arja de Goede-Bolder ◽  
Jeanne M. Landgraf ◽  
Hein Raat ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Parental Reports

Health-Related Quality of Life in Patients with Neurofibromatosis Type 1

Dermatology ◽  
2008 ◽  
Vol 218 (3) ◽  
pp. 215-220 ◽  
Author(s):  
Yllka Kodra ◽  
Sandra Giustini ◽  
Luigina Divona ◽  
Roberto Porciello ◽  
Stefano Calvieri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Assessment of health-related quality of life in pediatric patients with type 1 diabetes - a preliminary study

2020 ◽  
Vol 73 (11-12) ◽  
pp. 343-350
Author(s):  
Mirjana Smudja ◽  
Dragana Milutinovic ◽  
Tatjana Milenkovic ◽  
Ivana Tadic
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Pediatric Patients ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Introduction. Diabetes mellitus is a chronic disease that affects all aspects of life of pediatric patients, especially the psychological aspect, and hence the health-related quality of life. The aim of the study was to evaluate the effects of sociodemographic and clinical factors of pediatric patients with type 1 diabetes mellitus on self-assessment of health-related quality of life. Material and Methods. The research was conducted as a cross-sectional study. The sample included 37 pediatric patients aged 8 to 18 years, who were diagnosed with the type 1 diabetes mellitus six months or longer before enrollment into the study. The research instruments used in the study were the Serbian version of child-friendly EuroQol-5D-Y youth questionnaire and medical history data (gender, age, time since diagnosis - in years, glycosylated hemoglobin values, type of insulin therapy). Results. The total score of general health on the visual analogue scale was 80.54 on average (standard deviation - 20.87). A negative correlation was found between the total score on the visual analogue scale and the duration of diabetes (? = -0.329, p < 0.05). The statistical significance of the difference in the distribution of respondents? responses in relation to the type of insulin therapy was confirmed in the domain ?Feeling of concern? (?2 (2) = 7.19, p < 0.05). Conclusion. The key determinants that influenced the self-assessment of the health-related quality of life in pediatric patients with type 1 diabetes mellitus are duration of the disease and the use of insulin analogues.

scholarly journals Health-related quality of life in type 1 diabetes mellitus pediatric patients and their caregivers in Spain: an observational cross-sectional study

2019 ◽  
Vol 35 (9) ◽  
pp. 1589-1595 ◽  
Author(s):  
Julio López-Bastida ◽  
Juan Pedro López-Siguero ◽  
Juan Oliva-Moreno ◽  
Luis Alberto Vázquez ◽  
Isaac Aranda-Reneo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Patients ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Sectional Study ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related
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