Improving quality of life assessments for high-need adult Medicaid service users with mental health conditions

Author(s):  
Adrienne Nevola ◽  
Michael E. Morris ◽  
Holly C. Felix ◽  
Teresa Hudson ◽  
Nalin Payakachat ◽  
...  
Author(s):  
Dr Amanda Roestorf ◽  
Patricia Howlin ◽  
Dermot M. Bowler

Background: Poor mental health is known to adversely affect functional abilities, social isolation and quality of life (QoL). It is, therefore, crucial to consider the long-term impacts of mental health conditions as autistic adults grow older. Objectives: Our objectives were to understand the extent of: (i) autistic traits, co-occurring physical and mental health conditions; (ii) age-related differences in those conditions; and (iii) their impact on everyday living and QoL. Method: Fifty-two autistic adults (aged 18-79 years) participated in the first study (T1); 28 took part in a follow-up at T2 (mean retest interval 2.5 years). Standardised self-report measures of autistic traits, mental health and QoL were completed at both time points. Results: Over half of autistic adults experienced at least one co-occurring condition, and over a third met the criteria for 3+ conditions. Depression symptoms were particularly high in autistic women. Mental and physical health problems were related to autistic traits, difficulties in everyday life, and were a strong and consistent predictor of poor QoL (T1; T2) across the lifespan. Conclusion: Our findings highlighted that mental health difficulties persisted into older age and did not reduce over time. Together, these findings raise important questions about mental health provision in adult autism.


2021 ◽  
pp. 152692482110460
Author(s):  
Ann M. Warren ◽  
Kenleigh McMinn ◽  
Giuliano Testa ◽  
Anji Wall ◽  
Giovanna Saracino ◽  
...  

Introduction Uterus transplantation has demonstrated success in clinical trials. Questions regarding how it should transition to a clinical procedure must be addressed. A critical element is an evidence regarding the psychological experiences of living uterus donors, especially donors who are nondirected (altruistic). Project aims To describe the motivations for donation, psychological characteristics, and mental health history of nondirected living uterus donors in the Dallas UtErus Transplant Study (NCT02656550). Design An observational design was used to evaluate 44 self-referred nondirected uterus donors for the uterus transplant program. The donors participated in a clinical interview with a licensed psychologist and completed assessment instruments for depression, anxiety, posttraumatic stress, health-related quality of life, and resilience at the time of evaluation. Results Among the 11 donors, the median age was 36 years, 10 were married, 10 were of non-Hispanic/Latino ethnicity, and all had given birth (median of 2 children). The most frequent motivations for the donation were to provide another woman with the opportunity to carry her own child and to contribute to science. No participants met clinical criteria for depression, anxiety or posttraumatic stress but 4 reported current mental health conditions and 7 reported past or present treatment. Quality of life and resilience scores were above population norms. Conclusion Women selected as nondirected uterus donors were motivated to help other women experience carrying their own child and to contribute to science. A minority of women reported mental health conditions and/or treatment, and this was determined not to exclude participation with uterus donation.


2020 ◽  
Vol 100 ◽  
pp. 106114 ◽  
Author(s):  
Ying Ying Lee ◽  
Peizhi Wang ◽  
Edimansyah Abdin ◽  
Sherilyn Chang ◽  
Saleha Shafie ◽  
...  

2021 ◽  
Vol 8 (1) ◽  
pp. 148-156
Author(s):  
Karen L. Fortuna ◽  
Amanda Myers ◽  
Jessica Brooks ◽  
Caroline Collins-Pisano ◽  
Skyla Marceau ◽  
...  

2020 ◽  
Author(s):  
Antonio Miguel-Cruz ◽  
Anna-Maria Ladurner ◽  
Megan Kohls-Wiebe ◽  
David Rawani ◽  
Fiona Jaffray

BACKGROUND Mental health is a prevalent condition amongst Canadians. Mental health conditions are the leading cause of disability, as each year 1 in 5 Canadians experiences a mental health issue. Five percent of people aged 65 years and older perceive their mental health as fair or poor, and 6.3% of them have mood disorders. Regarding older adults with cognitive impairments such as dementias, up to 40 to 50 per cent of them experience depression at some point. We believe that older adults can benefit significantly from information and telecommunication technologies (ICTs) as a strategy for improving mental health conditions such as depression and anxiety, while at the same time improving their quality of life. 3Scape Systems Inc. is an Albertan-based private company that has produced a series of specialized 3D videos that have been designed to simulate real-life events and engage individuals living with mental health disorders and cognitive impairments such as dementia. OBJECTIVE The purpose of this study is to explore the trial design and effects of 3Scape videos on older adults’ symptoms of depression, anxiety, and quality of life, as well as the efficacy of this technology in reducing the caregiver burden on the START Psychiatry Day Hospital program at Glenrose Rehabilitation Hospital (GRH), and to provide data in order to estimate the parameters required to design a definitive Randomized Controlled Trial (RCT). METHODS The trial will use a randomized controlled design comprising 15 intervention participants and 15 control group participants. The participants will be adults aged 65 years and older who are cognitively intact or who have a minimal cognitive impairment, i.e. Montreal Cognitive Assessment (MOCA) ≥18), and clients from the START Psychiatry Day Hospital program at GRH. This study’s primary outcome variables are related to the clients’ depressive and anxiety symptoms, and their quality of life. The control group will receive the standard of care (i.e. the START Psychiatry Day Hospital program at GRH). The intervention group will receive the same standard of care as the control group at each facility and will use the 3Scape Systems videos for the therapeutic activities. RESULTS Our study is currently on hold due to the Covid-19 global pandemic. The recruitment process is expected to resume by November 2020 and the primary impact analysis is expected to be conducted by February 2021. CONCLUSIONS This study will provide valuable information such as the measurement of comparative intervention effects, perception of older adults and hand therapists about the 3Scape Systems, the associated costs of treatment, and product costings. This will contribute to the evidence planning process, which will be crucial for the future adoption of the 3Scape Systems. CLINICALTRIAL International Registered Report Identifier (IRRID): ISRCTN: 93685907 (available at https://doi.org/10.1186/ISRCTN93685907)


2021 ◽  
pp. 002076402110018
Author(s):  
Gillian Mezey ◽  
Sarah White ◽  
Isobel Harrison ◽  
Jennifer Bousfield ◽  
Helen Killaspy ◽  
...  

Background: Social inclusion is an important indicator of recovery in individuals with severe mental illness. The Social Inclusion Questionnaire User Experience (SInQUE) is a new measure of social inclusion for mental health service users which assesses five domains (consumption, production, access to services, social integration and civil engagement). It has good psychometric properties and is acceptable to service users and mental health professionals. It is not clear whether individuals with different diagnostic conditions experience a similar reduction in social inclusion. Aims: (1) Investigate whether current social inclusion differs between diagnostic groups (people with schizophrenia/other psychotic disorders, common mental disorder or personality disorder); (2) Identify factors associated with lower social inclusion; (3) Examine associations between social inclusion and stigma, quality of life and loneliness. Method: Mental health service users with psychotic disorder, personality disorder or common mental disorder, living in the community, completed the SInQUE, alongside other validated outcome measures. Multiple regression investigated associations. Results: About 192 service users (55% with psychotic disorder; 26% with common mental disorder; 19% with personality disorder). Current social inclusion did not vary according to diagnosis, except for the sub-domain of productivity, where individuals with personality disorder were more socially included than the other two groups. Lower social inclusion was associated with older age ( p = .008), lack of higher education ( p < .001), more previous admissions ( p = .005), severity of current symptoms and greater experienced stigma ( p = .006) and anticipated stigma ( p = .035). Greater social inclusion was associated with better quality of life ( p < .001) and less loneliness ( p < .001). Conclusions: Barriers to social inclusion in individuals with severe mental health problems include factors related to the illness, such as symptom severity and external factors, such as stigma and discrimination. Social inclusion is a recovery goal and should be routinely assessed. Increasing people’s social inclusion benefits service users in terms of improved mental health, better quality of life and reduced loneliness.


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