YouTube as an information source on BRCA mutations: implications for patients and professionals

Author(s):  
Priscila E. Laforet ◽  
Bhavya Yalamanchili ◽  
Grace C. Hillyer ◽  
Corey H. Basch
Author(s):  
V. V. Goncharova

The increasing interest towards abstracting as a type of analytical and synthetical information processing due to science globalization trend, is emphasized. The professionals who study this primary information compression are bibliographers, linguists, and information specialists. The author argues that modern professors and students all have to and must learn abstracting in accordance with the international standards for scientific, research, reference and instructional works.The author points to the diversity of the national lexicographical studies and, based on the abstracts index obtained as a result of her study, characterizes the current trends in abstracting linguistic dictionaries. The key user groups are defined. Publishers’ abstracts of dictionaries are discussed and represented. The example of dictionary Internet-based abstract analysis is given (50 items). Based on the abstracts texts, main negative factors to impact information value of this secondary information source are revealed, that is: lacking data essential for users, incomplete description of targeted readership, etc.The author introduces a model plan for digital guides of Russian lexicographical works and complements the plan with the systematic aspect analysis. She concludes that abstracting is an intellectually intensive process. It is underexplored as far as lexicographical works are concerned, and offers many possibilities for further studies.


2017 ◽  
Author(s):  
Katherine S. Corker

The scientific method has been used to eradicate polio, send humans to the moon, and enrich understanding of human cognition and behavior. It produced these accomplishments not through magic or appeals to authority, but through open, detailed, and reproducible methods. To call something “science” means there are clear ways to independently and empirically evaluate research claims. There is no need to simply trust an information source. Scientific values thus prioritize transparency and universalism, emphasizing that it matters less who has made a discovery than how it was done. Yet, scientific reward systems are based on identifying individual eminence. The current paper contrasts this focus on individual eminence with reforms to scientific rewards systems that help these systems better align with scientific values.


Author(s):  
Erhan Okuyan ◽  
Emre Gunakan ◽  
Sertaç Esin

Covid outbreak has been getting worse and spread affected all over the world. Pregnant patients are also vulnerable to respiratory diseases. We aimed to evaluate the awareness, emotional status, and behavior of pregnant during the COVID outbreak. This study's main benefit is to analyze the knowledge and understanding of pregnant women about the pandemic and draw attention to the prevention issues that need improvement. This research is a prospective observational study that 199 patients subjected to a questionnaire including 29 questions about patient characteristics, pregnancy information, knowledge about COVID19-infection, behavioral and emotional changes. 130 (65.3) of the patients stated an above-average knowledge level. Television was the most frequent information source (75.4%, n:150) and was the only information source for 90 (45.1%) of the patients. Sixty-nine patients used more than one information source. More than one prevention method uses by 149 (75%) of the patients. Washing hands (n:183, 92.0%) and cleaning the house (n:122, 61.3%) were the most preferred methods. Only 55 (27.6%) of the patients used a mask for prevention. 88(44.2%) of the patients stated that they preferred a shorter hospital stay, and 75 (37.7%) of the patients indicated that they postponed or avoided the pregnancy follow-up visits due to the COVID-19 issue. Pregnant women seem to be aware and stressed of COVID-19, but knowledge of what to do seems insufficient. Patients informed of risks of COVID infection, unplanned hospital admission, and chances of avoiding necessary visits and home birth demands.


2020 ◽  
Author(s):  
Christina Cassady ◽  
William Ben Mortenson ◽  
Andrea F Townson ◽  
Shannon Sproule ◽  
Janice Jennifer Eng

BACKGROUND Access to quality health information is essential for self-management after serious injuries such as spinal cord injury (SCI). OBJECTIVE The goal of this study was to evaluate the role of a consumer website in addressing the information needs of persons and families with SCI, as well as its impact on their knowledge and behaviour. METHODS Persons with SCI and family members were recruited from 3 settings: an acute hospital, a rehabilitation hospital, and an SCI community organization to acquire perspectives from early after injury to the chronic stage. Participants were introduced to the Spinal Cord Injury Research Evidence (SCIRE) Community website, which was an internet site developed to provide evidence-informed health information about SCI in everyday language. After using the SCIRE Community website for 4 weeks, semi-structured individual interviews were conducted to explore purposes of use, user experience, and impact on knowledge and behaviour. Interview transcripts were analyzed using qualitative thematic analysis. RESULTS The participants were 24 individuals (18 persons with SCI and 6 family members). Thirteen participants completed the study in a hospital setting and 11 participants in a community setting. We identified 3 main themes in the data: (1) ‘An internet tool to support and empower persons and families’ described the empowering nature of access to an independent information source which enabled persons and families with SCI to take a more active role in their care; (2) ‘an accessible source of credible information’ described how users valued easy to access content with oversight by experts (i.e., perceived to be trustworthy); and (3) ‘Opportunities to increase impact’ outlined suggestions on creating opportunities to engage with content through active learning strategies and community connections. CONCLUSIONS Persons and families with SCI valued having access to an independent online health information website, especially early after injury, as it helped to empower autonomy and facilitated better communication between persons and families and healthcare providers. Our study provides support for the value of internet-based health information as a supplementary tool for therapeutic education for persons and families with serious health conditions such as SCI.


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