Effects of Parental Chronic Illness on Children’s Psychosocial and Educational Functioning: a Literature Review

2016 ◽  
Vol 21 (2) ◽  
pp. 166-176 ◽  
Author(s):  
Cliff Yung-Chi Chen
2017 ◽  
Vol 33 ◽  
pp. 23-32 ◽  
Author(s):  
Lucy L. Gan ◽  
Alistair Lum ◽  
Claire E. Wakefield ◽  
Beeshman Nandakumar ◽  
Joanna E. Fardell

2020 ◽  
Vol 41 ◽  
Author(s):  
Tânia Marlene Gonçalves Lourenço ◽  
Rita Maria Sousa Abreu-Figueiredo ◽  
Luís Octávio de Sá

ABSTRACT Objective: To analyze the nursing diagnosis NANDA-I - Caregiver Role Strain validation studies. Methods: Integrative literature review. Research of studies carried out between 2000 and 2018 with the descriptors: caregivers, nursing diagnosis and validation study in the following databases: Web of Science, EBESCOhost, Scielo Brasil and Portugal, LILACS, RCAAP, CAPES, NANDA-I website, and in the bibliographic references of the articles. Articles in Portuguese, English or Spanish were included. Results: The sample consisted of seven validation studies, with heterogeneity in the methodologies used. The populations where the diagnosis was clinically validated focused on caregivers for the elderly and people with chronic illness. The most prevalent defining characteristics were Stress and Apprehension related to the future. Conclusions: This diagnosis requires further validation studies among different populations in search of greater accuracy and a reduction in the number of defining characteristics, facilitating the use of taxonomy.


Aquichan ◽  
2012 ◽  
Vol 12 (2) ◽  
pp. 134-143 ◽  
Author(s):  
Amparo Astrid Montalvo-Prieto ◽  
Boris Cabrera-Nanclares ◽  
Sandra Quiñones-Arrieta ◽  

Con el propósito de conocer los desarrollos que la enfermería ha alcanzado acerca del cuidado de pacientes con enfermedad crónica, de sus familiares, y su sufrimiento, así como los instrumentos propuestos para medirlo, se realizó una revisión de la literatura a partir de los descriptores: sufrimiento, instrumentos, enfermos crónicos, enfermería (circunscrito a la persona con enfermedad crónica que sufre), y las escalas que se utilizan para evaluarlo. La búsqueda se hizo en las bases de datos SciELO, Nursing Consult, Redalyc, Dialnet, EBSCOhost; se revisaron un total de 116 artículos de los cuales se seleccionaron 40 que trataban la cronicidad y su afectación emocional en las personas, el sufrimiento, el cuidado de enfermería y los instrumentos utilizados para medirlo. Los resultados de la búsqueda evidenciaron los escasos estudios que enfermería ha realizado sobre el tema, aunque destacan la importancia que tiene para la disciplina comprender el sufrimiento de las personas en condición de cronicidad, porque permite asumir en el cuidado la totalidad del ser humano, con un trato digno y humanizado, y fortalecer a través de la investigación el cuidado del paciente con sufrimiento tanto físico como emocional


2021 ◽  
Vol 12 ◽  
Author(s):  
Jannike Kaasbøll ◽  
Norbert Skokauskas ◽  
Stian Lydersen ◽  
Anne Mari Sund

Background: Parental chronic illness is associated with an elevated risk for developing social-emotional and behavioral problems in children, in particular internalizing symptoms. This study aimed to investigate the associations between parental chronic illness when participants were adolescents and subsequent internalizing symptoms in young adulthood and whether adolescent attachment to parents or peers mediates these associations.Methods: The study used longitudinal survey data from the Youth and Mental Health Study, a cohort study including a representative sample of youth in central Norway assessed in the period from 1999 to 2000 (mean age 14.9 years) and in 2012 (mean age 27.2 years) (N = 1,266). The data consist of youth self-reports at both time points. Parental chronic illness was reported by the adolescents, quality of attachment was measured using the Inventory of Parent and Peer Attachment (IPPA), and internalizing problems were assessed in young adulthood by using the Adult Self-Report (ASR). Data were analyzed using parallel mediation analyses, controlling for adolescent sex, parental socioeconomic status, and divorce. In addition, separate analyses were conducted for adolescent girls and boys.Results: The total longitudinal effect was significant for both maternal and paternal chronic illness on internalizing problems in young adulthood. The direct effect on internalizing problems was only significant for maternal chronic illness. Attachment to fathers partially mediated the relationship between maternal chronic illness in adolescence and internalizing symptoms in young adulthood, whereas attachment to both mothers and fathers fully mediated the relationship between paternal chronic illness in adolescence and internalizing symptoms in young adulthood. A separate analysis for girls and boys indicated that the results were only significant for girls. Parental chronic illness did not play a significant indirect effect via attachment to peers on internalizing problems.Conclusions: Identifying protective factors in the pathways between parental chronic illness and mental distress in children could guide measures that promote the well-being of the child and family. The study demonstrates the importance of targeting the entire family in chronic illness care.


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