Changes in Gross Motor Function and Health-Related Quality of Life in Adults With Cerebral Palsy: An 8-Year Follow-Up Study

2014 ◽  
Vol 95 (11) ◽  
pp. 2071-2077.e1 ◽  
Author(s):  
Koyo Usuba ◽  
Bruce Oddson ◽  
Alain Gauthier ◽  
Nancy L. Young
2016 ◽  
Vol 07 (02) ◽  
pp. 223-227 ◽  
Author(s):  
S. Surender ◽  
Vykuntaraju K. Gowda ◽  
K. S. Sanjay ◽  
G. V. Basavaraja ◽  
Naveen Benakappa ◽  
...  

ABSTRACT Introduction: In children, health-related quality of life (HRQOL) includes parental impact and family functioning along with concepts of illness, functional status, mental health, and comfort. We are focusing on the impact of cerebral palsy (CP) on children’s HRQOL and their families, and its relationship with gross motor dysfunction. Subjects and Methods: CP children aged 3–10 years under regular neurology follow-up were enrolled. The HRQOL and motor severity were prospectively assessed using lifestyle assessment questionnaire-CP and gross motor function classification systems, respectively. Results: One hundred children participated in this study. Thirty-three percent of children had good, 22% had mildly affected, whereas 45% had moderately to severely affected HRQOL. A significant association is present between gross motor function classification system and HRQOL. Conclusion: HRQOL in CP and their caregivers is highly impaired. The degree of impairment is associated with physical independence, mobility, clinical burden, and social integration dimensions. Therapies targeting these dimensions and associated comorbidities will improve the HRQOL. Gross motor function classification system is a good indicator of HRQOL.


2009 ◽  
Vol 10 (1) ◽  
Author(s):  
Inger Hallberg ◽  
Margareta Bachrach-Lindström ◽  
Staffan Hammerby ◽  
Göran Toss ◽  
Anna-Christina Ek

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