scholarly journals Caregiver-reported health-related quality of life of children with cerebral palsy and their families and its association with gross motor function: A South Indian study

2016 ◽  
Vol 07 (02) ◽  
pp. 223-227 ◽  
Author(s):  
S. Surender ◽  
Vykuntaraju K. Gowda ◽  
K. S. Sanjay ◽  
G. V. Basavaraja ◽  
Naveen Benakappa ◽  
...  

ABSTRACT Introduction: In children, health-related quality of life (HRQOL) includes parental impact and family functioning along with concepts of illness, functional status, mental health, and comfort. We are focusing on the impact of cerebral palsy (CP) on children’s HRQOL and their families, and its relationship with gross motor dysfunction. Subjects and Methods: CP children aged 3–10 years under regular neurology follow-up were enrolled. The HRQOL and motor severity were prospectively assessed using lifestyle assessment questionnaire-CP and gross motor function classification systems, respectively. Results: One hundred children participated in this study. Thirty-three percent of children had good, 22% had mildly affected, whereas 45% had moderately to severely affected HRQOL. A significant association is present between gross motor function classification system and HRQOL. Conclusion: HRQOL in CP and their caregivers is highly impaired. The degree of impairment is associated with physical independence, mobility, clinical burden, and social integration dimensions. Therapies targeting these dimensions and associated comorbidities will improve the HRQOL. Gross motor function classification system is a good indicator of HRQOL.

2020 ◽  
Vol 2020 ◽  
pp. 1-6
Author(s):  
Sharat Chandra Pani ◽  
Saja Fahad AlEidan ◽  
Rawan Nasser AlMutairi ◽  
AlJawharah Ali AlAbsi ◽  
Dalal Nasser AlMuhaidib ◽  
...  

Background. There is evidence that gross motor function impacts the health-related quality of life of young adults with cerebral palsy. This study aimed to assess gross motor function, oral health and oral health-related quality of life (OHRQoL), and the relationship between them in young adults with cerebral palsy. Methods. The sample comprised 46 individuals aged between 13 and 17 years with Gross Motor Function Classification Scores (GMFCS) ranging from level I to level III. The individuals and their parents were administered an Arabic version of the child perception questionnaire for adolescents. Parental and child perception scores, DMFT, and gingival index were compared across GMFCS levels using the one-way ANOVA and Scheffe’s post hoc test. Results. Children with level III GMFCS had a significantly higher child perception score (CPQ) and parental perception score (PPQ) than those with level I or level II scores. There was a significant association between function (GMFCS) and the CPQ score in children (p=0.016). No significant associations were found between the CPQ score and either dental caries (DMFT) or gingival bleeding (GI) scores. Children with GMFCS level III had a significantly higher DMFT (p=0.002) and GI (p=0.001) scores. Conclusion. Motor function has a significant impact on both the oral health and the OHRQoL of adolescents and young adults with spastic cerebral palsy.


2017 ◽  
Vol 9 (1) ◽  
Author(s):  
Jéssica Aparecida Horchuliki ◽  
Daniele Parisotto Antoniassi ◽  
Claudiana Renata Chiarello ◽  
Tainá Ribas Mélo

OBJETIVO: Analisar a influência da terapia neuromotora intensiva na motricidade e na qualidade de vida de crianças com encefalopatia crônica não progressiva da infância.MÉTODOS: Como instrumentos de avaliação foram utilizados o Gross Motor Function Classification System (GMFCS), a Gross Motor Function Measure (GMFM-88) e o questionário Pediatric Quality of Life Interventory 3.1 – Cerebral Palsy Module Modificado (PedsQl 3.1), aplicado aos responsáveis pelas crianças. Por meio desses instrumentos, oito crianças de 4 a 10 anos com diagnóstico de encefalopatia crônica não progressiva da infância foram avaliadas por comparação dos valores médios pré e pós avaliação.RESULTADOS: Pela escala GMFM observou-se diferença estatística positiva entre o pré e o pós de p=0,0005 e na escala PedsQl obteve-se p=0,051.CONCLUSÕES: A terapia neuromotora intensiva influencia de maneira positiva na motricidade global. A qualidade de vida apresentou uma tendência a melhora, podendo ter seu resultado influenciado pelo número pequeno da amostra. 


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