Outcome measures for holistic, complex interventions within the palliative care setting

2008 ◽  
Vol 14 (1) ◽  
pp. 25-32 ◽  
Author(s):  
Elizabeth Anita Thompson ◽  
Tina Quinn ◽  
Charlotte Paterson ◽  
Helen Cooke ◽  
Deidre McQuigan ◽  
...  
BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e031046
Author(s):  
Daisy McInnerney ◽  
Nuriye Kupeli ◽  
Patrick Stone ◽  
Kanthee Anantapong ◽  
Justin Chan ◽  
...  

IntroductionEmotional disclosure (ED) is a term used to describe the therapeutic expression of emotion. ED underlies a variety of therapies aimed at improving well-being for various populations, including people with palliative-stage disease and their family carers. Systematic reviews of ED-based psychotherapy have largely focused on expressive writing as a way of generating ED. However, heterogeneity in intervention format and outcome measures has made it difficult to analyse efficacy. There is also debate about the mechanisms proposed to explain the potential effects of ED.We present a scoping review protocol to develop a taxonomy of ED-based interventions to identify and categorise the spectrum of interventions that could be classified under the umbrella term of ‘emotional disclosure’ in the palliative care setting. By mapping these to associated treatment objectives, outcome measures and explanatory frameworks, the review will inform future efforts to design and evaluate ED-based therapies in this population.Methods and analysisThe review will be guided by Arksey and O’Malley’s five-stage scoping review framework and Levac’s extension. The following electronic databases will be searched from database inception: CENTRAL, the Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycINFO, Scopus, Web of Science and MEDLINE. We will include peer-reviewed studies and reviews. We will also check grey literature, including clinical trial registers, conference proceedings and reference lists, as well as contacting researchers. Articles will be screened by at least two independent reviewers and data charted using an extraction form developed for this review. Results will be analysed thematically to create a taxonomy of interventions, outcome measures and theoretical frameworks.Ethics and disseminationThis review does not require ethical approval as it is a secondary analysis of pre-existing, published data. The results will inform future research in the development of ED-based interventions and evaluation of their efficacy in the palliative care setting. We will disseminate findings through peer-reviewed journals.


2012 ◽  
Vol 30 (8) ◽  
pp. 752-758 ◽  
Author(s):  
Cindy Lee ◽  
Ryash Vather ◽  
Anne O’Callaghan ◽  
Jackie Robinson ◽  
Briar McLeod ◽  
...  

2007 ◽  
Vol 5 (4) ◽  
pp. 397-404 ◽  
Author(s):  
Maria E. Carlsson ◽  
Ingrid M. Nilsson

ABSTRACTObjectives:To improve the support to bereaved spouses during the year after the patient's death, a project was started consisting of three visits by a nurse (after 1, 3, and 13 months) with conversations about the patient's death and the spouse's life situation. The aim of this study was to describe the bereaved spouse's situation and adaptation during the first year after the loss.Methods:Spouses of patients cared for by The Advanced Home Care Team (APHCT) in Uppsala, Sweden, were invited to participate in the project. Each participant was encouraged to talk freely about his or her situation, but enough direction was given to ensure that all items listed on a standardized questionnaire were covered.Results:Fifty-one spouses met the inclusion criteria and were invited to participate and 45 accepted. The subjects felt quite healthy but were tired and suffered from sleep disturbance. The grief reactions had initially been high but showed a significant decline from 1 to 13 months (p < .01). Forty-nine percent had experienced postbereavement hallucinations.Significance of results:This study showed that the bereaved spouses felt quite healthy and adjusted quite well to their new life situation, after the patient's death in a palliative care setting. The grief reactions had initially been high but showed a significant decline during the year.


Nutrition ◽  
2021 ◽  
pp. 111264
Author(s):  
Enrico Ruggeri ◽  
Marilena Giannantonio ◽  
Rita Ostan ◽  
Federica Agostini ◽  
Anna Simona Sasdelli ◽  
...  

2014 ◽  
Vol 11 (1) ◽  
pp. 62-67 ◽  
Author(s):  
Peter Eastman ◽  
Brian Le ◽  
Gillian McCarthy ◽  
James Watt ◽  
Mark Rosenthal

2017 ◽  
Vol 25 (10) ◽  
pp. 3253-3259 ◽  
Author(s):  
P. Vayne-Bossert ◽  
E. Richard ◽  
P. Good ◽  
K. Sullivan ◽  
J.R. Hardy

2004 ◽  
Vol 48 (4) ◽  
pp. 333-341 ◽  
Author(s):  
Alexandra Clover ◽  
Jan Browne ◽  
Peter McErlain ◽  
Bernadette Vandenberg

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