Narrative medicine applications for neuro-oncology patient identity and quality of life

2021 ◽  
Vol 83 ◽  
pp. 8-12
Author(s):  
Robert B. Slocum ◽  
John L. Villano
2018 ◽  
Vol Volume 13 ◽  
pp. 287-297 ◽  
Author(s):  
Paolo Banfi ◽  
Antonietta Cappuccio ◽  
Maura Latella ◽  
Luigi Reale ◽  
Elisa Muscianisi ◽  
...  

2014 ◽  
Vol 10 (4) ◽  
pp. 248-253 ◽  
Author(s):  
Joleen M. Hubbard ◽  
Axel F. Grothey ◽  
Robert R. McWilliams ◽  
Jan C. Buckner ◽  
Jeff A. Sloan

The authors conclude that single-item measures of pain, fatigue, and QOL can be incorporated into oncology clinical practice with positive implications for patients and physicians without increasing duration of visits or work burden.


2004 ◽  
Vol 22 (14_suppl) ◽  
pp. 5-5 ◽  
Author(s):  
J. A. Sloan ◽  
H. McLeod ◽  
D. Sargent ◽  
X. Zhao ◽  
C. Fuchs ◽  
...  

2019 ◽  
Vol 53 (1) ◽  
pp. 1801919 ◽  
Author(s):  
Michael D. McGoon ◽  
Pisana Ferrari ◽  
Iain Armstrong ◽  
Migdalia Denis ◽  
Luke S. Howard ◽  
...  

The assessment of objective measurement of cardiopulmonary status has helped us achieve better clinical outcomes for patients and develop new therapies through to the point of market access; however, patient surveys indicate that more can be done to improve holistic care and patient engagement. In this multidisciplinary review, we examine how clinical teams can acknowledge and embrace the individual patient's perspective, and thus improve the care for individual patients suffering from pulmonary hypertension by cultivating the importance and relevance of health-related quality of life in direct clinical care. At the individual level, patients should be provided with access to accredited specialist centres which provide a multidisciplinary approach where there is a culture focused on narrative medicine, quality of life, shared decision making and timely access to palliative care, and where there is participation in education. On a larger scale, we call for the development, expansion and promotion of patient associations to support patients and carers, lobby for access to best care and treatments, and provide input into the development of clinical trials and registries, focusing on the patients’ perspective.


2004 ◽  
Vol 22 (14_suppl) ◽  
pp. 5-5 ◽  
Author(s):  
J. A. Sloan ◽  
H. McLeod ◽  
D. Sargent ◽  
X. Zhao ◽  
C. Fuchs ◽  
...  

2016 ◽  
Vol 34 (26_suppl) ◽  
pp. 150-150
Author(s):  
Antonella Galiano ◽  
Stefania Schiavon ◽  
Antonella Brunello ◽  
Michela Michielotto ◽  
Irene Guglieri ◽  
...  

150 Background: WHO defines palliative care as an approach that improves the quality of life of patients (pts) and their families facing problems associated with life threatening illnesses. This occurs by means of early identification, assessment and treatment of pain and other problems physical, psychosocial, and spiritual. Recently, palliative care has been incorporated into the treatment of oncology pts earlier in the course of their disease. We aimed to explore this approach at our institution. Methods: We established an interdisciplinary clinic at IOV with the goal of promoting pts’ comprehensive support by integrating palliative care into active oncology treatments. Our primary objectives were to: optimize the quality of life of pts at every stage of their disease, ensure continuity of care through proper coordination of available services and avoid a sense of abandonment at the end of life. Pts included were those with advanced disease who had a life expectancy of less than one year, pts who had symptomatic disease regardless of prognosis, and pts who were considered frail, because of clinical, social, psychological, spiritual, logistical, and economical criteria. The multidisciplinary team consisted of a medical oncologist, a palliative care physician, a psychologist, a nurse and a nutritionist. Results: Between March 2014 and March 2016, 337 pts were visited, with different types of cancer. Median age was 69 (range: 34-93), 44% were men, median PS (ECOG) was 1.5, 47% were undergoing anti-cancer treatment. Reasons for referral included: physical complaints (71%), psychosocial issues (30.3%), nutritional problems (38%) and social problems (7%). For the 46% of patients, domiciliary health care was activated directly by the Local Health Department or through the General Practitioner; specific action have been made in relations to the problems encountered. Conclusions: The Interdisciplinary Clinic of Simultaneous Care carried out at IOV represents a successful pilot experience that proposes an organizational model for early integration of palliative care as an integral part of treating the oncology patient.


2002 ◽  
Vol 77 (4) ◽  
pp. 367-370 ◽  
Author(s):  
Jeff A. Sloan ◽  
David Cella ◽  
Marlene H. Frost ◽  
Gordon H. Guyatt ◽  
Mirjam A.G. Sprangers ◽  
...  

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