scholarly journals The Nexus Between the Documentation of End-of-Life Wishes and Awareness of Dying: A Model for Research, Education and Care

2018 ◽  
Vol 55 (2) ◽  
pp. 522-529 ◽  
Author(s):  
Deborah P. Waldrop ◽  
Jacqueline M. McGinley ◽  
Brian Clemency
2021 ◽  
Author(s):  
Felicia Lazaridou ◽  
Andreas Heinz

Mental health science as a field of research, education and care practices has a fundamental role to play in mitigating the costs of racism for affected communities. The development and the implementation of solutions, such as gaining perspective, encouraging mentorship and finding empowerment, can only meaningfully occur through the involvement of lived experience expertise. Notably, as a first step, the inclusion of such expertise at a structural level would require the cultivation of environments of belonging in psychiatry, clinical psychology and the allied mental health fields for students racialised as Black and Of Colour. Black Lives Matter, as a specific political movement, articulates a critique of how certain subjectivities and identities belong more naturally in spaces of knowledge and power such as universities. This chapter reflects on belonging as a ‘feeling of mattering’ and a contemporary politics. It is argued that the possibility to facilitate the effective elimination of structural racism in mental health science requires the cultivation of environments of belonging at an institutional level causing greater inclusivity and enjoyment for Black students and students Of Colour in ‘liberated learning spaces’. A clear, actionable path to create environments of belonging to help resolve structural racism is outlined.


2015 ◽  
Vol 76 (4) ◽  
Author(s):  
Eduardo Bossone ◽  
Giuseppe Limongelli ◽  
Graziella Malizia ◽  
Francesco Ferrara ◽  
Olga Vriz ◽  
...  

Despite recent and exponential improvements in diagnostic- therapeutic pathways, an existing “GAP” has been revealed between the “real world care” and the “optimal care” of patients with chronic heart failure (CHF). We present the T.O.S.CA. Project (Trattamento Ormonale dello Scompenso CArdiaco), an Italian multicenter initiative involving different health care professionals and services aiming to explore the CHF “metabolic pathophysiological model” and to improve the quality of care of HF patients through research and continuing medical education.


2017 ◽  
Author(s):  
Priscilla Ventura-Medeiros

End of life care is a growing specialty in healthcare and requires specialized knowledge and care by the nurse. Many patients end their life in an acute care setting which may be lacking in providers who are well versed in end of life care, specifically comfort measures. Therefore, assessing the registered nurses knowledge of comfort measures only, as a component of end of life care, is a critical first step in improving end of life patient and family experience. By identifying current provider knowledge of comfort care and the understanding of practice guidelines, a specific and relevant educational program can be developed. This project will evaluate the level of self-reported knowledge of registered nurses who are caring for patients designated with comfort measures only orders. With successful completion of this project, the educational needs for these registered nurses will be identified and utilized to improve education and care delivery for patients who are on comfort measures only.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 981-981
Author(s):  
Meredith Troutman-Jordan ◽  
Boyd Davis

Abstract Studies of the impact of robotic companion pets are proliferating, authored by several disciplines, each with different concerns. Roboticists focus on technology design and artificial emotional intelligence as opposed to general preferences for soft, furry, interactive animals. Others worry that as people interact with potentially deceptive technology, they may think the pet is alive. While aware of these serious concerns, gerontologists have focused on how lonely older persons without cognitive impairment respond to social ‘helper’ robots. More recent studies emphasize the possible impact of animatronic pets on persons with dementia (PWD). Therapeutic benefits of these pets are just being established. Our current pilot study is timely in that it now involves semi-structured interviews with formal/ informal caregivers of PWD who have been given a robot pet. We are eliciting perceptions, opinions, and observations of the PWD’s response to robotic pets. We recruited 8 gerontology students as much-needed assistants for a research-driven topics course to afford them field exposure to PWD, caregivers, and direct research experience. Because students seldom have experience either with robotic pets or PWD, they read selected articles and received training/practice in semi-structured interviewing techniques. Students next conducted interviews with caregivers of PWD who have interacted with the pets. All interviews are audio-recorded, transcribed and deposited in the Carolinas Conversations Collection. Content and thematic analysis of transcriptions, student activity logs and bi-weekly reflective discussions will inform next steps in intervention research, testing therapeutic outcomes such as agitation reduction by pet robots for PWD.


2019 ◽  
Vol 28 (3) ◽  
pp. 1356-1362
Author(s):  
Laurence Tan Lean Chin ◽  
Yu Jun Lim ◽  
Wan Ling Choo

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.


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