scholarly journals Primary Data Collection Versus use of Retrospective Claims Data: Methodology Lessons Learned from A Linked Database Study in Chronic Obstructive Pulmonary Disease (COPD)

2017 ◽  
Vol 20 (9) ◽  
pp. A651
Author(s):  
T Wilke ◽  
F Gottschalk ◽  
A Groth ◽  
M Driessen ◽  
S Mueller
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Data Collection ◽  
Pulmonary Disease ◽  
Claims Data ◽  
Lessons Learned ◽  
Primary Data ◽  
Chronic Obstructive ◽  
Obstructive Pulmonary Disease ◽  
Database Study

scholarly journals Recommendations for Developing Support Tools With People Suffering From Chronic Obstructive Pulmonary Disease: Co-Design and Pilot Testing of a Mobile Health Prototype

10.2196/16289 ◽  
2020 ◽  
Vol 7 (2) ◽  
pp. e16289
Author(s):  
Alan Davies ◽  
Julia Mueller ◽  
Jean Hennings ◽  
Ann-Louise Caress ◽  
Caroline Jay
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Health Care Professionals ◽  
Experience Sampling ◽  
Well Being ◽  
Mobile App ◽  
Lessons Learned ◽  
Chronic Obstructive ◽  
Obstructive Pulmonary Disease ◽  
App Development

Background Gaps exist between developers, commissioners, and end users in terms of the perceived desirability of different features and functionalities of mobile apps. Objective The objective of this study was to co-design a prototype mobile app for people with chronic obstructive pulmonary disease (COPD). We present lessons learned and recommendations from working on a large project with various stakeholders to develop a mobile app for patients with COPD. Methods We adopted a user-centered, participatory approach to app development. Following a series of focus groups and interviews to capture requirements, we developed a prototype app designed to enable daily symptom recording (experience sampling). The prototype was tested in a usability study applying the think aloud protocol with people with COPD. It was then released via the Android app store, and experience sampling data and event data were captured to gather further usability data. Results A total of 5 people with COPD participated in the pilot study. Identified themes include familiarity with technology, appropriate levels for feeding back information, and usability issues such as manual dexterity. Moreover, 37 participants used the app over a 4-month period (median age 47 years). The symptoms most correlated to perceived well-being were tiredness (r=0.61; P<.001) and breathlessness (r=0.59; P<.001). Conclusions Design implications for COPD apps include the need for clearly labeled features (rather than relying on colors or symbols that require experience using smartphones), providing weather information, and using the same terminology as health care professionals (rather than simply lay terms). Target users, researchers, and developers should be involved at every stage of app development, using an iterative approach to build a prototype app, which should then be tested in controlled settings as well as in the wild (ie, when deployed and used in real-world settings) over longer periods.

scholarly journals Recommendations for Developing Support Tools With People Suffering From Chronic Obstructive Pulmonary Disease: Co-Design and Pilot Testing of a Mobile Health Prototype (Preprint)

2019 ◽  
Author(s):  
Alan Davies ◽  
Julia Mueller ◽  
Jean Hennings ◽  
Ann-Louise Caress ◽  
Caroline Jay
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Health Care Professionals ◽  
Experience Sampling ◽  
Well Being ◽  
Mobile App ◽  
Lessons Learned ◽  
Chronic Obstructive ◽  
Obstructive Pulmonary Disease ◽  
App Development

BACKGROUND Gaps exist between developers, commissioners, and end users in terms of the perceived desirability of different features and functionalities of mobile apps. OBJECTIVE The objective of this study was to co-design a prototype mobile app for people with chronic obstructive pulmonary disease (COPD). We present lessons learned and recommendations from working on a large project with various stakeholders to develop a mobile app for patients with COPD. METHODS We adopted a user-centered, participatory approach to app development. Following a series of focus groups and interviews to capture requirements, we developed a prototype app designed to enable daily symptom recording (experience sampling). The prototype was tested in a usability study applying the <i>think aloud</i> protocol with people with COPD. It was then released via the Android app store, and experience sampling data and event data were captured to gather further usability data. RESULTS A total of 5 people with COPD participated in the pilot study. Identified themes include familiarity with technology, appropriate levels for feeding back information, and usability issues such as manual dexterity. Moreover, 37 participants used the app over a 4-month period (median age 47 years). The symptoms most correlated to perceived well-being were <i>tiredness</i> (<i>r</i>=0.61; <i>P</i>&lt;.001) and <i>breathlessness</i> (<i>r</i>=0.59; <i>P</i>&lt;.001). CONCLUSIONS Design implications for COPD apps include the need for clearly labeled features (rather than relying on colors or symbols that require experience using smartphones), providing weather information, and using the same terminology as health care professionals (rather than simply lay terms). Target users, researchers, and developers should be involved at every stage of app development, using an iterative approach to build a prototype app, which should then be tested in controlled settings as well as <i>in the wild</i> (ie, when deployed and used in real-world settings) over longer periods.

scholarly journals Prevalence and clinical implications of respiratory viruses in stable chronic obstructive pulmonary disease (COPD) and exacerbations: a systematic review and meta-analysis protocol

BMJ Open ◽  
2020 ◽  
Vol 10 (4) ◽  
pp. e035640 ◽  
Author(s):  
Anastasia M Kefala ◽  
Rebecca Fortescue ◽  
Gioulinta S Alimani ◽  
Prodromos Kanavidis ◽  
Melissa Jane McDonnell ◽  
...  
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Viral Load ◽  
Pulmonary Disease ◽  
Cochrane Collaboration ◽  
Respiratory Viruses ◽  
Primary Data ◽  
Cochrane Library ◽  
Chronic Obstructive ◽  
Obstructive Pulmonary Disease ◽  
Clinical Burden

IntroductionBoth stable chronic obstructive pulmonary disease (COPD) and acute exacerbations represent leading causes of death, disability and healthcare expenditure. They are complex, heterogeneous and their mechanisms are poorly understood. The role of respiratory viruses has been studied extensively but is still not adequately addressed clinically. Through a rigorous evidence update, we aim to define the prevalence and clinical burden of the different respiratory viruses in stable COPD and exacerbations, and to investigate whether viral load of usual respiratory viruses could be used for diagnosis of exacerbations triggered by viruses, which are currently not diagnosed or treated aetiologically.Methods and analysisBased on a prospectively registered protocol, we will systematically review the literature using standard methods recommended by the Cochrane Collaboration and the Grading of Recommendations Assessment, Development and Evaluation working group. We will search Medline/PubMed, Excerpta Medica dataBASE (EMBASE), the Cochrane Library, the WHO’s Clinical Trials Registry and the proceedings of relevant international conferences on 2 March 2020. We will evaluate: (A) the prevalence of respiratory viruses in stable COPD and exacerbations, (B) differences in the viral loads of respiratory viruses in stable COPD vs exacerbations, to explore whether the viral load of prevalent respiratory viruses could be used as a diagnostic biomarker for exacerbations triggered by viruses and (C) the association between the presence of respiratory viruses and clinical outcomes in stable COPD and in exacerbations.Ethics and disseminationEthics approval is not required since no primary data will be collected. Our findings will be presented in national and international scientific conferences and will be published in peer reviewed journals. Respiratory viruses currently represent a lost opportunity to improve the outcomes of both stable COPD and exacerbations. Our work aspires to ‘demystify’ the prevalence and clinical burden of viruses in stable COPD and exacerbations and to promote clinical and translational research.PROSPERO registration numberCRD42019147658.

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