A Qualitative Interview Study to Explore the Patient Experience of Locally Advanced or Metastatic Pancreatic Cancer and Explore the Content of Patient-Reported Outcome Measures

ObjectiveTo quantify the neurologic patient experience with patient-reported outcome measures (PROMs) and identify factors associated with a positive PROMs experience.MethodsThis retrospective study included all patients seen in 6 neurologic clinics who completed patient experience questions at least once between October 2015 and September 2016. Questions assessed overall satisfaction with PROMs, as well as 4 facets of the PROM experience: usefulness of questions, ease of understanding, effect on communication with provider, and effect on control of their own care. Clinic and patient characteristics were summarized across questions and predictors of response were identified using multivariable proportional odds models.ResultsA total of 16,157 patients answered generic and condition-specific PROMs, as well as questions on their experience with completing PROMs. The majority of patients agreed/strongly agreed questions were easy to understand (96%), useful (83%), and improved communication (78%) and control (71%). After adjustment for other factors, being younger, black, or depressed, or having lower household income, were independent predictors of high satisfaction with PROMs. Patients who indicated the system improved communication and control of care were more often male, black, and lower income. Variability in responses was shown by clinic.ConclusionGiven the growing importance of patient satisfaction in health care, the patient experience with PROMs is a critical component of their successful implementation and utilization. Findings from this study support the feasibility of collecting PROMs in neurologic practice and the potential as a tool to optimize patient-centered neurologic care.

Download Full-text

The potential use for patient reported outcome measures in people with pancreatic cancer, with a specific focus on older patients

European Journal of Surgical Oncology ◽

10.1016/j.ejso.2020.05.010 ◽

2020 ◽

Author(s):

Peter De Rosa ◽

Anna Jewell

Keyword(s):

Pancreatic Cancer ◽

Outcome Measures ◽

Older Patients ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Specific Focus ◽

Patient Reported ◽

Potential Use

Download Full-text

Patient-reported outcome measures (PROMs) in pancreatic cancer: a systematic review

HPB ◽

10.1016/j.hpb.2019.09.002 ◽

2020 ◽

Vol 22 (2) ◽

pp. 187-203 ◽

Cited By ~ 1

Author(s):

Ashika D. Maharaj ◽

Stella Samoborec ◽

Sue M. Evans ◽

John Zalcberg ◽

Rachel E. Neale ◽

...

Keyword(s):

Systematic Review ◽

Pancreatic Cancer ◽

Outcome Measures ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Patient Reported

Download Full-text

The Use of Patient Reported Outcome Measures and Experiences in Patients With Anaemia Receiving Intravenous Ferric Carboxymaltose: A Cohort Study

10.21203/rs.3.rs-75415/v1 ◽

2020 ◽

Author(s):

Kerstin Wyssusek ◽

Cienwen Town ◽

Rose Norton ◽

Annie Der Avedissian

Keyword(s):

Patient Satisfaction ◽

Outcome Measures ◽

Patient Experience ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Physiological Data ◽

Ferric Carboxymaltose ◽

Patient Questionnaire ◽

Patient Reported

Abstract Background: Fatigue due to iron deficiency anaemia (IDA) has not been regularly evaluated in clinical studies. The aim of this study is to assess patient reported outcomes amongst individuals diagnosed with IDA before and after receiving intravenous ferric carboxymaltose. Fatigue and satisfaction will be measured using the validated Functional Assessment of Chronic Illness Therapy – Fatigue (FACIT-fatigue) scale and the validated Nordic Patient Experiences Questionnaire (NORPEQ), respectively.Methods: Thirty eligible patients receiving IV ferric carboxymaltose at the Royal Brisbane and Women’s Hospital were enrolled to participate in interviews; two patients were lost to follow up. Mean change in FACIT-fatigue score from the baseline day of IV ferric carboxymaltose treatment to week 4 post treatment was measured. Patient satisfaction with the overall process of treatment was measured on the day of treatments. Approval for Ethics exemption was obtained by the RBWH ethics committee.Results: A one-way ANOVA was conducted to compare the patient questionnaire results at baseline on the day of receiving the IV ferric carboxymaltose and after a four week follow up via telephone interview. There was a significant effect of improvement of FACIT-fatigue scores on follow up at the p<.05 level [F(1,54), = 7.60, p = .008]. Patient satisfaction was assessed by analysing NORPEQ, an 8-item questionnaire. Patients had reported overall higher satisfaction scores at baseline and follow-up, averaging 91% and 94%, respectively and were not significant in treatment at the p<.05 level [F(1,52), = 1.37, p = .246].Conclusions: The use of validated patient reported outcome measures and experiences provides valuable insights into the patients’ perspective. Physiological and biochemical data outcomes are often used as the gold-standard of medical research. However, patient experience and self-perceived physiological improvement are imperative when measuring the success of a medical intervention and the benefits it provides to patients and consumers. Further research is needed to combine the subjective patient experience data with objective physical, biochemical, or physiological data. Combined, they can provide a thorough and comprehensive assessment of an intervention. Furthermore, a comparison of outcomes administering IV iron or oral iron therapy would provide valuable information about efficacy.Trial registration: Not registered

Download Full-text