Quality of life and related factors in adult patients with epilepsy in China

AbstractObjective:To assess the quality of life of adult patients with recurrent tonsillitis after tonsillectomy, and to determine predictive factors for patient satisfaction.Methods:In a prospective cohort study, a Glasgow benefit inventory questionnaire was posted to 70 adult patients six months after tonsillectomy for recurrent tonsillitis. Data were obtained on patient characteristics, risk factors, tonsillitis history, and clinical and operative findings. The patients were also assessed using self-completed diary data collection regarding acute symptoms (i.e. fever, throat pain, cough and rhinitis), tonsillitis episodes and visits to a doctor, either three to six months before tonsillectomy or six months after tonsillectomy. Predictive factors were sought for inclusion in the worst 30th percentile of patients (i.e. Glasgow benefit inventory score under 18), regarding post-operative change in quality of life.Results:Sixty-two patients (40 females, 22 males; age range 15–46 years) returned the questionnaire (response rate 89 per cent). The mean total Glasgow benefit inventory score after tonsillectomy was +26 (standard deviation 14). The mean scores for Glasgow benefit inventory subscales were: general health +25 (standard deviation 18), social functioning +5 (standard deviation 14) and physical functioning +55 (standard deviation 23). The only factors associated with low patient satisfaction were a small number of tonsillitis episodes (diary-based data) and days with fever before tonsillectomy.Conclusions:Adult patients with recurrent tonsillitis seemed to be generally pleased with their tonsillectomy. The more symptoms they had prior to surgery, the greater was their improvement in quality of life. No other patient- or disease-related factors were associated with patient satisfaction.

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Major determinants of quality of life in adult patients with epilepsy

Journal of the Neurological Sciences ◽

10.1016/j.jns.2021.117842 ◽

2021 ◽

Vol 429 ◽

pp. 117842

Author(s):

Mario Tombini ◽

Giovanni Assenza ◽

Quintiliani Livia ◽

Lorenzo Ricci ◽

Jacopo Lanzone ◽

...

Keyword(s):

Quality Of Life ◽

Adult Patients ◽

Patients With Epilepsy

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Psychosocial challenges affecting the quality of life in adults with epilepsy and their carers in Africa: A review of published evidence between 1994 and 2014

African Journal of Primary Health Care & Family Medicine ◽

10.4102/phcfm.v9i1.1275 ◽

2017 ◽

Vol 9 (1) ◽

Cited By ~ 2

Author(s):

Mpoe J. Keikelame ◽

Tamzyn Suliaman ◽

Marleen Hendriksz ◽

Leslie Swartz

Keyword(s):

Quality Of Life ◽

South African ◽

Current Knowledge ◽

Adult Patients ◽

Cochrane Library ◽

Published Evidence ◽

Psychosocial Challenges ◽

Patients With Epilepsy ◽

African Journal

Background: Little attention has been paid to the psychosocial challenges of adult patients with epilepsy and their carers in Africa in published studies conducted between 1994 and 2014 – yet these psychosocial challenges have been reported to have a major impact on the quality of life (QOL) of people living with the illness and those who care for them. Aim: This review aimed to examine the literature on published studies conducted in Africa between 1994 and 2014 that examined psychosocial challenges of adult people with epilepsy and their carers. The aim was to examine the kind of psychosocial challenges from published evidence and to identify gaps in current knowledge. Methods: MEDLINE, PubMed, ERIC, Web of Science, Scopus, Cochrane Library, Africa Wide, PsycINFO, EMBASE, PASCAL, SABINET and Google Scholar databases and hand searches of Epilepsy & Behavior, Epilepsia, South African Medical Journal, African Journal of Disability, African Journal of Primary Health Care and Family Medicine were reviewed. Results: Very few studies in Africa have examined psychosocial challenges affecting the adult patients with epilepsy and their carers. This review reported the existence of evidence of such challenges and the insights into the psychosocial and economic factors that underpin them. There is evidence that where these have been addressed, there were valuable insights on the types of psychosocial, socio-cultural and socio-economic challenges. Collaborative empowering interventions are needed to enable the attainment of good QOL for those affected. Conclusion: Research on psychosocial challenges of adult patients with epilepsy and their carers from different sectors of healthcare to inform the design of appropriate models is needed.

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