scholarly journals The African Palliative Care Association (APCA) Atlas of Palliative Care Development in Africa: a comparative analysis

2018 ◽  
Vol 6 ◽  
pp. S21 ◽  
Author(s):  
John Y Rhee ◽  
Eduardo Garralda ◽  
Eve Namisango ◽  
Emmanuel Luyirika ◽  
Liliana de Lima ◽  
...  
2007 ◽  
Vol 33 (5) ◽  
pp. 573-577 ◽  
Author(s):  
Stuart Brown ◽  
Fraser Black ◽  
Pradeep Vaidya ◽  
Sudip Shrestha ◽  
Doug Ennals ◽  
...  

Author(s):  
Associate Professor and Director Megan F. Liu ◽  
Mu-Hsing Ho ◽  
Senior Lecturer Jed Montayre ◽  
Director-General Ying-Wei Wang ◽  
Head and Professor Chia-Chin Lin

2015 ◽  
Vol 23 (3) ◽  
pp. 560-567 ◽  
Author(s):  
Maira Deguer Misko ◽  
Maiara Rodrigues dos Santos ◽  
Carolliny Rossi de Faria Ichikawa ◽  
Regina Aparecida Garcia de Lima ◽  
Regina Szylit Bousso

OBJECTIVES: to understand the family's experience of the child and/or teenager in palliative care and building a representative theoretical model of the process experienced by the family.METHODOLOGY: for this purpose the Symbolic Interactionism and the Theory Based on Data were used. Fifteen families with kids and/or teenagers in palliative care were interviewed, and data were collected through semi-structured interviews.RESULTS: after the comparative analysis of the data, a substantive theory was formed "fluctuating between hope and hopelessness in a world changed by losses", composed by: "having a life shattered ", "managing the new condition", "recognizing the palliative care" and "relearning how to live". Hope, perseverance and spiritual beliefs are determining factors for the family to continue fighting for the life of their child in a context of uncertainty, anguish and suffering, due to the medical condition of the child. Along the way, the family redefines values and integrates palliative care in their lives.CONCLUSION: staying with the child at home is what was set and kept hope of dreaming about the recovery and support of the child's life, but above all, what takes it away even though temporarily is the possibility of their child's death when staying within the context of the family.


2018 ◽  
Vol 55 (2) ◽  
pp. S41-S45
Author(s):  
Aibek Mukambetov ◽  
Taalaigul Sabyrbekova ◽  
Lola Asanalieva ◽  
Ilim Sadykov ◽  
Stephen R. Connor

Author(s):  
Gema Serrano-Gemes ◽  
Isabel Gil ◽  
Adriana Coelho ◽  
Rafael Serrano-del-Rosal

The conspiracy of silence is extremely important due to both its high incidence and its consequences. This process usually occurs in situations of palliative care, or death; however, this concept is also mentioned in the literature linked to other contexts. Therefore, our objective was to study whether the conspiracy of silence may be extrapolated to the context of decision-making on the location of care in old age. To this end, we first analyzed the in-depth semi structured qualitative interviews conducted with older people, caregivers, and professionals, about decision-making on the location of care in old age. Subsequently, a comparative analysis was performed between the basic elements of the conspiracy of silence and this decision-making. Our findings revealed an avoidance process developed by all three groups. Furthermore, this decision-making presents similarities with the conspiracy of silence in the process of avoidance coping and denial that is developed. However, there are significant differences, as information is not withheld from the older person, who has an active attitude in the process of avoidance. Decision-making on the location of care in old age does not exactly match the conspiracy of silence process, but it does seem to correspond to a pact of silence.


2019 ◽  
Vol 4 ◽  
pp. 77
Author(s):  
Nicole Baur ◽  
Carlos Centeno ◽  
Eduardo Garralda ◽  
Stephen Connor ◽  
David Clark

Background: Despite growing interest from policy makers, researchers and activists in the global development of palliative care, there is still little science to underpin it. This study presents the methods deployed in the creation of a ‘world map’ of palliative care development. Building on two previous iterations, with improved rigour and taking into account reviewers’ feedback, the aim of this recalibrated version of the study is to determine the level of palliative care development in 198 United Nations recognised countries in 2017, whilst ensuring comparability with previous versions. We present methods of data collection and analysis. Methods and analysis: Primary data on the level of palliative care development in 2017 was collected from in-country experts through an online questionnaire and, where required, supplemented by published documentary sources and grey literature. Data relating to the total population of each country as well as per capita opioid consumption were derived from independent sources. Data analysis was conducted according to a new scoring system and algorithm developed by the research team.   Ethics and dissemination: The study was approved by the University of Glasgow College of Social Sciences Research Ethics Committee. Findings of the study will be disseminated in peer-reviewed journals, as a contribution to the second edition of the Global Atlas of Palliative Care at the End-of-Life, and via social media, including the Glasgow End of Life Studies Group blog and the project website. Limitations of the study: There are potential biases associated with self-reporting by key in-country experts. In some countries, the identified key expert failed to complete the questionnaire in whole or part and data limitations were potentially compounded by language restrictions, as questionnaires were available only in three European languages. The study relied in part on data from independent sources, the accuracy of these data could not be verified.


2007 ◽  
Vol 21 (6) ◽  
pp. 463-471 ◽  
Author(s):  
Carlos Centeno ◽  
David Clark ◽  
Thomas Lynch ◽  
Javier Racafort ◽  
David Praill ◽  
...  

2018 ◽  
Vol 55 (5) ◽  
pp. 1313-1320.e2 ◽  
Author(s):  
John Y. Rhee ◽  
Eduardo Garralda ◽  
Eve Namisango ◽  
Emmanuel Luyirika ◽  
Liliana de Lima ◽  
...  

2014 ◽  
Vol 17 (4) ◽  
pp. 385-392 ◽  
Author(s):  
Sara Ela ◽  
Jose Espinosa ◽  
Marisa Martínez-Muñoz ◽  
Cristina Lasmarías ◽  
Elba Beas ◽  
...  

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