Protecting privacy and confidentiality in online health communities

Ситуация пандемии COVID-19 в очередной раз напомнила о необходимости использования онлайн-сообществ здоровья, особенно в тех районах, где не хватает мест в местных больницах или существуют проблемы с получением качественной медицинской помощи. Это, например, сельские районы, где медицина ориентирована на лечение экстренно возникающих заболеваний и у врачей существуют сложности с возможностью лечения новой коронавирусной инфекции. Онлайн-сообщества здоровья в таком случае предоставляют возможность узнать необходимую информацию, а также общаться со специалистами, которые знают особенности нового коронавируса и могут дать необходимые советы. В настоящей статье на примере глубинных интервью с пожилыми людьми из сёл Ленинградской обл. и Республики Карелия рассмотрена роль телемедицины для пожилых людей и общения в онлайн-сообществах здоровья в контексте преодоления одиночества и изолированности, которая существует в сельской местности. В статье проанализированы особенности и основные препятствия для использования пожилыми людьми телемедицины и общения в онлайнсообществах здоровья - это проблемы с инфраструктурой и отключением электричества, отсутствие у пожилых людей компьютерной грамотности для общения и взаимодействия в онлайн-сообществах здоровья. Роль последних рассмотрена с точки зрения развития самозаботы пожилых людей в сельской местности в периферийных поселениях из-за отсутствия необходимой медицинской помощи. The situation of the COVID-19 pandemic has once again reminded of the need to use telemedicine and online health communities, especially in areas where there are not enough places in local hospitals or there are problems with obtaining quality medical care, such as rural areas where rural medicine is focused on treatment of emergency diseases and doctors have difficulties with the possibility of treatment, as well as explaining about the new coronavirus infection to patients and how this disease can be treated. In this case, online health communities provide an opportunity to find out the necessary information, as well as communicate with specialists who know the features of the new coronavirus and can give the necessary advice. Using the example of in-depth interviews with older people from villages in the Leningrad Region and the Republic of Karelia, the article examines the role of telemedicine for older people and communication in online health communities in the context of overcoming loneliness and isolation that exist in rural areas. The article analyzes the features of the use of telemedicine and the key barriers to the use of telemedicine and communication of older people in online disease communities. In rural areas the main barriers to telemedicine use are infrastructure problems and power outages, as well as the lack of computer literacy for communication and elder people’s interaction in online health communities. In the article the role of online health communities is considered in the context of the self-care of older people and from the point of view of the development of self-care of older people in rural peripheral settlements due to the lack of necessary medical care.

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EFFECTS OF INTERPERSONAL TRUST AMONG USERS OF ONLINE HEALTH COMMUNITIES ON PATIENT TRUST IN AND SATISFACTION WITH THEIR PHYSICIAN

International Journal of Technology Assessment in Health Care ◽

10.1017/s0266462317004433 ◽

2018 ◽

Vol 34 (1) ◽

pp. 56-62 ◽

Cited By ~ 4

Author(s):

Anne-Françoise Audrain-Pontevia ◽

Loick Menvielle

Keyword(s):

Patient Satisfaction ◽

Structural Equation ◽

Medical Information ◽

Interpersonal Trust ◽

Positive Influence ◽

Equation Modeling ◽

Patient Trust ◽

Online Health Communities ◽

Health Communities ◽

The Impact

Objectives:Online Health Communities (OHCs) are increasingly being used by patients in the Web 2.0 era. Today's patients have instant access to a great deal of medical information and contacts. Despite the considerable development of OHCs, little is known regarding the impact on the patient–physician relationship. This research aims at filling this gap and examines how interpersonal trust on peer-to-peer OHCs influences two key relational variables, namely patient trust in the physician and patient satisfaction with the physician. It also investigates their influences on the patient's attitude toward the physician.Methods:Drawing on both the relational and medical literatures, we propose a research model that brings out the relationships between interpersonal trust in OHCs, and patients’ trust, satisfaction and attitude toward the physician. We then conduct a quantitative survey of 512 OHC users in France, using structural equation modeling to test our hypotheses.Results:Our findings indicate that interpersonal trust in OHCs exerts a positive influence on both patients’ trust in and satisfaction with their physician. It also highlights that these two relational variables have a positive influence on patient attitude toward the physician. Our findings also indicate that patient trust influences patient satisfaction with the physician.Conclusions:This research highlights the importance of OHCs, which can be seen as valuable instruments for enhancing patient–physician relationships. It shows that healthcare managers should seek to enhance interpersonal trust among OHC users, because this trust has a positive influence on patient satisfaction with, trust in and attitude toward the physician.

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