scholarly journals Can We Rely on the Dermatology Life Quality Index as a Measure of the Impact of Psoriasis or Atopic Dermatitis?

2012 ◽  
Vol 132 (1) ◽  
pp. 76-84 ◽  
Author(s):  
James Twiss ◽  
David M. Meads ◽  
Elizabeth P. Preston ◽  
Sigrid R. Crawford ◽  
Stephen P. McKenna
2012 ◽  
Vol 87 (5) ◽  
pp. 717-723 ◽  
Author(s):  
Cláudia Soïdo Falcão do Amaral ◽  
Maria de Fátima Bazhuni Pombo March ◽  
Clemax Couto Sant'Anna

BACKGROUND: Atopic Dermatitis is a disease which has increased during the past years despite our improved understanding of it. OBJECTIVE: To assess the impact of Atopic Dermatitis in the quality of life of children and teenagers and their family. METHOD: A descriptive cross-sectional method with prospective data collection of 50 children and teenagers diagnosed with Atopic Dermatitis ranging in age from 5-16 years. Fifty parents and/or guardians answered the quality of life questionnaires The Children's Dermatology Life Quality Index and Family Dermatitis Impact Questionnaire. The socio-demographic and clinical variables were evaluated by a clinical record chart designed specifically for the research and socioeconomic standardized questionnaire by the Brazilian Association of Research Enterprises, which evaluates assets acquired and the educational level of the head of the household. RESULTS: Thirty-five out of the 50 patients were female (70%), and 28 (56%) of them were from social class C. The Questionnaire Children's Dermatology Life Quality Index showed that 19 (38%) patients ranged from 7 to 12 points (moderate impact of atopic dermatitis) and 17 patients (34%) ranged from 13 to 30 points (high impact of atopic dermatitis). The Family Dermatitis Impact Questionnaire revealed that 15 (30%) families had scores between 7 and 12 points and 22 families (44%) scored between 13 and 30 points. CONCLUSION: The results show that there is a very high impact on the QoL for atopic dermatitis patients and their families. This makes us suggest the importance of including the quality of life study in clinical evaluations.


2020 ◽  
pp. 43-49
Author(s):  
T. V. Koroleva ◽  
I. I. Ivanova ◽  
E. V. Filatova

Social maladjustment of children with atopic dermatitis, an increase in the number of cases of disability in pediatric practice, violation of intra-familial relations, rise in the level of anxiety of parents, in particular, of mothers, are closely associated with the formation of protracted recurrent forms. Educational programs for parents, traditional conservative treatment and hydrotherapy in combination with polychromatic polarized light and low-intensity laser blood irradiation significantly improve the quality of life of patients and their families, according to the corresponding indices.


2015 ◽  
Vol 19 (6) ◽  
pp. 546-554 ◽  
Author(s):  
K. Heelan ◽  
S. L. Hitzig ◽  
S. Knowles ◽  
A. M. Drucker ◽  
N. Mittmann ◽  
...  

Background: Little is known about quality of life and work productivity in autoimmune bullous dermatoses (AIBDs). Objective: To determine the impact of AIBDs on quality of life and work productivity. Methods: An observational cross-sectional study took place between February and May 2013 at an AIBD tertiary referral centre. Ninety-four patients were included. All participants completed the Dermatology Life Quality Index and the Work Productivity and Activity Impairment–Specific Health Problem questionnaires. Results: Responders to treatment had less impairment ( P < .001) than nonresponders. Patients with severe AIBD had significantly more impairment that those with mild ( P < .001) and moderate ( P = .002) AIBD. Greater impairment was associated with higher percentage of work missed. Those with a higher Dermatology Life Quality Index score had greater work impairment and overall activity impairment ( P = .041, P = .024). Nonresponders had increased impairment while working ( P < .001), overall work impairment ( P < .001), and activity impairment ( P < .001). Severely affected patients had worse impairment in all Work Productivity and Activity Impairment Questionnaire domains. Conclusions: AIBD has the potential to be a large burden on ability to work and quality of life. Larger studies are needed to clarify how these domains change over time and whether or not they improve with treatment.


2019 ◽  
Vol 139 (5) ◽  
pp. S42
Author(s):  
J. Silverberg ◽  
J.M. Gelfand ◽  
D.J. Margolis ◽  
M. Boguniewicz ◽  
L. Fonacier ◽  
...  

2013 ◽  
Vol 17 (5) ◽  
pp. 316-320 ◽  
Author(s):  
Slavenka Janković ◽  
Jelica Vukićević ◽  
Sanja Djordjević ◽  
Janko Janković ◽  
Jelena Marinković ◽  
...  

Background: The Children's Dermatology Life Quality Index (CDLQI) evaluates the impact of skin diseases on the patient's quality of life. Objective: The purpose of the study was to translate and to validate the CDLQI into Serbian. Methods: The CDLQI was translated into Serbian following international recommendations for translation and cultural adaptation. The validation study was carried out on a large cohort of secondary schoolchildren who self-reported acne. Results: Translating the CDLQI consisted of forward translation, reconciliation, back translation, back-translation review, and cognitive debriefing. The good internal consistency of the scale was demonstrated with a Cronbach alpha coefficient of 0.87. A Spearman correlation coefficient of 0.66 between the CDLQI and the Cardiff Acne Disability Index (CADI) was deemed satisfactory to demonstrate concurrent validity. Conclusion: The translation, cross-cultural adaptation, and psychometric qualities of the CDLQI were satisfactory, enabling its application in clinical practice and future studies.


2020 ◽  
Author(s):  
Anna Poghosyan ◽  
Rafik G. Shahparonyan ◽  
Armen M. Minasyan ◽  
Aren Yu. Bablumyan ◽  
Irina E. Malkhasyan ◽  
...  

Abstract Background: Tracheostomy is one of the more commonly performed procedures in critically ill patients. Postoperative scarring is one of the bothersome sequelae of tracheostomies. Scars distorted the physical appearance, especially when found on the head and neck, which could cause a negative impact on quality of life. The aim of this study was to evaluate and assess the impact on quality of life of post-tracheostomy`s scars, depending on the method of tracheostomy.Methods: The prospective, single-center observational study was conducted. One hundred and fifty-six persons with more than four months of post-tracheostomy surgical scars presence were observed using the Patient and Observer Scar Assessment Scale and Dermatology Life Quality index questionnaire. Persons were divided on two groups depending on method of performed tracheostomy, and duration of cannulated period was considered in both groups. Statistical analyses were performed by using SPSS ver. 16.0 (SPSS Inc., Chicago, IL, USA) and p-values of <0.05 were considered significant.Results: The patients who had a tracheostomic tube cannulation period of less than 15 days had better cosmetic results than those who had tracheostomic tubes for more than 15 days, regardless of the method of tracheostomy 6.64± 0.082 vs. 16.15± 0.096 (p<0.05) in surgical tracheostomy group and 7.26± 0.211 vs.14.17± 0.379 (p<00.05) in percutaneous dilatational group. The Dermatology Life Quality index scores have shown a mean value of 0.6 ±0.013, which means that post-tracheostomy scarring in the presented study, had no effect on the person's quality of life.Conclusions: Aesthetic outcomes of post-tracheostomy`s scars after the open surgical tracheostomy technique, performed using a minimally invasive approach, did not statistically differ from those of the percutaneous dilatational technique. Persons with a long duration of tracheostomic tube ventilation showed worse aesthetic outcomes compared with short-term tracheostomic cannulation, not dependent on the tracheostomy performing technique.The Dermatology Life Quality index have shown that post-tracheostomy`s scarring in the presented study had no effect on the person's quality of life.Trial registration: ISRCTN24668317 (IRB no.YSMU №7/18-19). Date of registration 23/04/2019


2019 ◽  
Vol 139 (10) ◽  
pp. 2090-2097.e3 ◽  
Author(s):  
Jonathan I. Silverberg ◽  
Joel M. Gelfand ◽  
David J. Margolis ◽  
Mark Boguniewicz ◽  
Luz Fonacier ◽  
...  

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