scholarly journals The OpenDeID corpus for patient de-identification

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Jitendra Jonnagaddala ◽  
Aipeng Chen ◽  
Sean Batongbacal ◽  
Chandini Nekkantti
Keyword(s):  
Electronic Health Records ◽  
Health Information ◽  
Sensitive Information ◽  
Protected Health Information ◽  
Patient Privacy ◽  
Health Records ◽  
Automatic Methods ◽  
Electronic Health ◽  
Pathology Reports ◽  
Privacy And Confidentiality

AbstractFor research purposes, protected health information is often redacted from unstructured electronic health records to preserve patient privacy and confidentiality. The OpenDeID corpus is designed to assist development of automatic methods to redact sensitive information from unstructured electronic health records. We retrieved 4548 unstructured surgical pathology reports from four urban Australian hospitals. The corpus was developed by two annotators under three different experimental settings. The quality of the annotations was evaluated for each setting. Specifically, we employed serial annotations, parallel annotations, and pre-annotations. Our results suggest that the pre-annotations approach is not reliable in terms of quality when compared to the serial annotations but can drastically reduce annotation time. The OpenDeID corpus comprises 2,100 pathology reports from 1,833 cancer patients with an average of 737.49 tokens and 7.35 protected health information entities annotated per report. The overall inter annotator agreement and deviation scores are 0.9464 and 0.9726, respectively. Realistic surrogates are also generated to make the corpus suitable for distribution to other researchers.

scholarly journals Patient Privacy in a Wired (and Wireless) World: Approaches to Consent in the Context of Electronic Health Records

2016 ◽  
Author(s):  
Nola M Ries
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
Health Information ◽  
Personal Information ◽  
Patient Privacy ◽  
Legal Requirements ◽  
Health Records ◽  
Policy Initiatives ◽  
The United Kingdom ◽  
Electronic Health

The author reviews recent changes in legislation in Canada and abroad in the area of patient privacy. consent and electronic health records (EHRs). In her overview of Canadian legislation, she examines the existing patchwork of legal requirements, as well as ethical obligations governing health information and policy initiatives aimed at harmonizing approaches across Canada. Internationally, the United Kingdom and Australia are reviewed on how those jurisdictions are addressing the issue of protecting patient privacy while developing operable EHR schemes. The author concludes that as EHR schemes develop, stringency of privacy and consent protections will likely wane in favour of establishing workable systems and. as a consequence, appropriate security mechanisms should be implemented to safeguard personal information.

Safe Use of Electronic Health Records and Health Information Technology Systems

2013 ◽  
Vol 9 (4) ◽  
pp. 177-189 ◽  
Author(s):  
Charles R. Denham ◽  
David C. Classen ◽  
Stephen J. Swenson ◽  
Michael J. Henderson ◽  
Thomas Zeltner ◽  
...  
Keyword(s):  
Information Technology ◽  
Electronic Health Records ◽  
Health Information Technology ◽  
Health Information ◽  
Health Records ◽  
Electronic Health ◽  
Technology Systems

scholarly journals Patients’ moral attitudes toward electronic health records: Survey study with vignettes and statements

2021 ◽  
Vol 27 (1) ◽  
pp. 146045822098003
Author(s):  
Tania Moerenhout ◽  
Ignaas Devisch ◽  
Laetitia Cooreman ◽  
Jodie Bernaerdt ◽  
An De Sutter ◽  
...  
Keyword(s):  
Electronic Health Records ◽  
De Novo ◽  
Information Access ◽  
Survey Study ◽  
Sensitive Information ◽  
Patient Portal ◽  
Care Providers ◽  
Health Records ◽  
Electronic Health ◽  
Moral Attitudes

Patient access to electronic health records gives rise to ethical questions related to the patient-doctor-computer relationship. Our study aims to examine patients’ moral attitudes toward a shared EHR, with a focus on autonomy, information access, and responsibility. A de novo self-administered questionnaire containing three vignettes and 15 statements was distributed among patients in four different settings. A total of 1688 valid questionnaires were collected. Patients’ mean age was 51 years, 61% was female, 50% had a higher degree (college or university), and almost 50% suffered from a chronic illness. Respondents were hesitant to hide sensitive information electronically from their care providers. They also strongly believed hiding information could negatively affect the quality of care provided. Participants preferred to be informed about negative test results in a face-to-face conversation, or would have every patient decide individually how they want to receive results. Patients generally had little experience using patient portal systems and expressed a need for more information on EHRs in this survey. They tended to be hesitant to take up control over their medical data in the EHR and deemed patients share a responsibility for the accuracy of information in their record.

Electronic Health Records

2010 ◽  
pp. 287-299
Author(s):  
Eike-Henner W. Kluge
Keyword(s):  
Electronic Health Records ◽  
Professional Education ◽  
Legal Status ◽  
Healthcare Decision ◽  
Technical Standards ◽  
Health Records ◽  
Healthcare Decision Making ◽  
Electronic Health ◽  
Privacy And Confidentiality ◽  
The Relationship

The development of electronic health records marked a fundamental change in the ethical and legal status of health records and in the relationship between the subjects of the records, the records themselves and health information and healthcare professionals—changes that are not fully captured by traditional privacy and confidentiality considerations. The chapter begins with a sketch of the nature of this evolution and places it into the epistemic framework of healthcare decision-making. It then outlines why EHRs are special, what the implications of this special status are both ethically and juridically, and what this means for professionals and institutions. An attempt is made to link these considerations to the development of secure e-health, which requires not only the interoperability of technical standards but also the harmonization of professional education, institutional protocols and of laws and regulations.

Two Important Topics for 2012: Electronic Health Records and mHealth

2012 ◽  
Vol 47 (1) ◽  
pp. 62-63 ◽  
Author(s):  
I. Fox Brent ◽  
G. Felkey Bill
Keyword(s):  
Information Technology ◽  
Electronic Health Records ◽  
Health Information Technology ◽  
Health Information ◽  
Health It ◽  
Time And Space ◽  
Health Records ◽  
Electronic Health

As the new year begins, we like to reflect on where health information technology (IT) has been and where it is going. We are not fond of rehashing the minutia regarding every event that occurred in the health IT domain, so we will not spend our time and space presenting an exhaustive review. We will, however, touch on the continuing efforts surrounding electronic health records (EHRs). We will also focus forward in discussing an emerging area that we are closely following.

Abstract 2573: Cancer diagnoses and patient use of electronic health records: results from the health information national trends survey

2016 ◽  
Author(s):  
Alexandra J. Greenberg ◽  
Angela Falisi ◽  
Lila J. Finney Rutten ◽  
Wen-Ying Sylvia Chou ◽  
Richard P. Moser ◽  
...  
Keyword(s):  
Electronic Health Records ◽  
Health Information ◽  
Health Records ◽  
Electronic Health ◽  
National Trends ◽  
Patient Use
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