scholarly journals Patient Privacy in a Wired (and Wireless) World: Approaches to Consent in the Context of Electronic Health Records

2016 ◽  
Author(s):  
Nola M Ries
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
Health Information ◽  
Personal Information ◽  
Patient Privacy ◽  
Legal Requirements ◽  
Health Records ◽  
Policy Initiatives ◽  
The United Kingdom ◽  
Electronic Health

The author reviews recent changes in legislation in Canada and abroad in the area of patient privacy. consent and electronic health records (EHRs). In her overview of Canadian legislation, she examines the existing patchwork of legal requirements, as well as ethical obligations governing health information and policy initiatives aimed at harmonizing approaches across Canada. Internationally, the United Kingdom and Australia are reviewed on how those jurisdictions are addressing the issue of protecting patient privacy while developing operable EHR schemes. The author concludes that as EHR schemes develop, stringency of privacy and consent protections will likely wane in favour of establishing workable systems and. as a consequence, appropriate security mechanisms should be implemented to safeguard personal information.

scholarly journals The OpenDeID corpus for patient de-identification

2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Jitendra Jonnagaddala ◽  
Aipeng Chen ◽  
Sean Batongbacal ◽  
Chandini Nekkantti
Keyword(s):  
Electronic Health Records ◽  
Health Information ◽  
Sensitive Information ◽  
Protected Health Information ◽  
Patient Privacy ◽  
Health Records ◽  
Automatic Methods ◽  
Electronic Health ◽  
Pathology Reports ◽  
Privacy And Confidentiality

AbstractFor research purposes, protected health information is often redacted from unstructured electronic health records to preserve patient privacy and confidentiality. The OpenDeID corpus is designed to assist development of automatic methods to redact sensitive information from unstructured electronic health records. We retrieved 4548 unstructured surgical pathology reports from four urban Australian hospitals. The corpus was developed by two annotators under three different experimental settings. The quality of the annotations was evaluated for each setting. Specifically, we employed serial annotations, parallel annotations, and pre-annotations. Our results suggest that the pre-annotations approach is not reliable in terms of quality when compared to the serial annotations but can drastically reduce annotation time. The OpenDeID corpus comprises 2,100 pathology reports from 1,833 cancer patients with an average of 737.49 tokens and 7.35 protected health information entities annotated per report. The overall inter annotator agreement and deviation scores are 0.9464 and 0.9726, respectively. Realistic surrogates are also generated to make the corpus suitable for distribution to other researchers.

scholarly journals Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey

2013 ◽  
Vol 15 (8) ◽  
pp. e160 ◽  
Author(s):  
Serena A Luchenski ◽  
Julie E Reed ◽  
Cicely Marston ◽  
Chrysanthi Papoutsi ◽  
Azeem Majeed ◽  
...  
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Health Records ◽  
The United Kingdom ◽  
Electronic Health ◽  
Public Views

scholarly journals Statins and Risk of Lower Limb Revision Surgery: The Influence of Differences in Study Design Using Electronic Health Records From the United Kingdom and Denmark

2016 ◽  
Vol 184 (1) ◽  
pp. 58-66 ◽  
Author(s):  
Arief Lalmohamed ◽  
Tjeerd P. van Staa ◽  
Peter Vestergaard ◽  
Hubertus G. M. Leufkens ◽  
Anthonius de Boer ◽  
...  
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
Study Design ◽  
Revision Surgery ◽  
Lower Limb ◽  
Health Records ◽  
The United Kingdom ◽  
Electronic Health

Legal Issues in Health Information and Electronic Health Records

2011 ◽  
pp. 1948-1961 ◽  
Author(s):  
Nola M. Ries
Keyword(s):  
Electronic Health Records ◽  
Patient Information ◽  
Personal Information ◽  
Legal Issues ◽  
Presumed Consent ◽  
Health Records ◽  
The United Kingdom ◽  
Electronic Health ◽  
The Right ◽  
The Cost

This chapter discusses key legal issues raised by the contemporary trend to managing and sharing patient information via electronic health records (EHR). Concepts of privacy, confidentiality, consent, and security are defined and considered in the context of EHR initiatives in Canada, the United Kingdom, and Australia. This chapter explores whether patients have the right to withhold consent to the collection and sharing of their personal information via EHRs. It discusses opt-in and opt-out models for participation in EHRs and concludes that presumed consent for EHR participation will ensure more rapid and complete implementation, but at the cost of some personal choice for patients. The reduction in patient control over personal information ought to be augmented with strong security protections to minimize risks of unauthorized access to EHRs and fulfill legal and ethical obligations to safeguard patient information.

scholarly journals Five key strategic priorities of integrating patient generated health data into United Kingdom electronic health records

2018 ◽  
Vol 25 (4) ◽  
pp. 254-259 ◽  
Author(s):  
Kathrin M. Cresswell ◽  
Brian McKinstry ◽  
Maria Wolters ◽  
Anoop Shah ◽  
Aziz Sheikh
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
The United States ◽  
Health Data ◽  
Strategic Decisions ◽  
Related Factors ◽  
Health Records ◽  
The United Kingdom ◽  
Policy Frameworks ◽  
Electronic Health

The integration of patient/person generated health data into clinical applications is a widespread aspiration internationally. However, there is still a range of challenges that inhibit progress in this area. These include technology-related factors (such as interoperability), use-related factors (such as data overload) and characteristics of the strategic environment (such as existing standards). Building on important policy deliberations from the United States that aim to navigate these challenges, we here apply emerging policy frameworks to the United Kingdom and outline five key priority areas that are intended to help policymakers make important strategic decisions in attempting to integrate patient/person generated data into electronic health records.

Legal Issues in Health Information and Electronic Health Records

2011 ◽  
pp. 260-273
Author(s):  
Nola M. Ries
Keyword(s):  
Electronic Health Records ◽  
Patient Information ◽  
Personal Information ◽  
Legal Issues ◽  
Presumed Consent ◽  
Health Records ◽  
The United Kingdom ◽  
Electronic Health ◽  
The Right ◽  
The Cost

This chapter discusses key legal issues raised by the contemporary trend to managing and sharing patient information via electronic health records (EHR). Concepts of privacy, confidentiality, consent, and security are defined and considered in the context of EHR initiatives in Canada, the United Kingdom, and Australia. This chapter explores whether patients have the right to withhold consent to the collection and sharing of their personal information via EHRs. It discusses opt-in and opt-out models for participation in EHRs and concludes that presumed consent for EHR participation will ensure more rapid and complete implementation, but at the cost of some personal choice for patients. The reduction in patient control over personal information ought to be augmented with strong security protections to minimize risks of unauthorized access to EHRs and fulfill legal and ethical obligations to safeguard patient information.

scholarly journals Challenges of Conducting Economic Evaluations Using Linked Electronic Health Records - CPRD and HES in the United Kingdom

2013 ◽  
Vol 16 (7) ◽  
pp. A580 ◽  
Author(s):  
M. Asaria ◽  
S. Walker ◽  
M.J. Sculpher ◽  
S. Palmer ◽  
A. Manca ◽  
...  
Keyword(s):  
United Kingdom ◽  
Electronic Health Records ◽  
Economic Evaluations ◽  
Health Records ◽  
The United Kingdom ◽  
Electronic Health
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