scholarly journals Involving local people in commissioning health care: a role for consumer health information services

1992 ◽  
Vol 9 (4) ◽  
pp. 163-166
Author(s):  
Robert Gann
Author(s):  
Susan Murray

In response to a growing demand from the public for health information resources, North American public libraries have provided varying levels of consumer health information (CHI) services since the 1970s. Due to the availability of funding in the US, many American public libraries have provided CHI services, although the majority of these have been as partnerships with health sciences libraries or via the “Go Local” programs. In Canada, where no specific funding has been available for CHI services, few public libraries have set up CHI services; health information has generally been provided by augmenting health collections or “virtually,” i.e., by providing links to recommended electronic resources via the library’s Web site.


Author(s):  
Mardi Amirault ◽  
Shelley Cobbett ◽  
Andrea Doherty ◽  
Jackie Hartigan-Rogers ◽  
Adele LeBlanc ◽  
...  

The Nova Scotia Health Network (NSHN) is a province-wide, Web-based consumer health information service provided through the cooperative efforts of various organizations, including public libraries, health sciences libraries, the Nova Scotia Provincial Library, and Dalhousie University. The primary intent of the NSHN was to build on existing community resources to provide a quality source of local and general health information. Objective – The purpose was to evaluate the NSHN from the perspective of its users in relation to the ease of use of the site and the usability of the information and content. Methods – A descriptive design was chosen to address the study objectives. Results – Study participants were those users of the NSHN site who agreed to complete and submit an online survey between June 2002 and June 2003. The majority of study respondents were white, middle-aged, English-speaking females, who resided in rural Nova Scotia. They were mostly able to find the information they wanted with little effort and in a reasonable time frame. One in four participants indicated that the information had been used to help them change their lifestyle, whereas one in three reported that they had shared the information with their health care provider. The content found on the site was very highly rated, with more than 90% reporting that the information was easy to understand, useful, and of high quality. Conclusion – The data obtained in this study was positive and encouraging. Sixty-six percent rated the site as a 4 or 5 (with 5 being the best rating) when compared with other health information sites they had visited. Individuals who visited the NSHN site in the past used the acquired information to change health care practices and (or) seek further treatment.


2005 ◽  
Vol 11 (1_suppl) ◽  
pp. 41-43 ◽  
Author(s):  
J A Powell ◽  
P Lowe ◽  
F E Griffiths ◽  
M Thorogood

A critical review of the published literature investigating the Internet and consumer health information was undertaken in order to inform further research and policy. A qualitative, narrative method was used, consisting of a three-stage process of identification and collation, thematic coding, and critical analysis. This analysis identified five main themes in the research in this area: (1) the quality of online health information for consumers; (2) consumer use of the Internet for health information; (3) the effect of e-health on the practitioner-patient relationship; (4) virtual communities and online social support and (5) the electronic delivery of information-based interventions. Analysis of these themes revealed more about the concerns of health professionals than about the effect of the Internet on users. Much of the existing work has concentrated on quantifying characteristics of the Internet: for example, measuring the quality of online information, or describing the numbers of users in different health-care settings. There is a lack of qualitative research that explores how citizens are actually using the Internet for health care.


2008 ◽  
Vol 12 (3) ◽  
pp. 187-199 ◽  
Author(s):  
Susan Mayer ◽  
Kay Hogan Smith ◽  
Gabriel Rios

2018 ◽  
Author(s):  
Apoorva Milind Pradhan ◽  
Leah Park ◽  
Fadia T Shaya ◽  
Joseph Finkelstein

BACKGROUND Addiction is one of the most rapidly growing epidemics that currently plagues nations around the world. In the United States, it has cost the government more than US $700 billion a year in terms of health care and other associated costs and is also associated with serious social, physical, and mental consequences. Increasing efforts have been made to tackle this issue at different levels, from primary prevention to rehabilitation across the globe. With the use of digital technology rapidly increasing, an effort to leverage the consumer health information technologies (CHITs) to combat the rising substance abuse epidemic has been underway. CHITs are identified as patient-focused technological platforms aimed to improve patient engagement in health care and aid them in navigating the complex health care system. OBJECTIVE This review aimed to provide a holistic and overarching view of the breadth of research on primary prevention of substance abuse using CHIT conducted over nearly past five decades. It also aimed to map out the changing landscape of CHIT over this period. METHODS We conducted a scoping review using the Arksey and O’Malley’s modified methodological framework. We searched 4 electronic databases (PubMed, Cochrane, Scopus, and EMBASE). Papers were included if the studies addressed the use of CHIT for primary prevention of substance abuse and were published in English between 1809 and 2018. Studies that did not focus solely on primary prevention or assessed additional comorbid conditions were eliminated. RESULTS Forty-two papers that met our inclusion criteria were included in the review. These studies were published between 1970 and 2018 and were not restricted by geography, age, race, or sex. The review mapped studies using the most commonly used CHIT platforms for substance abuse prevention from mass media in the 1970s to mobile and social media in 2018. Moreover, 191 studies that were exclusively focused on alcohol prevention were excluded and will be addressed in a separate paper. The studies included had diverse research designs although the majority were randomized controlled trials (RCT) or review papers. Many of the RCTs used interventions based on different behavioral theories such as family interactions, social cognitive theories, and harm-minimization framework. CONCLUSIONS This review found CHIT platforms to be efficacious and cost-effective in the real-world settings. We also observed a gradual shift in the types and use of CHIT platforms over the past few decades and mapped out their progression. In addition, the review detected a shift in consumer preferences and behaviors from face-to-face interactions to technology-based platforms. However, the studies included in this review only focused on the aspect of primary prevention. Future reviews could assess the effectiveness of platforms for secondary prevention and for prevention of substance abuse among comorbid populations.


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