Quality of life of children with ADHD – prospective, multicenter non-interventional LECO-trial evaluating the impact on QOL, effectiveness and tolerability of OROS®-methylphenidate

Objective: Our aim was to evaluate the Quality of Life (QoL) of treatment naïve children with ADHD. Method: Data from 178 parent–child dyads were analyzed using multiple regression to assess the relationships between QoL, and characteristics of ADHD and comorbid psychopathology. Results: Lower self-reported QoL was associated with female gender, higher age, more symptoms of anxiety and trauma-related disorders in dimensional approach, and with the comorbid diagnoses of trauma-related disorders and oppositional defiant disorder (ODD)/conduct disorder (CD) in categorical approach. Lower parent-reported QoL was related to older age and increasing number of symptoms of mood and anxiety disorders on one hand, and any diagnosis of mood and anxiety disorders and ODD/CD on the other. Conclusion: Our results draw the attention to the importance of taking into account age, gender, and both self- and parent reports when measuring QoL of children with ADHD and both dimensional and categorical approaches should be used.

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Quality of life and impairment in ADHD

10.1093/med/9780198739258.003.0017 ◽

2018 ◽

Author(s):

Melissa Mulraney ◽

David Coghill

Keyword(s):

Quality Of Life ◽

Functional Impairment ◽

Chronic Health Conditions ◽

Health Conditions ◽

Future Research ◽

Chronic Health ◽

Children With Adhd ◽

Adhd Medications ◽

The Impact

The chapter ‘Quality of life and impairment in ADHD’ provides an overview of what is known about quality of life (QoL) and functional impairment in children with ADHD. The chapter begins by discussing definitions of QoL and functional impairment and how these have been measured in children with ADHD. It reviews the literature comparing how QoL in ADHD compares to QoL in other chronic health conditions, and examines factors known to influence QoL and functioning in children with ADHD. It also reviews the evidence for the impact of treatment on QoL and functioning, with specific discussion of the most common ADHD medications (i.e. methylphenidate, amphetamines, and atomoxetine). The chapter concludes with suggestions for future research.

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Does Parent Stress Predict the Quality of Life of Children With a Diagnosis of ADHD? A Comparison of Parent and Child Perspectives

Journal of Attention Disorders ◽

10.1177/1087054716647479 ◽

2016 ◽

Vol 23 (5) ◽

pp. 435-450 ◽

Cited By ~ 4

Author(s):

Helen Galloway ◽

Emily Newman ◽

Nicola Miller ◽

Clare Yuill

Keyword(s):

Quality Of Life ◽

Perceived Stress ◽

Health Condition ◽

Parent Stress ◽

Cross Sectional ◽

Children With Adhd ◽

Unique Predictor ◽

The Impact ◽

Parent Proxy

Objective: There are indicators that parental psychological factors may affect how parents evaluate their child’s quality of life (QoL) when the child has a health condition. This study examined the impact of parents’ perceived stress on parent and child ratings of the QoL of children with ADHD. Method: A cross-sectional sample of 45 matched parent–child dyads completed parallel versions of the KIDSCREEN-27. Children were 8 to 14 years with clinician diagnosed ADHD. Results: Parents who rated their child’s QoL lower than their child had higher perceived stress scores. Parent stress was a unique predictor of child QoL from parent proxy-rated but not child-rated QoL scores. Conclusion: Parents’ perceived stress may play an important role in their assessments of their child’s QoL, suggesting both parent and child perspectives of QoL should be utilized wherever possible. Interventions that target parent stress may contribute to improvements in the child’s QoL.

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Assessment of the Effects of Pediatric Attention Deficit Hyperactivity Disorder on Family Stress and Well-Being: Development of the IMPACT 1.0 Scale

Global Pediatric Health ◽

10.1177/2333794x19835645 ◽

2019 ◽

Vol 6 ◽

pp. 2333794X1983564

Author(s):

Nerissa S. Bauer ◽

Susan Ofner ◽

Courtney Moore ◽

Dustin Lynch ◽

Sarah E. Wiehe ◽

...

Keyword(s):

Quality Of Life ◽

Attention Deficit Hyperactivity Disorder ◽

Factor Analysis ◽

Exploratory Factor Analysis ◽

Attention Deficit ◽

Children With Adhd ◽

Hyperactivity Disorder ◽

Test Retest Reliability ◽

The Impact

Medications may lessen core symptoms of attention deficit hyperactivity disorder (ADHD), yet families continue to report stress and have a low quality of life. Primary care providers manage almost half of all children with ADHD but do not have a brief measure to assess ADHD impacts on family in the context of everyday family life. The IMPACT (Impact Measure of Parenting-Related ADHD Challenges and Treatment) 1.0 Scale was codeveloped with input from parent advisors and administered to 79 parents of children with ADHD. Exploratory factor analysis, correlations with validated instruments, and test-retest reliability were examined. Exploratory factor analysis resulted in 4 subscales (Misbehavior, Siblings, Time, School), which demonstrated moderate to high test-retest reliability. Scale domains were related to severity and change in ADHD symptoms. Significant correlations were found between IMPACT scores, adaptive functioning in the home, and ADHD-related quality of life. The IMPACT 1.0 Scale provides a novel, reliable, and valid method to assess family impact of ADHD.

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Self- and Parent-Rated Quality of Life in School Aged Children with ADHD: The Impact of Common Comorbid Psychiatric Disorders and Motor Proficiency

Psychiatry and Clinical Psychopharmacology ◽

10.5455/pcp.20200818114525 ◽

2020 ◽

Vol 30 (4) ◽

pp. 1

Author(s):

Nilay Sahan ◽

Halime Esen ◽

Ayhan Parmaksiz ◽

Songul Uysal

Keyword(s):

Quality Of Life ◽

Psychiatric Disorders ◽

Motor Proficiency ◽

Children With Adhd ◽

Comorbid Psychiatric Disorders ◽

School Aged Children ◽

The Impact

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Self-Compassion and Quality of Life in Adults Who Stutter

American Journal of Speech-Language Pathology ◽

10.1044/2020_ajslp-20-00055 ◽

2020 ◽

Vol 29 (4) ◽

pp. 2097-2108

Author(s):

Robyn L. Croft ◽

Courtney T. Byrd

Keyword(s):

Quality Of Life ◽

Social Connectedness ◽

The Self ◽

Future Research ◽

Self Compassion ◽

Adults Who Stutter ◽

And Gender ◽

Relationship Of ◽

The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

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