Informal family caregiver experiences with publicly funded home care in Ontario

Author(s):  
Alla Yakerson
2016 ◽  
Vol 28 (2) ◽  
pp. 214-220 ◽  
Author(s):  
Catherine E. Tong ◽  
Joanie Sims-Gould ◽  
Anne Martin-Matthews

Author(s):  
Justine L. Giosa ◽  
Paul Stolee ◽  
Sherry L. Dupuis ◽  
Steven E. Mock ◽  
Selena M. Santi

RÉSUMÉCette étude a examiné les expériences informelles des aidants familiaux en soutenant les transitions de soins entre l’hôpital et la maison pour les adultes âgés avec des conditions médicales complexes. En utilisant une approche basée sur la théorie ancrée qualitative, une série d’entretiens semi-structurés a été realisée avec la communauté et des gestionnaires de cas et de ressources, ainsi qu’avec des aidants naturels de patients âgés souffrant de fractures de la hanche et des accidents vasculaires cérébraux et ceux qui se remettaient d’une chirurgie pour remplacement de la hanche. Six propriétés qui caractérisent les besoins des aidants naturels de fournir des soins de transition entre l’hôpital et la maison avec succès ont été intégrées dans une théorie qui adressent (1) l’horaire des soins transitoires et (2) le passage émotionnel. Ces six propriétés comprennent : (1) l’évaluation des situations familiales; (2) des informations sur les pratiques; (3) l’éducation et la formation; (4) l’accord entre les aidants officiels et informels; (5) le temps de prendre des dispositions pour la vie personnelle, et (6) la préparation affective et émotionelle. Cette étude soutiendra le développement d’interventions mieux informées et plus pertinentes, qui offrent le soutien le plus approprié pour les patients et leurs familles pendant les soins de transition.


2021 ◽  
Vol 9 (T4) ◽  
pp. 236-239
Author(s):  
Anggi Stiexs ◽  
Nur Chayati

BACKGROUND: Family support during stroke treatment at home is crucial. However, post-stroke patients’ long-term care will be a problem for families, reducing the level of life satisfaction and physical burden for caregivers. Furthermore, families may experience depression. AIM: Analyzing family conditions related to physical, psychological, and spiritual conditions that receive home-based health worker interventions. METHODS: Study implemented systematic review design with Prisma guidelines, initially with the identification of article sources, following by article screening, checking the eligibility of studies then appraised the selected articles. Three databases were used, Ebsco, PubMed, and PROQUEST. Only studies using quasi-experimental, pre-experimental, and RCT designs were included in this study. Furthermore, those articles were published between 2014 until 2019, full type article and conducted anykind of home intervention for stroke patients and/or family member. Keywords that were employed “Stroke, Apoplexy, Cerebrovascular Accident, Vascular Accident, Home Care Services, home care, Home Health Care, Domiciliary Care, Physical, Physics, Psychological Factors, Psychological Side Effects, Psychosocial Factors, Spirituality.” Totally, 19,528 articles were obtained. Finally, only six eligible articles met review requirements. RESULTS: Implementation of home-based care lowered the physical fatigue of the family. In psychological responses showed that home-based care could reduce the incidence of depression and anxiety levels. Another impact was that the family felt helped because patients could more independently do their activities. Furthermore, the family always supported to motivate the patients to do their daily tasks. CONCLUSION: Home-based interventions for stroke patients can reduce depression, anxiety, and fatigue for the family caregiver.


2018 ◽  
pp. 88-125
Author(s):  
Elana D. Buch

In making care into work, agencies justify their existence in the market as managing the predictable tensions that regularly arise in home care. Home care agencies build upon women’s familial experience of care while seeking to transform them into workers whose labor conforms to the ethical and temporal norms of American workplaces. Conflicts regularly arise between people’s moral ideologies about care, the economic pressures of capitalist markets, and the laws that govern labor and elder care in the United States. This chapter traces the transformation of moral values into economic value by focusing on the everyday ethics practiced by home care agency training and management staff as they mediate between national moralities, the needs of their agencies, the needs of clients, and their own ethics. Agencies’ different funding sources affect how they imagine and generate their clients’ independence. Publicly funded care policies view older adults as liberal persons in a democratic state in which rights and services are the result of citizenship and need rather than social position. In privately funded care, older adults’ independence was authorized by their privileged position as consumers whose subjective tastes and preferences determined the kinds and quantity of care they received. Their independence was not the result of fair treatment by an equitable state, but rather determined by their ability to wield economic power.


2014 ◽  
Vol 2014 ◽  
pp. 1-8 ◽  
Author(s):  
Jennifer R. Pharr ◽  
Carolee Dodge Francis ◽  
Christine Terry ◽  
Michele C. Clark

Ethnic minorities are expected to experience a greater demand for family caregiving than non-Latino Whites due to their projected population growth. Although the consensus of researchers on caregiving and culture finds that the caregiving experience differs significantly among cultural/ethnic groups, the question remains as to how cultural values and norms influence the caregiver experiences. We conducted an interpretative, phenomenological qualitative analysis of focus group transcripts from four groups (African American, Asian American, Hispanic American, and European American) for cultural influences on caregiving. Data were collected in Nevada between December 7, 2009, and August 20, 2010. Thirty-five caregivers participated in this study. We found commonalities among all of the cultural/ethnic groups in their experiences of the difficulties of caregiving. However, there were some significant differences in the cultural values and norms that shaped the caregiving experience. We categorized these differences as: (a) cultural embeddedness of caregiving, (b) cultural determinants of caregiving responsibilities or taxonomy of caregiving, and (c) cultural values and norms underlying the decision to provide care. The significance of this study is that it highlights the culturally perceived mandate to provide care in the African, Asian, and Hispanic American cultures.


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