Decision-Making During Early Intervention Home Visits: From Minimal to Meaningful Parent Participation

2020 ◽  
Vol 35 (1) ◽  
pp. 68-90
Author(s):  
Christine L. Hancock ◽  
Gregory A. Cheatham
1995 ◽  
Vol 61 (6) ◽  
pp. 520-535 ◽  
Author(s):  
Eva Björck-Åkesson ◽  
Mats Granlund

This article describes perceptions of professionals and parents of the current and ideal state of family involvement in early intervention in Sweden. Both professionals and parents expressed significant discrepancies between current and ideal practices in four dimensions: parent involvement in decisions about child assessment, parent participation in assessment, parent participation in the team meeting and decision making, and the provision of family goals and services. Professionals showed preferences for a higher degree of family involvement. In identifying barriers, both professionals and parents most frequently mentioned system barriers. Causes for the discrepancies include the need for training and earlier inclusion of parents in the case management process.


2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Elizabeth C. Thomas ◽  
John Suarez ◽  
Alicia Lucksted ◽  
Laura A. Siminoff ◽  
Irene Hurford ◽  
...  

Abstract Background Emerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision support interventions and peer support have both been shown to enhance service engagement but are understudied in this population. The purposes of this article are to describe the development of a novel peer-delivered decision coaching intervention for this population and to report plans for a pilot study designed to gather preliminary data about its feasibility, acceptability, and potential impact. Methods The intervention was developed based on formative qualitative data and in collaboration with a diverse team of researchers, key stakeholders, and expert consultants. The pilot trial will utilize a single-group (N = 20), pre-post, convergent mixed-methods design to explore whether and how the intervention addresses decision-making needs (the primary intervention target). The impact of the intervention on secondary outcomes (e.g., engagement in the program) will also be assessed. Additionally, through observation and feedback from the peer decision coach and study participants, we will evaluate the feasibility of research and intervention procedures, and the acceptability of information and support from the peer decision coach. Discussion The peer-delivered decision coaching intervention holds promise for assisting young people with making informed and values-consistent decisions about their care, and potentially enhancing service engagement within this traditionally difficult-to-engage population. If the intervention demonstrates feasibility and acceptability, and pilot data show its potential for improving treatment decision-making, our work will also lay the foundation for a new evidence base regarding roles for peer specialists on early intervention teams. Trial registration This trial was registered with ClinicalTrials.gov (Identifier: NCT04532034) on 28 August 2020 as Temple University Protocol Record 261047, Facilitating Engagement in Evidence-Based Treatment for Early Psychosis.


1991 ◽  
Vol 22 (2) ◽  
pp. 19-30 ◽  
Author(s):  
Elizabeth R. Crais ◽  
Joanne E. Roberts

This article presents a series of decision trees to help in planning assessment and intervention with handicapped children between 3 months and 5 years of age. The decision trees consist of a series of assessment questions leading to suggestions for intervention. Steps in using the decision trees are described and a case example presented.


2021 ◽  
pp. 175797592098670
Author(s):  
Hadiza Mudi ◽  
Umar Dutse ◽  
Loubna Belaid ◽  
Umaira Ansari ◽  
Khalid Omer ◽  
...  

Background: Maternal and newborn child health are priority concerns in Bauchi State, northern Nigeria. Increased male involvement in reproductive health is recommended by the World Health Organization. A trial of a program of universal home visits to pregnant women and their spouses, with an intention to increase male involvement in pregnancy and childbirth, showed improvements in actionable risk factors and in maternal morbidity. We used a narrative technique to explore experiences of the visits and their effect on gender roles and dynamics within the households. Methods: Trained fieldworkers collected narratives of change from 23 visited women and 21 visited men. After translation of the stories into English, we conducted an inductive thematic analysis to examine the impact of the visits on gender norms and dynamics. Results: The analysis indicated that the visits improved men’s support for antenatal care, immunization, and seeking help for danger signs, increased spousal communication, and led to changes in perceptions about gender violence and promoted non-violent gender relationships. However, although some stories described increased spousal communication, they did not mention that this translated into shared decision-making or increased autonomy for women. Many of the men’s stories described a continuing paternalistic, male-dominant position in decision-making. Conclusions: Few studies have examined the gender-transformative potential of interventions to promote male involvement in reproductive health; our analysis provides some initial insights into this.


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