“You are Not Alone”: Linking Peer Support to Information and Resources for Mental Health Concerns in Advocacy Groups’ Social Media Messaging

2020 ◽  
pp. 1-10 ◽  
Author(s):  
Sarah Smith-Frigerio
2020 ◽  
Vol 30 (14) ◽  
pp. 2205-2216
Author(s):  
Sarah Smith-Frigerio

Mental health concerns are a public health crisis. Stigma is the primary reason why individuals do not disclose or seek treatment. Stigma is constructed communicatively, and destigmatization efforts—such as advocacy messaging—are also communicative. I employ a case study approach to describe how two mental health groups use advocacy strategies in their social media messaging to help audience members mitigate mental health concerns and challenge stigma. I found content creators use a variety of advocacy strategies in their messaging, including awareness-raising, support of policy initiatives, and the promotion of diversity and inclusivity. Although not the primary goal of these groups’ messaging, advocacy strategies were important to content creators and audience members, and 80% of audience members interviewed engaged in advocacy work for the organizations. I provide a nuanced view of mental health communication advocacy strategies, make recommendations for health communication professionals, and demonstrate the need for future studies.


2020 ◽  
Author(s):  
Koustuv Saha ◽  
John Torous ◽  
Eric D. Caine ◽  
Munmun De Choudhury

AbstractBackgroundThe novel coronavirus disease 2019 (COVID-19) pandemic has caused several disruptions in personal and collective lives worldwide. The uncertainties surrounding the pandemic have also led to multi-faceted mental health concerns, which can be exacerbated with precautionary measures such as social distancing and self-quarantining, as well as societal impacts such as economic downturn and job loss. Despite noting this as a “mental health tsunami,” the psychological effects of the COVID-19 crisis remains unexplored at scale. Consequently, public health stakeholders are currently limited in identifying ways to provide timely and tailored support during these circumstances.ObjectiveOur work aims to provide insights regarding people’s psychosocial concerns during the COVID-19 pandemic by leveraging social media data. We aim to study the temporal and linguistic changes in symptomatic mental health and support expressions in the pandemic context.MethodsWe obtain ∼60M Twitter streaming posts originating from the U.S. from 24 March-24 May 2020, and compare these with ∼40M posts from a comparable period in 2019 to attribute the effect of COVID-19 on people’s social media self-disclosure. Using these datasets, we study people’s self-disclosure on social media in terms of symptomatic mental health concerns and expressions of support. We employ transfer learning classifiers that identify the social media language indicative of mental health outcomes (anxiety, depression, stress, and suicidal ideation) and support (emotional and informational support). We then examine the changes in psychosocial expressions over time and language, comparing the 2020 and 2019 datasets.ResultsWe find that all of the examined psychosocial expressions have significantly increased during the COVID-19 crisis – mental health symptomatic expressions have increased by ∼14%, and support expressions have increased by ∼5%, both thematically related to COVID-19. We also observe a steady decline and eventual plateauing in these expressions during the COVID-19 pandemic, which may have been due to habituation or due to supportive policy measures enacted during this period. Our language analyses highlight that people express concerns that are very specific to and contextually related to the COVID-19 crisis.ConclusionsWe studied the psychosocial effects of the COVID-19 crisis by using social media data from 2020, finding that people’s mental health symptomatic and support expressions significantly increased during the COVID-19 period as compared to similar data from 2019. However, this effect gradually lessened over time, suggesting that people adapted to the circumstances and their “new normal”. Our linguistic analyses revealed that people expressed mental health concerns regarding personal and professional challenges, healthcare and precautionary measures, and pandemic-related awareness. This work shows the potential to provide insights to mental healthcare and stakeholders and policymakers in planning and implementing measures to mitigate mental health risks amidst the health crisis.


2022 ◽  
Author(s):  
Amber Jenkins ◽  
Lauren Kearney ◽  
George Kendall ◽  
Lee Kannis-Dymand

Abstract Background Perinatal mental illness is prevalent and can be associated with poorer health outcomes for mother and fetus if untreated. Mindfulness is a contemporary approach to managing mental health concerns; however, little is known about the effectiveness of Mindfulness-based Interventions during pregnancy, especially within the context of peer support. Methods A systematic review was undertaken. Randomised controlled trials and quasi-experimental studies were included. All articles were critically appraised using the Critical Appraisal Skills Program checklist. Results Of the 2053 records initially identified, 21 studies met inclusion criteria. Studies demonstrated modest improvements in perinatal mental illness, particularly when interventions were adapted to meet the unique needs of women in the prenatal period. Comparison was difficult, due to high heterogeneity and methodological limitations. No studies explored peer support as a therapeutic mechanism and maternal-fetal bonding was not a measured in any studies. Conclusion Mindfulness-based group interventions designed to meet the needs of perinatal women require further research, with larger sample sizes, more rigorous methodology and greater demographic diversity required. Additionally, value could be afforded in exploration of how group support affects any change mechanisms within the participants and include maternal fetal bonding as a measured outcome.


2020 ◽  
Author(s):  
Koustuv Saha ◽  
John Torous ◽  
Eric D Caine ◽  
Munmun De Choudhury

BACKGROUND The COVID-19 pandemic has caused several disruptions in personal and collective lives worldwide. The uncertainties surrounding the pandemic have also led to multifaceted mental health concerns, which can be exacerbated with precautionary measures such as social distancing and self-quarantining, as well as societal impacts such as economic downturn and job loss. Despite noting this as a “mental health tsunami”, the psychological effects of the COVID-19 crisis remain unexplored at scale. Consequently, public health stakeholders are currently limited in identifying ways to provide timely and tailored support during these circumstances. OBJECTIVE Our study aims to provide insights regarding people’s psychosocial concerns during the COVID-19 pandemic by leveraging social media data. We aim to study the temporal and linguistic changes in symptomatic mental health and support expressions in the pandemic context. METHODS We obtained about 60 million Twitter streaming posts originating from the United States from March 24 to May 24, 2020, and compared these with about 40 million posts from a comparable period in 2019 to attribute the effect of COVID-19 on people’s social media self-disclosure. Using these data sets, we studied people’s self-disclosure on social media in terms of symptomatic mental health concerns and expressions of support. We employed transfer learning classifiers that identified the social media language indicative of mental health outcomes (anxiety, depression, stress, and suicidal ideation) and support (emotional and informational support). We then examined the changes in psychosocial expressions over time and language, comparing the 2020 and 2019 data sets. RESULTS We found that all of the examined psychosocial expressions have significantly increased during the COVID-19 crisis—mental health symptomatic expressions have increased by about 14%, and support expressions have increased by about 5%, both thematically related to COVID-19. We also observed a steady decline and eventual plateauing in these expressions during the COVID-19 pandemic, which may have been due to habituation or due to supportive policy measures enacted during this period. Our language analyses highlighted that people express concerns that are specific to and contextually related to the COVID-19 crisis. CONCLUSIONS We studied the psychosocial effects of the COVID-19 crisis by using social media data from 2020, finding that people’s mental health symptomatic and support expressions significantly increased during the COVID-19 period as compared to similar data from 2019. However, this effect gradually lessened over time, suggesting that people adapted to the circumstances and their “new normal.” Our linguistic analyses revealed that people expressed mental health concerns regarding personal and professional challenges, health care and precautionary measures, and pandemic-related awareness. This study shows the potential to provide insights to mental health care and stakeholders and policy makers in planning and implementing measures to mitigate mental health risks amid the health crisis.


2019 ◽  
Author(s):  
◽  
Sarah Smith-Frigerio

[ACCESS RESTRICTED TO THE UNIVERSITY OF MISSOURI AT AUTHOR'S REQUEST.] Mental health concerns continue to be stigmatized in traditional media, in spite of -- or perhaps contributing to --high prevalence rates of mental health diagnoses globally. This has led to the World Health Organization (WHO) declaring a public health crisis. Given stigmatization in traditional media, mental health communication scholars are investigating how mental health concerns are depicted and discussed in digital and social media spaces, but this area remains underexplored. The WHO has also outlined the importance of grassroots mental health advocacy groups in addressing the public health crisis, and an understanding of such groups' social media content is imperative. Through the theoretical lenses of information and resources, social support, advocacy, and stigma management communication, case studies of two grassroots mental health advocacy groups were conducted. Analysis of 200 social media posts, interviews with 5 content creators, and interviews with 15 users of the groups' social media feeds identified five major themes: providing information and resources through peer support, using stories, encouragement and connection to provide peer support, using peer support to foster advocacy work amongst users, progressing through stigma management communication strategies from accepting to challenging, and the importance of what is left unsaid. The theoretical and practical implications of these themes are discussed in the final chapter.


Author(s):  
Saijun Zhang ◽  
Meirong Liu ◽  
Yeefay Li ◽  
Jae Eun Chung

Research has rarely examined how the COVID-19 pandemic may affect teens’ social media engagement and psychological wellbeing, and even less research has compared the difference between teens with and without mental health concerns. We collected and analyzed weekly data from January to December 2020 from teens in four Reddit communities (subreddits), including teens in r/Teenagers and teens who participated in three mental health subreddits (r/Depression, r/Anxiety, and r/SuicideWatch). The results showed that teens’ weekly subreddit participation, posting/commenting frequency, and emotion expression were related to significant pandemic events. Teen Redditors on r/Teenagers had a higher posting/commenting frequency but lower negative emotion than teen Redditors on the three mental health subreddits. When comparing posts/comments on r/Teenagers, teens who ever visited one of the three mental health subreddits posted/commented twice as frequently as teens who did not, but their emotion expression was similar. The results from the Interrupted Time Series Analysis (ITSA) indicated that both teens with and without mental health concerns reversed the trend in posting frequency and negative emotion from declining to increasing right after the pandemic outbreak, and teens with mental health concerns had a more rapidly increasing trend in posting/commenting. The findings suggest that teens’ social media engagement and emotion expression reflect the pandemic evolution. Teens with mental health concerns are more likely to reveal their emotions on specialized mental health subreddits rather than on the general r/Teenagers subreddit. In addition, the findings indicated that teens with mental health concerns had a strong social interaction desire that various barriers in the real world may inhibit. The findings call for more attention to understand the pandemic’s influence on teens by monitoring and analyzing social media data and offering adequate support to teens regarding their mental health wellbeing.


10.2196/22600 ◽  
2020 ◽  
Vol 22 (11) ◽  
pp. e22600
Author(s):  
Koustuv Saha ◽  
John Torous ◽  
Eric D Caine ◽  
Munmun De Choudhury

Background The COVID-19 pandemic has caused several disruptions in personal and collective lives worldwide. The uncertainties surrounding the pandemic have also led to multifaceted mental health concerns, which can be exacerbated with precautionary measures such as social distancing and self-quarantining, as well as societal impacts such as economic downturn and job loss. Despite noting this as a “mental health tsunami”, the psychological effects of the COVID-19 crisis remain unexplored at scale. Consequently, public health stakeholders are currently limited in identifying ways to provide timely and tailored support during these circumstances. Objective Our study aims to provide insights regarding people’s psychosocial concerns during the COVID-19 pandemic by leveraging social media data. We aim to study the temporal and linguistic changes in symptomatic mental health and support expressions in the pandemic context. Methods We obtained about 60 million Twitter streaming posts originating from the United States from March 24 to May 24, 2020, and compared these with about 40 million posts from a comparable period in 2019 to attribute the effect of COVID-19 on people’s social media self-disclosure. Using these data sets, we studied people’s self-disclosure on social media in terms of symptomatic mental health concerns and expressions of support. We employed transfer learning classifiers that identified the social media language indicative of mental health outcomes (anxiety, depression, stress, and suicidal ideation) and support (emotional and informational support). We then examined the changes in psychosocial expressions over time and language, comparing the 2020 and 2019 data sets. Results We found that all of the examined psychosocial expressions have significantly increased during the COVID-19 crisis—mental health symptomatic expressions have increased by about 14%, and support expressions have increased by about 5%, both thematically related to COVID-19. We also observed a steady decline and eventual plateauing in these expressions during the COVID-19 pandemic, which may have been due to habituation or due to supportive policy measures enacted during this period. Our language analyses highlighted that people express concerns that are specific to and contextually related to the COVID-19 crisis. Conclusions We studied the psychosocial effects of the COVID-19 crisis by using social media data from 2020, finding that people’s mental health symptomatic and support expressions significantly increased during the COVID-19 period as compared to similar data from 2019. However, this effect gradually lessened over time, suggesting that people adapted to the circumstances and their “new normal.” Our linguistic analyses revealed that people expressed mental health concerns regarding personal and professional challenges, health care and precautionary measures, and pandemic-related awareness. This study shows the potential to provide insights to mental health care and stakeholders and policy makers in planning and implementing measures to mitigate mental health risks amid the health crisis.


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