Methodological challenges when doing research that includes ethnic minorities: a scoping review

2016 ◽  
Vol 23 (6) ◽  
pp. 405-415 ◽  
Author(s):  
Anne-Le Morville ◽  
Lena-Karin Erlandsson

2020 ◽  
Vol 6 (4) ◽  
pp. 94
Author(s):  
Pasquale Cacciatore ◽  
Laurenske A. Visser ◽  
Nasuh Buyukkaramikli ◽  
Catharina P. B. van der Ploeg ◽  
M. Elske van den Akker-van Marle

Cost-effectiveness (CEA) and cost–utility analyses (CUA) have become popular types of economic evaluations (EE) used for evidence-based decision-making in healthcare resource allocation. Newborn screening programs (NBS) can have significant clinical benefits for society, and cost-effectiveness analysis may help to select the optimal strategy among different screening programs, including the no-screening option, on different conditions. These economic analyses of NBS, however, are hindered by several methodological challenges. This study explored the methodological quality in recent NBS economic evaluations and analyzed the main challenges and strategies adopted by researchers to deal with them. A scoping review was conducted according to PRISMA methodology to identify CEAs and CUAs of NBS. The methodological quality of the retrieved studies was assessed quantitatively using a specific guideline for the quality assessment of NBS economic evaluations, by calculating a general score for each EE. Challenges in the studies were then explored using thematic analysis as a qualitative synthesis approach. Thirty-five studies met the inclusion criteria. The quantitative analysis showed that the methodological quality of NBS economic evaluations was heterogeneous. Lack of clear description of items related to results, discussion, and discounting were the most frequent flaws. Methodological challenges in performing EEs of neonatal screenings include the adoption of a long time horizon, the use of quality-adjusted life years as health outcome measure, and the assessment of costs beyond the screening interventions. The results of this review can support future economic evaluation research, aiding researchers to develop a methodological guidance to perform EEs aimed at producing solid results to inform decisions for resource allocation in neonatal screening.



2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S197-S197
Author(s):  
Sandra Torres

Abstract Scholarship on ethnicity and old age is at a crossroad now that increased diversity is a given in older populations. The same holds true for the study of inequalities in old age as it relates to ethnicity and race. This presentation relies on a scoping review of scholarship published between 1998 - 2017 (n=336) that brings attention to the ways in which ethnicity/ race – as grounds for stratification and disadvantage - are made sense of in this scholarship. The presentation will describe the topics that the review divulged when it comes to the study of health and social care (i.e. access and usage; attitudes, preferences and experiences; assessment of programs suitability and self-care practices). In doing so, this presentation will argue that if we are to address the inequalities that older ethnic minorities face we need not only a diversity-astute research agenda but also an injustice-aware one.



Author(s):  
Kathleen A Hare ◽  
Anik Dubé ◽  
Zack Marshall ◽  
Jacqueline Gahagan ◽  
Gregory E Harris ◽  
...  




2020 ◽  
Vol 34 (9) ◽  
pp. 399-416
Author(s):  
Sarah Bauerle Bass ◽  
Paul D'Avanzo ◽  
Mohammed Alhajji ◽  
Nicole Ventriglia ◽  
Aurora Trainor ◽  
...  


2020 ◽  
pp. 019394592097640
Author(s):  
Maichou Lor ◽  
Sara Thao ◽  
Sara M. Misurelli

The purpose of this study is to synthesize the literature on hearing loss among racial/ethnic minorities in the United States. A scoping review of primary source articles from 1950 to 2019 was conducted across four databases—CINAHL, PsycINFO, PubMed, and Scopus—to identify peer-reviewed studies. Twenty-two research studies were included. Of the 22 studies, 19 were descriptive, and 3 were interventions. Among the 19 descriptive studies, five themes related to hearing loss were identified: hearing loss prevalence, accuracy of hearing loss assessment, hearing loss risk factors, access to hearing care, and attitudes toward hearing loss. The three interventional studies focused on measuring hearing loss prevalence and promoting access to hearing care. Findings from this scoping review highlight that hearing loss is prevalent in racial/ethnic minorities. More research is needed on how economic, cultural, and age-related factors may influence hearing outcomes for racial/ethnic minorities.



2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 429-429
Author(s):  
Sandra Torres

Abstract Scholarship on ethnicity and old age is at a crossroad now that increased diversity is a given in older populations. The same holds true for the study of the role that ethnicity and race play in access and usage of health and social care in old age. This presentation relies on a scoping review of scholarship published between 1998 and 2020 that brings attention to the ways in which ethnicity & race – as grounds for stratification and disadvantage - are made sense of in this scholarship. The presentation will describe the topics that the review divulged, whether racism has been acknowledged in this scholarship so far, and how this has been the case. In doing so, this presentation will argue that if we are to address the inequalities that older ethnic minorities face we need not only a diversity-astute research agenda but also an injustice-aware one.



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