Personal therapy for psychotherapists: The impact on therapeutic practice. A qualitative study using interpretative phenomenological analysis

There is limited knowledge and research on the experiences of having a daughter with autism spectrum condition from a mother’s perspective. This study aims to explore the experiences of mothers who care for a daughter with autism spectrum condition, with a particular focus on female autism spectrum condition presentation. Ten mothers of daughters with autism spectrum condition took part in a semi-structured interview. Interpretative phenomenological analysis was used to analyse the data. Five superordinate themes emerged: ‘Girls have autism too’, ‘She’s a chameleon’, ‘The impact of the diagnosis’, ‘Impact on mums’ and ‘Day-to-day life’. These findings add to our knowledge of how female autism spectrum condition presents and of the experiences directly related to being the mother of a daughter with autism spectrum condition. The findings have implications for clinicians that carry out autism spectrum condition assessments and provide insights into areas where additional support can be provided to mothers and daughters. Lay abstract Parents of children with autism spectrum condition report increased stress and difficulties compared with parents of typically developing children. Our knowledge and understanding of how autism spectrum condition presents in autistic females is currently limited and parents of this population may experience challenges when raising their daughter. Given that mothers are often the main caregiver of a child with autism spectrum condition, they may have useful insights into the experiences of parenting a daughter with autism spectrum condition. Therefore, a qualitative study was undertaken to explore what mothers’ experiences are of parenting a daughter with autism spectrum condition. Semi-structured interviews were conducted with 10 mothers of daughters with autism spectrum condition. The interviews were analysed using interpretative phenomenological analysis. Five main themes emerged from the qualitative study (‘Girls have autism too’, ‘She’s a chameleon’, ‘The impact of the diagnosis’, ‘Impact on mums’ and ‘Day-to-day life’). The findings of this study expand our current knowledge of the experiences and challenges faced by mothers raising a daughter with autism spectrum condition. Mothers hold a vast amount of knowledge on their daughters’ autism spectrum condition which could inform the diagnostic process and clinical practice. Considering these results, it is important that clinicians support mothers and the family system around children with an autism spectrum condition diagnosis.

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‘This is your golden time. You enjoy it and you’ve plenty time for crying after’: How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis – A qualitative study

Palliative Medicine ◽

10.1177/0269216320932754 ◽

2020 ◽

Vol 34 (8) ◽

pp. 1097-1107

Author(s):

Dominika Lisiecka ◽

Helen Kelly ◽

Jeanne Jackson

Keyword(s):

Amyotrophic Lateral Sclerosis ◽

Qualitative Study ◽

Family Caregivers ◽

Interpretative Phenomenological Analysis ◽

Phenomenological Analysis ◽

Unique Contribution ◽

Individual Interviews ◽

South West ◽

The Impact ◽

Lateral Sclerosis

Background: Dysphagia (swallowing impairments) is a well-recognised symptom of amyotrophic lateral sclerosis. Caring for a person with amyotrophic lateral sclerosis has been recognised as a complex and demanding task. No study to date investigated the impact of dysphagia on the lives of caregivers of people with amyotrophic lateral sclerosis. Aim: To investigate the experiences of dysphagia from the perspective of family caregivers of people diagnosed with amyotrophic lateral sclerosis. Design: Interpretative phenomenological analysis was employed. Individual interviews (n = 15) plus observations of mealtime preparation were conducted, where possible (seven or n). Setting/participants: Participants comprised family caregivers of people with amyotrophic lateral sclerosis and dysphagia living in the South West of Ireland ( n = 10). Findings: Dysphagia transformed the mealtime experiences of the caregivers and changed their approaches to food. Frustration related to the inability to stabilise the weight of the person with amyotrophic lateral sclerosis and the fear of choking emerged strongly. The caregivers strived to ensure the safety of people with amyotrophic lateral sclerosis during meals by providing constant supervision. Despite the challenges precipitated by dysphagia and amyotrophic lateral sclerosis, the caregivers wished to maintain normality for as long as they perceived it to be possible. Conclusion: This study provides a unique contribution in advancing our understanding of the impact of dysphagia on the caregivers of people with amyotrophic lateral sclerosis. Professionals must explore and recognise the needs of the caregivers and provide them with appropriate support, especially how to manage choking.

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Exploring the experience of using music and creative mark-making as a reflective tool during coaching supervision: An Interpretative Phenomenological Analysis

10.22316/poc/06.2.03 ◽

2021 ◽

Vol 6 (2) ◽

pp. 22-46

Author(s):

Beth McManus

Keyword(s):

Qualitative Study ◽

Reflective Practice ◽

Interpretative Phenomenological Analysis ◽

Phenomenological Analysis ◽

Professional Support ◽

Structured Interviews ◽

Highly Effective ◽

The Impact ◽

Effective Supervision

Coaching supervision is still an emergent profession with a limited body of research to support its credibility and practice. This qualitative study is the first to explore the use of music and mark-making as a creative tool within coaching supervision and highlights information about both coach and coach supervisor experience. The research explores the question, ‘How does using mark-making in response to music within coaching supervision affect coaches’ experience of reflective practice?’ through semi-structured interviews, analysed using Interpretative Phenomenological Analysis (IPA) methodology. Findings revealed that using music and mark-making as a creative tool within coaching supervision enhances reflective practice and supports the client-supervisor relationship, enabling highly effective supervision to take place. The results offer coaches, coaching supervisors, coach educators and researchers and other professionals in other contexts where supervision forms an integral part of professional support and development insights into using music and other creative tools in supervision sessions and the impact on reflective practice. Keywords: coaching supervision, music, creativity, coaching psychology, reflective practice

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Therapists' Experience of Loss: An Interpretative Phenomenological Analysis

OMEGA - Journal of Death and Dying ◽

10.2190/om.68.2.a ◽

2014 ◽

Vol 68 (2) ◽

pp. 89-109 ◽

Cited By ~ 2

Author(s):

Konstantinos Kouriatis ◽

Dora Brown

Keyword(s):

Qualitative Study ◽

Interpretative Phenomenological Analysis ◽

Phenomenological Analysis ◽

Structured Interviews ◽

Therapeutic Work ◽

The Impact

This qualitative study aimed to explore therapists' experiences of loss. Semi-structured interviews were conducted with 6 therapists and the data were subjected to interpretative phenomenological analysis. Three master themes emerged from the analysis: (a) the grieving therapist, (b) hindrances in grieving, and (c) the impact of loss on therapeutic work. Therapists talked about their grief and elaborated on how they coped with their bereavement. Hindrances in their grief were reported, emerging both from others' stance and from their own. Participants found that their experience of loss was related to both challenges and advancements in their therapeutic work.

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‘This is Killing me Inside’: The Impact of Having a Parent with Young-Onset Dementia

Dementia ◽

10.1177/1471301217702977 ◽

2017 ◽

Vol 18 (3) ◽

pp. 1089-1107 ◽

Cited By ~ 3

Author(s):

Helen J Aslett ◽

Jaci C Huws ◽

Robert T Woods ◽

Joanne Kelly-Rhind

Keyword(s):

Interpretative Phenomenological Analysis ◽

Service Providers ◽

Phenomenological Analysis ◽

Parent Support ◽

Young Onset ◽

Roles And Responsibilities ◽

Affected Parent ◽

Young Onset Dementia ◽

The Impact ◽

Depth Interviews

This study explored the experience of young adults having a parent with young-onset dementia. In-depth interviews were undertaken with five participants aged between 23 and 36 years of age and these were analysed using interpretative phenomenological analysis. Participants were found to experience a number of stresses in relation to their parent’s illness, many of which were linked to loss and guilt. Five main themes were identified related to relationship changes, shifts in roles and responsibilities, support for the non-affected parent, support for self and the impact of living with their own potential risk of dementia. These findings are discussed in relation to the existing literature and suggest that individuals with a parent with young-onset dementia have needs which service providers should consider in the wider context of young-onset dementia care.

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Siblings’ Experiences of Everyday Life in a Family Where One Child Is Diagnosed With Blood Cancer: A Qualitative Study

Journal of Pediatric Oncology Nursing ◽

10.1177/1043454218818067 ◽

2018 ◽

Vol 36 (2) ◽

pp. 131-142 ◽

Cited By ~ 4

Author(s):

Marieke Van Schoors ◽

Jan De Mol ◽

Natacha Laeremans ◽

Lesley L. Verhofstadt ◽

Liesbet Goubert ◽

...

Keyword(s):

Qualitative Study ◽

Family Life ◽

Interpretative Phenomenological Analysis ◽

Life Experiences ◽

Phenomenological Analysis ◽

Safe Harbor ◽

Semistructured Interview ◽

Information Communication ◽

Blood Cancer ◽

Non Hodgkin Lymphoma

Background: Childhood cancer not only presents challenges to the life of the child with cancer but also to the siblings’ daily family life. The aim of the current study was to gain a better understanding of siblings’ experiences of living in a family where one child has been diagnosed with blood cancer. Method: Ten siblings of children with leukemia or non-Hodgkin lymphoma completed a semistructured interview about their everyday family life experiences postdiagnosis. The verbatim transcripts of the interviews served as the data for an interpretative phenomenological analysis. Results: The results showed that overall the siblings experienced a continuity in many aspects of their family life: they still experienced their family as an important source of support and information/communication, as warm and loving and as a safe harbor where family members aim to protect each other. However, at the same time, the participating siblings also expressed that some things felt unmistakably different postdiagnosis: They felt that their family as a whole had been ripped apart, with a greater focus on the diagnosed child and changing responsibilities for each family member. Conclusion: This study informs parents and clinicians about the daily family life experiences from the siblings’ perspective, a perspective that is often overlooked. A focus on challenges as well as continuities within family life, the wish for connection expressed by the siblings, and the uniqueness of every sibling’s experiences is what can be taken away from this study by psychosocial workers in the field.

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The Embodiment of Discovery: An Adapted Framework for Qualitative Analysis of Lived Experiences

The Qualitative Report ◽

10.46743/2160-3715/2021.4748 ◽

2021 ◽

Author(s):

Helen Hernandez ◽

◽

Laurie Dringus ◽

Keyword(s):

Data Analysis ◽

Qualitative Study ◽

Qualitative Analysis ◽

Research Methodology ◽

Lived Experiences ◽

Interpretative Phenomenological Analysis ◽

Insulin Pump ◽

Doctoral Student ◽

Phenomenological Analysis ◽

Effective Strategy

We reflect on our process of working with an adapted framework as an effective strategy for analyzing and interpreting the results of our qualitative study on the lived experiences of insulin pump trainers. Interpretative Phenomenological Analysis (IPA) was applied as the overarching research methodology and was encapsulated into a framework adapted from Bonello and Meehan (2019) and from Chong (2019). We describe this framework as the “embodiment of discovery” to posit the researcher’s tangible experience of discovering the meaning of data that also brought transparency to the researcher’s process for data analysis and interpretation. We present challenges the doctoral student researcher experienced working with the framework through three phases and various steps performed during the analysis. We recommend the framework may assist novice researchers as a tool for wayfinding and scoping the structure of data analysis and interpretation. We conclude that novice researchers should not fear finding their “embodiment of discovery” in adapting creative or alternate methods for qualitative analysis.

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P059 QUALITY OF LIFE IN COMPLEX ABDOMINAL WALL HERNIA PATIENTS

British Journal of Surgery ◽

10.1093/bjs/znab395.055 ◽

2021 ◽

Vol 108 (Supplement_8) ◽

Author(s):

Olivia Smith ◽

Srinivas Chintapatla ◽

Praminthra Chitsabesan

Keyword(s):

Quality Of Life ◽

Qualitative Study ◽

Abdominal Wall ◽

Interpretative Phenomenological Analysis ◽

Abdominal Wall Hernia ◽

Phenomenological Analysis ◽

Social Processes

Abstract Aim determine themes reported as important to Quality of Life (QoL) in Complex Abdominal Wall Hernia (CAWH) patients Material and Methods 15 purposively sampled CAWH patients were interviewed using topic guides (8 men and 7 women aged between 36 to 85 years [median = 65 years] covering all VHWG grades). All verbatim transcripts were coded and analysed using NVIVO12 software and Interpretative Phenomenological Analysis (IPA) until thematic saturation. Results 3 overarching groupings and 5 superordinate themes were identified. Each superordinate theme is associated with several subordinate themes: Conclusions This is the first phenomenological qualitative study in CAWH patients. The themes presented are interrelated and should shape our understanding of QoL in CAWH. Current QoL tools do not incorporate all aspects identified by this study. Further research is needed in order to generate a standardised CAWH QoL instrument which incorporates bio-psycho-emotional-social processes important to patients as identified by patients.

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Relatives’ Experiences of Frontal-Variant Frontotemporal Dementia

Qualitative Health Research ◽

10.1177/1049732312466294 ◽

2012 ◽

Vol 23 (2) ◽

pp. 156-166 ◽

Cited By ~ 24

Author(s):

Jan R. Oyebode ◽

Paul Bradley ◽

Joanne L. Allen

Keyword(s):

Frontotemporal Dementia ◽

Interpretative Phenomenological Analysis ◽

Phenomenological Analysis ◽

Mutual Relationship ◽

Communication Problems ◽

It Impacts ◽

Social Settings ◽

Planning Ability ◽

The Impact

In this article we address how relatives of people with frontal-variant frontotemporal dementia (fvFTD) experience the illness and how it impacts their lives. We interviewed 6 participants and carried out interpretative phenomenological analysis. We report on 11 themes that reflect distinctive challenges. Five themes relate to witnessing bizarre and strange changes: changed appetites and drives, loss of planning ability, loss of inhibition leading to social embarrassment, risky behavior, and communication problems. Four relate to managing these changes and two to the impact on the person and his or her relationships. Relatives must live with unusual changes in the person with fvFTD and the stigma this carries in social settings. They learn to act assertively for their relatives and put effort into promoting quality of life, using strategies adapted for fvFTD. Relatives grieve the loss of the person with fvFTD and their mutual relationship, but nonetheless find sources of solace and hope.

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How do women with secondary breast cancer experience telling their adolescent children about their diagnosis?

Journal of Health Psychology ◽

10.1177/1359105316648484 ◽

2016 ◽

Vol 23 (9) ◽

pp. 1223-1233 ◽

Cited By ~ 1

Author(s):

Leonie Lalayiannis ◽

Nicky Asbury ◽

Graham Dyson ◽

Amanda Walshe

Keyword(s):

Breast Cancer ◽

Cancer Diagnosis ◽

Interpretative Phenomenological Analysis ◽

Breast Cancer Diagnosis ◽

Phenomenological Analysis ◽

Primary Cancer ◽

Structured Interviews ◽

Cancer Experience ◽

Secondary Breast Cancer ◽

The Impact

This study investigated how women with secondary breast cancer experience telling their adolescent children. Semi-structured interviews were conducted with women who had been diagnosed with secondary breast cancer at least 1 year prior to the interview. Seven women, who had at least one child between 12 and 19 years old living at home at the time of diagnosis, were interviewed. The interviews were analysed using interpretative phenomenological analysis for an in-depth understanding of women’s experiences. Women found that it was easier to tell their children of their secondary breast cancer diagnosis compared to their primary cancer. However, they talked about the impact the diagnosis had on their family.

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