young onset dementia
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2022 ◽  
Vol 11 (2) ◽  
pp. 01-06
Author(s):  
Robert Skopec

Dementia is an umbrella term for a collection of symptoms that are caused by disorders affecting the brain and impact on memory, thinking, behaviour and emotion. The most common is Alzheimer’s disease, which affects 50-60% of people with dementia. Other types of dementia include vascular dementia, Lewy body dementia and fronto-temporal dementia. Dementia can also sometimes affect people who are under the age of 65. This is known as young onset dementia. Our brains are made up of over 86 billion nerve cells – more than the stars in the Milky Way. Dementia damages nerve cells so they are no longer able to communicate effectively and this impacts on how our body functions.


2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Leah Couzner ◽  
Sally Day ◽  
Brian Draper ◽  
Adrienne Withall ◽  
Kate E. Laver ◽  
...  

Abstract Background People with young onset dementia (YOD) have unique needs and experiences, requiring care and support that is timely, appropriate and accessible. This relies on health professionals possessing sufficient knowledge about YOD. This study aims to establish a consensus among YOD experts about the information that is essential for health professionals to know about YOD. Methods An international Delphi study was conducted using an online survey platform with a panel of experts (n = 19) on YOD. In round 1 the panel individually responded to open-ended questions about key facts that are essential for health professionals to understand about YOD. In rounds 2 and 3, the panel individually rated the collated responses in terms of their importance in addition to selected items from the Dementia Knowledge Assessment Scale. The consensus level reached for each statement was calculated using the median, interquartile range and percentage of panel members who rated the statement at the highest level of importance. Results The panel of experts were mostly current or retired clinicians (57%, n = 16). Their roles included neurologist, psychiatrist and neuropsychiatrist, psychologist, neuropsychologist and geropsychologist, physician, social worker and nurse practitioner. The remaining respondents had backgrounds in academia, advocacy, or other areas such as law, administration, homecare or were unemployed. The panel reached a high to very high consensus on 42 (72%) statements that they considered to be important for health professionals to know when providing care and services to people with YOD and their support persons. Importantly the panel agreed that health professionals should be aware that people with YOD require age-appropriate care programs and accommodation options that take a whole-family approach. In terms of identifying YOD, the panel agreed that it was important for health professionals to know that YOD is aetiologically diverse, distinct from a mental illness, and has a combination of genetic and non-genetic contributing factors. The panel highlighted the importance of health professionals understanding the need for specialised, multidisciplinary services both in terms of diagnosing YOD and in providing ongoing support. The panel also agreed that health professionals be aware of the importance of psychosocial support and non-pharmacological interventions to manage neuropsychiatric symptoms. Conclusions The expert panel identified information that they deem essential for health professionals to know about YOD. There was agreement across all thematic categories, indicating the importance of broad professional knowledge related to YOD identification, diagnosis, treatment, and ongoing care. The findings of this study are not only applicable to the delivery of support and care services for people with YOD and their support persons, but also to inform the design of educational resources for health professionals who are not experts in YOD.


2021 ◽  
Author(s):  
Ming-Hsiang Tu ◽  
Yung-Hsiang Tu ◽  
Huey-Jane Lee ◽  
Polun Chang

Owing to the increasing population of young onset dementia all over the world. We designed a 6”-display Android mobile system for evaluating the potential patient of Dementia. A pilot test at experienced nursing members showed that they had strong willing of launching this design in their daily practical events.


2021 ◽  
Vol 17 (S10) ◽  
Author(s):  
Stevie Hendriks ◽  
Kirsten Peetoom ◽  
Christian Bakker ◽  
Raymond Koopmans ◽  
Wiesje M van der Flier ◽  
...  

2021 ◽  
Vol 17 (S8) ◽  
Author(s):  
Hanneke FM Rhodius‐Meester ◽  
Anna E Leeuwis ◽  
Aniek M Van Gils ◽  
Christian Bakker ◽  
Kirsten Peetoom ◽  
...  

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 376-376
Author(s):  
Michelle Sharkey ◽  
Lauren Fisher ◽  
Lauren Massimo

Abstract Frontotemporal degeneration (FTD) is a common cause of young-onset dementia that results in progressive deterioration in executive functioning and social comportment. A tremendous burden is placed on young caregivers, typically spouses, who often sacrifice their own self-care needs in order to manage the cognitive decline and subsequent functional impairments of their loved one, contributing to extraordinarily high levels of stress and depression in caregivers of individuals with FTD. Very few interventions have been tested specifically in FTD caregivers, and those that exist have generally focused on education around patient behavior management. In this session, we will discuss how we adapted the iCare4Me study, originally designed for heart failure caregivers, for caregivers of persons with FTD and we will share initial findings from iCare4Me for FTD, a randomized controlled trial which evaluates the efficacy of a virtual health coach intervention aimed at increasing self-care behaviors and reducing stress in FTD caregivers.


2021 ◽  
pp. 1-9
Author(s):  
Ilaria Chirico ◽  
Giovanni Ottoboni ◽  
Simona Linarello ◽  
Elisa Ferriani ◽  
Enrica Marrocco ◽  
...  

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Daniël M. van der Doelen ◽  
Ron L.H. Handels ◽  
Marissa D. Zwan ◽  
Sander M.J. van Kuijk ◽  
Wiesje Pelkmans ◽  
...  

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