Siblings’ Experiences of Everyday Life in a Family Where One Child Is Diagnosed With Blood Cancer: A Qualitative Study

2018 ◽  
Vol 36 (2) ◽  
pp. 131-142 ◽  
Author(s):  
Marieke Van Schoors ◽  
Jan De Mol ◽  
Natacha Laeremans ◽  
Lesley L. Verhofstadt ◽  
Liesbet Goubert ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Life ◽  
Interpretative Phenomenological Analysis ◽  
Life Experiences ◽  
Phenomenological Analysis ◽  
Safe Harbor ◽  
Semistructured Interview ◽  
Information Communication ◽  
Blood Cancer ◽  
Non Hodgkin Lymphoma

Background: Childhood cancer not only presents challenges to the life of the child with cancer but also to the siblings’ daily family life. The aim of the current study was to gain a better understanding of siblings’ experiences of living in a family where one child has been diagnosed with blood cancer. Method: Ten siblings of children with leukemia or non-Hodgkin lymphoma completed a semistructured interview about their everyday family life experiences postdiagnosis. The verbatim transcripts of the interviews served as the data for an interpretative phenomenological analysis. Results: The results showed that overall the siblings experienced a continuity in many aspects of their family life: they still experienced their family as an important source of support and information/communication, as warm and loving and as a safe harbor where family members aim to protect each other. However, at the same time, the participating siblings also expressed that some things felt unmistakably different postdiagnosis: They felt that their family as a whole had been ripped apart, with a greater focus on the diagnosed child and changing responsibilities for each family member. Conclusion: This study informs parents and clinicians about the daily family life experiences from the siblings’ perspective, a perspective that is often overlooked. A focus on challenges as well as continuities within family life, the wish for connection expressed by the siblings, and the uniqueness of every sibling’s experiences is what can be taken away from this study by psychosocial workers in the field.

scholarly journals The Embodiment of Discovery: An Adapted Framework for Qualitative Analysis of Lived Experiences

2021 ◽  
Author(s):  
Helen Hernandez ◽  
◽  
Laurie Dringus ◽  
Keyword(s):  
Data Analysis ◽  
Qualitative Study ◽  
Qualitative Analysis ◽  
Research Methodology ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Insulin Pump ◽  
Doctoral Student ◽  
Phenomenological Analysis ◽  
Effective Strategy

We reflect on our process of working with an adapted framework as an effective strategy for analyzing and interpreting the results of our qualitative study on the lived experiences of insulin pump trainers. Interpretative Phenomenological Analysis (IPA) was applied as the overarching research methodology and was encapsulated into a framework adapted from Bonello and Meehan (2019) and from Chong (2019). We describe this framework as the “embodiment of discovery” to posit the researcher’s tangible experience of discovering the meaning of data that also brought transparency to the researcher’s process for data analysis and interpretation. We present challenges the doctoral student researcher experienced working with the framework through three phases and various steps performed during the analysis. We recommend the framework may assist novice researchers as a tool for wayfinding and scoping the structure of data analysis and interpretation. We conclude that novice researchers should not fear finding their “embodiment of discovery” in adapting creative or alternate methods for qualitative analysis.

scholarly journals P059 QUALITY OF LIFE IN COMPLEX ABDOMINAL WALL HERNIA PATIENTS

2021 ◽  
Vol 108 (Supplement_8) ◽  
Author(s):  
Olivia Smith ◽  
Srinivas Chintapatla ◽  
Praminthra Chitsabesan
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Abdominal Wall ◽  
Interpretative Phenomenological Analysis ◽  
Abdominal Wall Hernia ◽  
Phenomenological Analysis ◽  
Social Processes

Abstract Aim determine themes reported as important to Quality of Life (QoL) in Complex Abdominal Wall Hernia (CAWH) patients Material and Methods 15 purposively sampled CAWH patients were interviewed using topic guides (8 men and 7 women aged between 36 to 85 years [median = 65 years] covering all VHWG grades). All verbatim transcripts were coded and analysed using NVIVO12 software and Interpretative Phenomenological Analysis (IPA) until thematic saturation. Results 3 overarching groupings and 5 superordinate themes were identified. Each superordinate theme is associated with several subordinate themes: Conclusions This is the first phenomenological qualitative study in CAWH patients. The themes presented are interrelated and should shape our understanding of QoL in CAWH. Current QoL tools do not incorporate all aspects identified by this study. Further research is needed in order to generate a standardised CAWH QoL instrument which incorporates bio-psycho-emotional-social processes important to patients as identified by patients.

Providers’ perceptions of the online community marketplace for lodging accommodations

2016 ◽  
Vol 18 (4) ◽  
pp. 470-477 ◽  
Author(s):  
Cynthia S Deale ◽  
Alleah Crawford
Keyword(s):  
Qualitative Study ◽  
Interpretative Phenomenological Analysis ◽  
Online Community ◽  
Phenomenological Analysis ◽  
Online Marketplace ◽  
And Behaviors ◽  
Meaningful Relationships ◽  
Analyze Data

With the increase in intermediaries in the online marketplace for lodging accommodations, such as Airbnb, Vacation Rental by Owner, Home Away, and Flip Key, opportunities for consumers to book lodging accommodations and for home owners to rent out their own homes, condominiums, and bedrooms are growing. While some research has investigated travelers’ motivations for using these services, little work has addressed the motivations and behaviors of owners. This qualitative study used interpretative phenomenological analysis to analyze data collected from interviews with current owners. Themes that emerged from the analysis, pertaining to the description of the providers, included identity, motivations, and drawbacks; while those related to the daily operations of the facility included advantages, features, and logistics. Ultimately, the study found that providers of alternative lodging are focused on respect between hosts and guests, developing meaningful relationships, and acquiring all the necessary resources to operate.

scholarly journals Growing Up with a Mother with Depression: An Interpretative Phenomenological Analysis

2014 ◽  
Author(s):  
Hanna Van Parys ◽  
Jonathan Smith ◽  
Peter Rober
Keyword(s):  
Family Life ◽  
Interpretative Phenomenological Analysis ◽  
Analysis Data ◽  
Phenomenological Analysis ◽  
Point Of View ◽  
Growing Up ◽  
Childhood Experience ◽  
Childhood Experiences ◽  
The Difference ◽  
Retrospective Investigation

The aim of this study was to explore the childhood experience of living with a parent with depression from a retrospective point of view. Five women between 39 and 47 years of age, who grew up with a mother with depression, were interviewed about their current perspectives on their childhood experiences. Interviews were semi-structured and the data were analyzed using interpretative phenomenological analysis. Data analysis led to a narrative organized in two parts. The first part (retrospective understanding of childhood experiences) reports on feelings of desolation contrasted to exceptional support, context-related dwelling on own experiences, and growing into a caring role as a way to keep standing. The second part (towards an integration of childhood experiences in adult realities) evidences ongoing processes of growing understanding of the situation at home, coping with own vulnerabilities, making the difference in their current family life and finding balance in the continued bond with the parents. This retrospective investigation of adults’ perspectives on their childhood experiences gave access to aspects of their experience that remain underexposed in research based on data from children and adolescents.

scholarly journals Experiences of Patient Incivility: A Qualitative Study

2019 ◽  
Vol 7 (4) ◽  
pp. 615-620
Author(s):  
Emily A Vargas ◽  
Ramaswami Mahalingam
Keyword(s):  
Qualitative Study ◽  
Patient Experience ◽  
Interpretative Phenomenological Analysis ◽  
Full Range ◽  
Phenomenological Analysis ◽  
Hospital Personnel ◽  
Health Consequences ◽  
Almost All ◽  
Patients Perspective

Background: Incivility is one of the most prevalent forms of interpersonal mistreatment. Although studies have examined the full range of experiences of incivility against nurses and other hospital personnel, very few studies examined the forms of incivility that patients face in a hospital. Objective: To empirically investigate the range of uncivil experiences targeted against patients. Our study furthers our understanding of the phenomenology of incivility from the patients’ perspective. Method: We used interpretative phenomenological analysis to analyze participant’s (n = 173) experiences of incivility in a hospital. Results: We identified 6 major themes of incivility, namely Insensitivity, Identity Stigma, Gaslighting, Infantilization, Poor Communication, and Ignored. Conclusion: The findings highlight that instances of incivility are present in almost all aspects of the patient experience and take on unique forms, given the patient’s role in the hospital. Implications for health consequences are discussed.

Social Support in Perinatal Grief and Mothers’ Continuing Bonds: A Qualitative Study With Italian Mourners

Affilia ◽  
2020 ◽  
Vol 35 (4) ◽  
pp. 485-502
Author(s):  
Ines Testoni ◽  
Jenni Bregoli ◽  
Sara Pompele ◽  
Andrea Maccarini
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Interpretative Phenomenological Analysis ◽  
Support Systems ◽  
Perinatal Loss ◽  
Phenomenological Analysis ◽  
Continuing Bonds ◽  
Grieving Process ◽  
The Third ◽  
Perinatal Grief

The grieving process after perinatal loss has unique properties. This qualitative study examines one aspect of the grieving process: continuing bonds experienced by the mothers. We offer an interpretative phenomenological analysis of interviews with 15 Italian mothers. Three main relevant themes emerged: “continuing bonds between externalized and internalized presence,” “a difficult guilt to manage,” and “relationships are crucial support systems.” The first one illustrates the ongoing connections to the deceased on the part of mothers and siblings, the second one explores a fixation on finding the cause of the death and related feelings of guilt, while the third one describes the mothers’ process of elaboration of the event, especially with the support of the husband and the community. The findings highlight unique qualities of continuing bonds after perinatal loss and factors that might influence mother’s griefwork, while also suggesting that psychodrama and art therapy could be useful in the management of this kind of loss.

INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS TO EXPLORE FATHERS’ EXPERIENCE WITH A CHILD IN PALLIATIVE CARE

2019 ◽  
Vol 7 ◽  
pp. 163
Author(s):  
Juris Zuitiņš ◽  
Anita Pipere ◽  
Velga Sudraba
Keyword(s):  
Health Psychology ◽  
Palliative Care ◽  
Interpretative Phenomenological Analysis ◽  
Life Experiences ◽  
Single Case ◽  
Phenomenological Research ◽  
Phenomenological Analysis ◽  
Health And Disease ◽  
Father's Experience ◽  
Methodological Aspects

Phenomenological research is commonly used worldwide in the field of health psychology to describe and explain the unique life experiences of health and disease. In Latvia, the phenomenological research in health psychology has not been performed yet. In this study, the methodological aspects of interpretative phenomenological analysis applied to explore the experience of fathers with a child in palliative care will be exemplified. The paper particularly aims to analyze the steps of interpretative phenomenological analysis applied during the study of one father’s experience. A single case will be presented detailing the disclosure of father’s experience and reflection on the process of interpretive phenomenological analysis on interview data. Conclusions in terms of the methodological aspects of interpretative phenomenological analysis will be provided.

scholarly journals Factors That May Continue to Impact a Mother’s Emotional Well-Being Once Her Child’s Treatment for Cancer Has Completed and Their Implications for Ongoing Support

2020 ◽  
pp. 105413732091991
Author(s):  
Lynda Hill ◽  
Peter M. Gubi
Keyword(s):  
Family Life ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Strong Sense ◽  
Mixed Emotions ◽  
End Of Treatment ◽  
General Expectation ◽  
Ongoing Support

This research explores factors that may continue to impact a mother’s emotional well-being once her child’s treatment for cancer has completed. Research indicates that, contrary to a general expectation of experiencing joy as treatment ends, some families experience very mixed emotions, with fear playing a large part, both leading up to treatment completion and, for some, continuing posttreatment. However, there is no literature that explores a mother’s emotional well-being after a number of years’ posttreatment. This research is a contribution toward addressing that deficit. Five mothers were interviewed using semistructured questions to gather data relating to their specific lived experiences. These were analyzed using Interpretative Phenomenological Analysis. Results indicate that although end of treatment was longed for, there continues to be much uncertainty and fear posttreatment, and this can continue years after treatment has ended. Mothers described changes within themselves (e.g., new attitudes to living) and a need to adapt to a new normal. There were elements of grief for the loss of family life with which they were once so familiar. There was also a strong sense of wanting to support others, so that their own experiences were not wasted. All participants recognized that further counseling support for themselves would be beneficial.

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