Psychological measures of patient’s decision-making for prenatal genetic testing

2020 ◽  
pp. 1-7
Author(s):  
Kimberly M. Herrera ◽  
Gina Milone ◽  
Jay A. Davis ◽  
Malini D. Persad ◽  
Cheryl Dinglas ◽  
...  
Keyword(s):  
Decision Making ◽  
Genetic Testing ◽  
Prenatal Genetic Testing ◽  
Psychological Measures

scholarly journals 1152: How do distress levels affect women’s decision-making for invasive prenatal genetic testing?

2020 ◽  
Vol 222 (1) ◽  
pp. S709-S710
Author(s):  
Cassandra Heiselman ◽  
Lisa M. Pastore ◽  
Gina Milone ◽  
Jay Davis ◽  
Cheryl Dinglas ◽  
...  
Keyword(s):  
Decision Making ◽  
Genetic Testing ◽  
Prenatal Genetic Testing

scholarly journals Autism Spectrum Disorders: Prenatal Genetic Testing and Abortion Decision-Making among Taiwanese Mothers of Affected Children

2020 ◽  
Vol 17 (2) ◽  
pp. 476
Author(s):  
Wei-Ju Chen ◽  
Shixi Zhao ◽  
Tse-Yang Huang ◽  
Oi-Man Kwok ◽  
Lei-Shih Chen
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Structural Equation ◽  
Chinese Culture ◽  
Susceptibility Genes ◽  
Autism Spectrum ◽  
Equation Modeling ◽  
Prenatal Genetic Testing ◽  
Spectrum Disorders

With the rapid growing rate of autism spectrum disorders (ASDs), prenatal genetic testing (PGT) has been offered to detect various genomic disorders, including ASD, in Taiwan. However, disparities exist in this area, as there is limited research on factors associated with PGT utilization and relevant decision-making that may guide the regulations and ethical guidelines for culturally appropriate PGT services in Taiwan. This study proposed a comprehensively integrated theoretical framework for examining the intention to undergo PGT to detect ASD susceptibility genes and subsequent abortion decision-making among Taiwanese mothers of children affected by ASD. Survey data from 333 mothers of children with ASD in 236 elementary schools with special education services in Taiwan were collected and analyzed using structural equation modeling. Approximately two-thirds of the participants (66.6%) would undergo PGT to detect ASD susceptibility genes; more than half (53.1%) would terminate the hypothetically ASD-affected pregnancy. Abortion intention was associated with age, religion, attitudes toward PGT for detecting ASD susceptibility genes, and willingness to undergo such PGT. This study explores the potential impacts of PGT on Taiwanese society, and the findings are applicable to countries heavily influenced by Chinese culture, areas with Asian immigrants, and Western countries with such PGT services and/or research available.

scholarly journals Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results

2018 ◽  
Author(s):  
Meagan Rubel
Keyword(s):  
Decision Making ◽  
Genetic Testing ◽  
Expert Knowledge ◽  
Pregnancy Termination ◽  
Chromosomal Microarray ◽  
Theory Approach ◽  
Psychosocial Needs ◽  
Prenatal Genetic Testing ◽  
Factors Affecting ◽  
Uncertain Significance

To assess how participants receiving abnormal prenatal genetic testing results seek information and understand the implications of results, 27 US female patients and 12 of their male partners receiving positive prenatal microarray testing results completed semi-structured phone interviews. These interviews documented participant experiences with chromosomal microarray testing, understanding of and emotional response to receiving results, factors affecting decision-making about testing and pregnancy termination, and psychosocial needs throughout the testing process. Interview data were analyzed using a modified grounded theory approach. In the absence of certainty about the implications of results, understanding of results is shaped by biomedical expert knowledge (BEK) and cultural expert knowledge (CEK). When there is a dearth of BEK, as in the case of receiving results of uncertain significance, participants rely on CEK, including religious/spiritual beliefs, “gut instinct,” embodied knowledge, and social network informants. CEK is a powerful platform to guide understanding of prenatal genetic testing results. The utility of culturally situated expert knowledge during testing uncertainty emphasizes that decision-making occurs within discourses beyond the biomedical domain. These forms of “knowing” may be integrated into clinical consideration of efficacious patient assessment and counseling.

Decision-making about prenatal genetic testing among pregnant Korean-American women

Midwifery ◽  
2018 ◽  
Vol 56 ◽  
pp. 128-134 ◽  
Author(s):  
Myunghee Jun ◽  
Vipavee Thongpriwan ◽  
Jeeyae Choi ◽  
Kyung Sook Choi ◽  
Gwen Anderson
Keyword(s):  
Decision Making ◽  
Genetic Testing ◽  
Korean American ◽  
Prenatal Genetic Testing ◽  
Korean American Women ◽  
American Women

scholarly journals Siblings of Disabled Peoples' Attitudes Toward Prenatal Genetic Testing and Disability: A Mixed Methods Approach

2016 ◽  
Vol 36 (3) ◽  
Author(s):  
Carli Friedman ◽  
Aleksa L Owen
Keyword(s):  
Decision Making ◽  
Mixed Methods ◽  
Genetic Testing ◽  
Prenatal Testing ◽  
Disabled People ◽  
Prenatal Genetic Testing ◽  
Mixed Methods Approach ◽  
Social Meanings ◽  
Decision Making Processes ◽  
Disability Attitudes

We used the phenomenon of prenatal genetic testing to learn more about how siblings of disabled people understand prenatal genetic testing and social meanings of disability. By interweaving data on siblings' conscious and unconscious disability attitudes and prenatal testing with siblings' explanations of their views of prenatal testing we explored siblings' unique relationships with disability, a particular set of perspectives on prenatal genetic testing, and examined how siblings' decision-making processes reveal their attitudes about disability more generally. In doing so we found siblings have both personal and broad stakes regarding their experiences with disability that impact their views.

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