scholarly journals Siblings of Disabled Peoples' Attitudes Toward Prenatal Genetic Testing and Disability: A Mixed Methods Approach

2016 ◽  
Vol 36 (3) ◽  
Author(s):  
Carli Friedman ◽  
Aleksa L Owen
Keyword(s):  
Decision Making ◽  
Mixed Methods ◽  
Genetic Testing ◽  
Prenatal Testing ◽  
Disabled People ◽  
Prenatal Genetic Testing ◽  
Mixed Methods Approach ◽  
Social Meanings ◽  
Decision Making Processes ◽  
Disability Attitudes

We used the phenomenon of prenatal genetic testing to learn more about how siblings of disabled people understand prenatal genetic testing and social meanings of disability. By interweaving data on siblings' conscious and unconscious disability attitudes and prenatal testing with siblings' explanations of their views of prenatal testing we explored siblings' unique relationships with disability, a particular set of perspectives on prenatal genetic testing, and examined how siblings' decision-making processes reveal their attitudes about disability more generally. In doing so we found siblings have both personal and broad stakes regarding their experiences with disability that impact their views.

Unpacking the democratic affordances of CrowdLaw concept and practice: ‘It feels like being part of the game’

Politics ◽  
2021 ◽  
pp. 026339572097385
Author(s):  
Mayra Feddersen ◽  
Luis E Santana
Keyword(s):  
Decision Making ◽  
Mixed Methods ◽  
Statistical Analysis ◽  
Technological Innovation ◽  
Citizen Engagement ◽  
Public Forum ◽  
Digital Ethnography ◽  
Mixed Methods Approach ◽  
Decision Making Processes ◽  
Web Platform

This research draws on the CrowdLaw concept and the affordances framework to inquire how Senador Virtual, a technological innovation in the Chilean Senate, could contribute to creating more democratic processes and outcomes, and consequently, whether the platform promoted or enabled more equality in decision-making processes and better citizen engagement. Based on a mixed-methods approach of statistical analysis, interviews, and a digital ethnography, we studied the 16-year-old web platform. Our research shows that the platform gave rise to five latent democratic affordances which are not always fully leveraged. Of these, three had already been discussed within the CrowdLaw literature: (1) capture a variety of viewpoints; (2) generate insights that illuminate the lawmaking process; and (3) serve as a device for communication between citizens and senators. Notwithstanding, we also found two additional affordances not normally attributed to CrowdLaw: (4) create a civilized public forum; and (5) foster civility among the users that engage with it. We suggest that in order for these affordances to be fully leveraged, the CrowdLaw process must be designed to complement traditional lawmaking processes, including a reliable methodology for processing citizen input. Only when the above is accomplished, will this technological facilitator produce actual democratic outcomes.

scholarly journals Doing Participatory Research with Disabled People in Kuwait

2018 ◽  
Vol 38 (2) ◽  
Author(s):  
Hussain Mohammed Alenaizi
Keyword(s):  
Decision Making ◽  
Participatory Research ◽  
Power Relations ◽  
Skills Development ◽  
Attitudinal Change ◽  
Disabled People ◽  
Decision Making Processes ◽  
The University ◽  
University Of Manchester

This paper explores the experiences of participatory PhD research with six disabled people in Kuwait. The contributors participated in my PhD project (which was conducted with the University of Manchester) as co-researchers. The paper attempts to answer the following questions: What are the co-researchers' motivations behind participating in this research? Do the co-researchers believe that they will benefit from this process and if so, how? What are our (i.e. the researcher and the co-researchers) experiences of the process of participatory research? The findings highlight the process of participatory research with the co-researchers and highlight the issues of power relations, skills development and reciprocity, decision-making processes and sharing experiences, and the possibility of this research opening the door for further research and attitudinal change.

scholarly journals Parental expectations of raising a child with disability in decision-making for prenatal testing and termination of pregnancy: A mixed methods study

2020 ◽  
Vol 103 (11) ◽  
pp. 2373-2383
Author(s):  
Olivia Miu Yung Ngan ◽  
Huso Yi ◽  
Louise Bryant ◽  
Daljit Singh Sahota ◽  
Olivia Yiu Man Chan ◽  
...  
Keyword(s):  
Decision Making ◽  
Mixed Methods ◽  
Parental Expectations ◽  
Prenatal Testing ◽  
Termination Of Pregnancy ◽  
Mixed Methods Study

The Drug Court Team and Discretionary Decision-Making: A Mixed-Methods Examination of Sanctioning Responses to Continued Participant Alcohol and Other Drug Use

2020 ◽  
Vol 32 (1) ◽  
pp. 27-48
Author(s):  
Benjamin R. Gibbs ◽  
Tusty ten Bensel ◽  
Madison K. Doyle ◽  
William Wakefield
Keyword(s):  
Decision Making ◽  
Mixed Methods ◽  
Drug Use ◽  
Performance Measures ◽  
Drug Court ◽  
Research Question ◽  
Drug Courts ◽  
Program Performance ◽  
Mixed Methods Approach ◽  
Participant Characteristics

Drug courts attempt to gain participant compliance and alcohol and other drug (AOD) use abstinence through a strategy of moderate and progressive sanctioning, but its discretionary application possesses the capacity for disparity across participants and behaviors. The purpose of this study was to examine the drug court team’s (DCT) discretionary use of sanctions in response to continued participant AOD use. A mixed-methods approach was used for analyzing agency data ( n = 1,032) and interviews of five members of the DCT. Data were collected from an adult felony drug court over a 6-year period (2008–2013) and use to answer the following research question: “What participant characteristics and program performance measures affected sanctioning outcomes?” We found that offender attributes did play a role in the sanctioning decision, but program performance measures were stronger predictors of sanction type.

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