scholarly journals Rights Based, Participatory Interviews with Disabled Children and Young People: Practical and Methodological Considerations

2021 ◽  
pp. 1-10
Author(s):  
Patricia McNeilly ◽  
Geraldine Macdonald ◽  
Berni Kelly
Keyword(s):  
Young People ◽  
Disabled Children ◽  
Children And Young People ◽  
Methodological Considerations

scholarly journals Involving disabled children and young people as partners in research: a systematic review

2014 ◽  
Vol 41 (4) ◽  
pp. 505-514 ◽  
Author(s):  
S. Bailey ◽  
K. Boddy ◽  
S. Briscoe ◽  
C. Morris
Keyword(s):  
Systematic Review ◽  
Young People ◽  
Disabled Children ◽  
Children And Young People

scholarly journals The Participation of Disabled Children and Young People: A Social Justice Perspective

2015 ◽  
Vol 21 (3) ◽  
pp. 266-286 ◽  
Author(s):  
Patricia McNeilly ◽  
Geraldine Macdonald ◽  
Berni Kelly
Keyword(s):  
Social Justice ◽  
Young People ◽  
Disabled Children ◽  
Children And Young People

scholarly journals Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Childhood ◽  
2018 ◽  
Vol 25 (3) ◽  
pp. 355-368 ◽  
Author(s):  
Sarah Louise Skyrme ◽  
Simon Woods
Keyword(s):  
Decision Making ◽  
Qualitative Research ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Medical Research ◽  
Disabled Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
Research Assumptions

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

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