scholarly journals Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Childhood ◽  
2018 ◽  
Vol 25 (3) ◽  
pp. 355-368 ◽  
Author(s):  
Sarah Louise Skyrme ◽  
Simon Woods
Keyword(s):  
Decision Making ◽  
Qualitative Research ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Medical Research ◽  
Disabled Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
Research Assumptions

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

scholarly journals Support for Children’s Protagonism

2015 ◽  
Vol 23 (2) ◽  
pp. 332-364 ◽  
Author(s):  
Cath Larkins ◽  
Nigel Thomas ◽  
Bernie Carter ◽  
Nicola Farrelly ◽  
Dawn Judd ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Social Change ◽  
Young People ◽  
Children's Rights ◽  
Children’S Rights ◽  
Disabled Children ◽  
Critical Approach ◽  
Children And Young People ◽  
Research With Children ◽  
International Conventions

With notable exceptions, there is a lack of critique in existing approaches to children’s rights based research. Where children’s rights research is also co-research with children, a critical approach requires that children are enabled to challenge assumptions about, and definitions of, rights, as well as to lead the process and to try to bring about change. This paper argues that creative methods and structured intergenerational dialogue can support critical children rights research “from below”. We illustrate this approach using research by disabled children and young people, who reflected on their own experiences and the provisions of three international conventions (uncrc, uncrpd and icescr). Effectively engaging with existing international conventions meant matching children’s claims to rights in their everyday contexts with existing rights provisions. This framework was then used to analyse qualitative research with other disabled children and their families. The young co-researchers are now using the findings in their protagonism for social change.

scholarly journals Involving disabled children and young people as partners in research: a systematic review

2014 ◽  
Vol 41 (4) ◽  
pp. 505-514 ◽  
Author(s):  
S. Bailey ◽  
K. Boddy ◽  
S. Briscoe ◽  
C. Morris
Keyword(s):  
Systematic Review ◽  
Young People ◽  
Disabled Children ◽  
Children And Young People
Sign in / Sign up

Export Citation Format

Share Document