Exploring Culturally Responsive Religious and Spirituality Health Care Communications among African Americans with Advanced Heart Failure, Their Family Caregivers, and Clinicians

Author(s):  
Deborah Ejem ◽  
Karen Steinhauser ◽  
J. Nicholas Dionne-Odom ◽  
Rachel Wells ◽  
Raegan W. Durant ◽  
...  
2019 ◽  
Vol 25 (8) ◽  
pp. 693-694 ◽  
Author(s):  
Haider J. Warraich ◽  
Christopher M. O'Connor ◽  
Hongqiu Yang ◽  
Bradi B. Granger ◽  
Kimberly S. Johnson ◽  
...  

2019 ◽  
Vol 72 (1) ◽  
pp. 162-169
Author(s):  
Carlos Sampaio ◽  
Isabel Renaud ◽  
Paula Ponce Leão

ABSTRACT Objective: To explore the meaning of being a family caregiver for a relative with advanced heart failure (HF) in their own home, and to gain an understanding of how dignity is upheld in family caregiving contexts. Method: We used a phenomenological-hermeneutical method inspired by the Ricoeurian philosophy. Portuguese caregivers for relatives with advanced HF participated in two reflective interviews over a four-month period. Results: The ten family caregivers enrolled in this study included two daughters and eight spouses with a mean age of 70 years. We identified two main themes: (1) Struggle between inner force and sense of duty; (2) Struggle between feelings of burden and security. Final considerations: People with HF have debilitating symptoms associated with psychological stress, which can burden both them and their family caregivers. Findings support that family caregivers require participation in the planning and execution of their relative's health care.


2019 ◽  
Author(s):  
Leanna Woods ◽  
Jed Duff ◽  
Erin Roehrer ◽  
Kim Walker ◽  
Elizabeth Cummings

BACKGROUND Consumer health care technology shows potential to improve outcomes for community-dwelling persons with chronic conditions, yet health app quality varies considerably. In partnership with patients and family caregivers, hospital clinicians developed Care4myHeart, a mobile health (mHealth) app for heart failure (HF) self-management. OBJECTIVE The aim of this paper was to report the outcomes of the nurse-led design process in the form of the features and functions of the developed app, Care4myHeart. METHODS Seven patients, four family caregivers, and seven multidisciplinary hospital clinicians collaborated in a design thinking process of innovation. The co-design process, involving interviews, design workshops, and prototype feedback sessions, incorporated the lived experience of stakeholders and evidence-based literature in a design that would be relevant and developed with rigor. RESULTS The home screen displays the priority HF self-management components with a reminder summary, general information on the condition, and a settings tab. The health management section allows patients to list health care team member’s contact details, schedule medical appointments, and store documents. The My Plan section contains nine important self-management components with a combination of information and advice pages, graphical representation of patient data, feedback, and more. The greatest strength of the co-design process to achieve the design outcomes was the involvement of local patients, family caregivers, and clinicians. Moreover, incorporating the literature, guidelines, and current practices into the design strengthened the relevance of the app to the health care context. However, the strength of context specificity is also a limitation to portability, and the final design is limited to the stakeholders involved in its development. CONCLUSIONS We recommend health app development teams strategically incorporate relevant stakeholders and literature to design mHealth solutions that are rigorously designed from a solid evidence base and are relevant to those who will use or recommend their use.


2012 ◽  
Vol 9 (4) ◽  
pp. 297-303 ◽  
Author(s):  
Miriam G. Gerlich ◽  
Katharina Klindtworth ◽  
Peter Oster ◽  
Mathias Pfisterer ◽  
Klaus Hager ◽  
...  

2012 ◽  
Vol 25 (4) ◽  
pp. 239-245 ◽  
Author(s):  
Ubolrat Piamjariyakul ◽  
Carol E. Smith ◽  
Marilyn Werkowitch ◽  
Andrea Elyachar

2009 ◽  
Vol 8 (3) ◽  
pp. 223-231 ◽  
Author(s):  
Marie Ryan ◽  
Mary Farrelly

Background: Nurses working with patients with advanced heart failure need knowledge that will help us to help patients cope with their situations of chronic illness. However, our knowledge bank is deficient due to the scarcity of inquiry that takes the affected person's point of view as its central focus. Aim: The aim of this study was to describe patients' experiences of living with advanced heart failure. Methods: The study sample ( N = 9) consisted of male ( N = 6) and female ( N = 3) patients with advanced (NYHA classes III–IV) heart failure. The design was qualitative and open unstructured interviews were audio-taped and transcribed verbatim during 2006. Results: Four main themes emerged: Living in the Shadow of Fear; Running on Empty; Living a Restricted life; and Battling the System. The experience of living with advanced heart failure was described as a fearful and tired sort of living characterised by escalating impotence and dependence. Conclusions: The findings suggest that there may be an illogical but enduring ethos of ‘cure’ pervading health care worker's attitudes to advanced heart failure care. This mindset might be working to hinder the application of additional or alternative therapies, which might better palliate the physical and psychosocial distress of patients.


2016 ◽  
Vol 22 (8) ◽  
pp. S134
Author(s):  
Sudha P. Jaganathan ◽  
Maggie Martino ◽  
Kim Arthur ◽  
Stephanie Dunlap

2018 ◽  
Vol 6 (9) ◽  
pp. 780-789 ◽  
Author(s):  
Laura P. Gelfman ◽  
Yolanda Barrón ◽  
Stanley Moore ◽  
Christopher M. Murtaugh ◽  
Anuradha Lala ◽  
...  

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