scholarly journals Virological and Social Outcomes of HIV-Infected Adolescents and Young Adults in The Netherlands Before and After Transition to Adult Care

2016 ◽  
Vol 63 (8) ◽  
pp. 1105-1112 ◽  
Author(s):  
Annouschka M. Weijsenfeld ◽  
Colette Smit ◽  
Sophie Cohen ◽  
Ferdinand W. N. M. Wit ◽  
Michelle Mutschelknauss ◽  
...  
Keyword(s):  
Young Adults ◽  
The Netherlands ◽  
Social Outcomes ◽  
Adolescents And Young Adults ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Before And After

Transfer versus Transition: Success in Pediatric Transplantation Brings the Welcome Challenge of Transition

2005 ◽  
Vol 15 (4) ◽  
pp. 363-370 ◽  
Author(s):  
Laura Stabile ◽  
Lynette Rosser ◽  
Karen M. Porterfield ◽  
Sonia McCauley ◽  
Cecile Levenson ◽  
...  
Keyword(s):  
Young Adults ◽  
Medical Center ◽  
Solid Organ Transplantation ◽  
Transition Process ◽  
Adolescents And Young Adults ◽  
Transition To Adult Care ◽  
Solid Organ ◽  
Adult Care ◽  
Early Introduction ◽  
Pediatric Transplantation

Context Increasing success with solid organ transplantation in children has increased the numbers of adolescents and young adults who are at an age to transfer to adult healthcare. Objective To determine the nature of transfer/transition of adolescents and young adults to adult healthcare. Design Using a qualitative approach, 24 young adults provided answers to 12 questions about their transfer to adult healthcare. Responses were compared to identify themes. Setting Subjects had been pediatric patients at Children's Hospital of Pittsburgh. Most were transferred to the University of Pittsburgh Medical Center. Patients The subjects had received, or were on the list to receive, solid organ transplants and had been transferred within 18 months of the study. Results Twenty-four of 37 potential subjects completed interviews. Those who participated were enthusiastic about making a contribution to the transfer process. Most subjects cited difficulty leaving the pediatric system. Challenges included abrupt transfers, insufficient communication between pediatric and adult specialty providers, and becoming “lost to follow-up.” However, there was a consistent, clear statement that subjects preferred being treated as adults. They liked healthcare staff addressing them instead of their parents, being spoken to in an adult manner, and being responsible for their own care. Suggestions for improvement included early introduction of the concept of transition to adult care, providing written material about the transition process, and use of pediatric/adult social work collaboration to provide support for young adults in transition.

Transition from a renal paediatric clinic to an adult clinic: Perspectives of adolescents and young adults, parents and health professionals

2021 ◽  
pp. 136749352110284
Author(s):  
Kimberley Crawford ◽  
Jac Kee Low ◽  
Amelia K Le Page ◽  
William Mulley ◽  
Rosemary Masterson ◽  
...  
Keyword(s):  
Young Adults ◽  
Health Professionals ◽  
Transitional Care ◽  
Transition Process ◽  
Adolescents And Young Adults ◽  
Transition To Adult Care ◽  
Adult Health ◽  
Structured Interviews ◽  
Adult Care ◽  
Health Services Need

The management of chronic kidney disease is complex. With disease management being the responsibility of parents in the paediatric renal clinic, the responsibility is gradually shifted to adolescents and young adults during the transition to adult care. This multi-perspective qualitative study aimed to explore the experiences of adolescents and young adults, their parents and health professionals to gain an insight into transitional care. Focussing on the transition process and transfer to adult care, 18 adolescents and young adults and eight mothers participated in individual semi-structured interviews. Additionally, three focus groups were conducted with 20 multidisciplinary health professionals. Data were transcribed verbatim and analysed thematically. Similar responses from adolescents and young adults and mothers included the reluctance to leave the paediatric health service. Mothers found the transition to adult care more challenging than the adolescents and young adults. While health professionals acknowledged that engaging adolescents and young adults in their own care was challenging, they believed parents had an important role in facilitating their child’s independence. This study highlights that health professionals in both paediatric and adult health services need to work collaboratively. However, importantly, health professionals need to be mindful that parents require an equal amount of engagement as adolescents and young adults, if not more, to mitigate parental barriers in achieving a successful transfer.

scholarly journals Assessment of Health Literacy and Self-reported Readiness for Transition to Adult Care Among Adolescents and Young Adults With Spina Bifida

2021 ◽  
Vol 4 (9) ◽  
pp. e2127034
Author(s):  
James T. Rague ◽  
Soojin Kim ◽  
Josephine A. Hirsch ◽  
Theresa Meyer ◽  
Ilina Rosoklija ◽  
...  
Keyword(s):  
Young Adults ◽  
Health Literacy ◽  
Spina Bifida ◽  
Adolescents And Young Adults ◽  
Transition To Adult Care ◽  
Adult Care

Readying Youth and Young Adults for Transition to Adult Care During Preventive Care Visits: New Clinician Toolkit

2018 ◽  
Vol 63 (6) ◽  
pp. 673-674 ◽  
Author(s):  
Patience H. White ◽  
Annie Schmidt ◽  
Margaret McManus ◽  
Charles E. Irwin
Keyword(s):  
Young Adults ◽  
Preventive Care ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Youth And Young Adults

scholarly journals Kinetic Gait Changes after Robotic Exoskeleton Training in Adolescents and Young Adults with Acquired Brain Injury

2020 ◽  
Vol 2020 ◽  
pp. 1-10
Author(s):  
Kiran K. Karunakaran ◽  
Naphtaly Ehrenberg ◽  
JenFu Cheng ◽  
Katherine Bentley ◽  
Karen J. Nolan
Keyword(s):  
Young Adults ◽  
Brain Injury ◽  
Therapeutic Effect ◽  
Acquired Brain Injury ◽  
Step Length ◽  
Gait Training ◽  
Adolescents And Young Adults ◽  
Motor Deficits ◽  
High Dose ◽  
Before And After

Background. Acquired brain injury (ABI) is one of the leading causes of motor deficits in children and adults and often results in motor control and balance impairments. Motor deficits include abnormal loading and unloading, increased double support time, decreased walking speed, control, and coordination. These deficits lead to diminished functional ambulation and reduced quality of life. Robotic exoskeletons (RE) for motor rehabilitation can provide the user with consistent, symmetrical, goal-directed repetition of movement, as well as balance and stability. Purpose. The goal of this preliminary prospective before and after study is to evaluate the therapeutic effect of RE training on the loading/unloading and spatial-temporal characteristics in adolescents and young adults with chronic ABI. Method. Seven participants diagnosed with ABI between the ages of 14 and 27 years participated in the study. All participants received twelve 45 minute sessions of RE gait training. The bilateral loading (linearity of loading and rate of loading), speed, step length, swing time, stance time, and total time were collected using Zeno™ walkway (ProtoKinetics, Havertown, PA, USA) before and after RE training. Results. Results from the study showed improved step length, speed, and an overall progression towards healthy bilateral loading, with linearity of loading showing a significant therapeutic effect ( p < 0.05 ). Conclusion. These preliminary results suggest that high dose, repetitive, consistent gait training using RE has the potential to induce recovery of function in adolescents and young adults diagnosed with ABI.

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