scholarly journals 7.10-P1The health care needs and life experiences of adult refugees in Canada: a comprehensive scoping review to identify unmet needs and barriers

2018 ◽  
Vol 28 (suppl_1) ◽  
Author(s):  
S Ghahari ◽  
S Morassaei ◽  
J Lui ◽  
S Nagra
Keyword(s):  
Health Care ◽  
Scoping Review ◽  
Unmet Needs ◽  
Life Experiences ◽  
Health Care Needs ◽  
Care Needs

Social media and peer-to-peer support for individuals with health care needs and their caregivers: a scoping review (Preprint)

2019 ◽  
Author(s):  
Katherine Kelly ◽  
Shelley Doucet ◽  
Alison Luke ◽  
Rima Azar ◽  
William Montelpare
Keyword(s):  
Health Care ◽  
Social Media ◽  
Peer Support ◽  
Scoping Review ◽  
Emotional Support ◽  
Peer To Peer ◽  
Health Care Needs ◽  
Care Providers ◽  
Care Needs ◽  
The Many

BACKGROUND Individuals with health care needs and their caregivers require substantial informational and emotional support. Providing this support is a major challenge for care providers, who are often not able to adequately address barriers and may not be aware of available services and programs. Online P2P support offers an accessible and inexpensive source of support; however, the breadth of these supports on social media has not been previously documented. OBJECTIVE This study was a scoping review of research examining the use of peer-to-peer support on social media by individuals with health care needs and their caregivers. METHODS This review used the PRISMA-SR method to search for articles from 1997 to 2019. RESULTS A total of 94 articles were included. Patients and caregivers use many social media websites for P2P interaction, including: Facebook (n = 19), Twitter (n = 7), and YouTube (n = 6). Providing and receiving informational and emotional support were important uses of social media for P2P support; however, the specific needs and experiences of patients and caregivers appeared to change as knowledge regarding the condition(s) improved. Despite the many benefits associated with participating in online P2P groups, concerns related to ethics, privacy, and the potential to spread misinformation are outlined as risks associated with its use. CONCLUSIONS This study revealed that patients and caregivers engage in P2P support on social media to receive informational and emotional support from peers, despite known risks and limitations. Social networking websites were revealed to be particularly suited for P2P support communication.

Interventions for Women Veterans with Mental Health Care Needs: Findings from a Scoping Review

2022 ◽  
pp. 1-12
Author(s):  
Jennifer Orshak ◽  
Lacey Alexander ◽  
Andrea Gilmore-Bykovskyi ◽  
Diane Lauver
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Scoping Review ◽  
Women Veterans ◽  
Health Care Needs ◽  
Care Needs

scholarly journals Which Children Are Not Getting Their Needs for Therapy or Mobility Aids Met? Data From the 2009–2010 National Survey of Children With Special Health Care Needs

2016 ◽  
Vol 96 (2) ◽  
pp. 222-231 ◽  
Author(s):  
Beth M. McManus ◽  
Laura A. Prosser ◽  
Mary E. Gannotti
Keyword(s):  
Health Care ◽  
Unmet Needs ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Factors Associated ◽  
Mobility Aids ◽  
Mobility Aid ◽  
Special Health

Background Pediatric rehabilitation therapy services and mobility aids have an important role in the health of children with special health care needs, and the Affordable Care Act (ACA) may increase coverage for these needs. Identifying the prevalence of and factors associated with therapy and mobility aid needs and unmet needs prior to the full implementation of the ACA will be useful for future evaluation of its impact. Objective The purpose of this study was to identify the prevalence of and factors associated with caregiver perceived needs and unmet needs for therapy or mobility aids among children with special health care needs living in the United States. Design A cross-sectional, descriptive, multivariate analysis was conducted. Methods The 2009–2010 National Survey of Children With Special Health Care Needs was used to identify a nationally representative sample of children with special health care needs with needs for therapy (weighted n=2,603,605) or mobility aids (weighted n=437,971). Odds of having unmet needs associated with child and family characteristics were estimated. Results Nearly 1 in 5 children with therapy needs had unmet needs, and nearly 1 in 10 children with mobility aid needs had unmet needs. Unmet needs were most strongly associated with how frequently the condition affected function and being uninsured in the previous year. Limitations Data were caregiver reported and not verified by clinical assessment. Survey data grouped physical therapy, occupational therapy, and speech therapy; analysis was not discipline specific. Conclusions This evidence serves as a baseline about the future impact of the ACA. Pediatric rehabilitation professionals should be aware that children with special health care needs whose condition more frequently affects function and who have insurance discontinuity may need more support to meet therapy or mobility aid needs.

scholarly journals Perceived Met and Unmet Health-Care Needs in a Community Population with Multiple Sclerosis

2012 ◽  
Vol 14 (1) ◽  
pp. 2-8 ◽  
Author(s):  
Scott B. Patten ◽  
Jeanne V.A. Williams ◽  
Dina H. Lavorato ◽  
David Terriff ◽  
Luanne M. Metz ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Unmet Needs ◽  
Care Seeking ◽  
Health Care Needs ◽  
Supportive Services ◽  
Care Needs ◽  
Health Related ◽  
Unmet Health Care Needs ◽  
Statistics Canada

Community-based studies are required to accurately describe the supportive services needed by people with multiple sclerosis (MS). Characteristics that influence (or result from) care-seeking may introduce bias into other types of studies. The Participation and Activity Limitation Survey (PALS) was a post-census survey conducted by Statistics Canada in association with a 2006 national census. The PALS collected data from a sample of 22,513 respondents having health-related impairments according to their census forms. The survey collected self-reported diagnostic data and obtained ratings for items assessing impairment as well as perceived met and unmet needs for care and support. It identified 245 individuals with MS, leading to an estimated (weighted) population prevalence of 0.2% (200 per 100,000). As expected, those with MS reported more-severe health problems than did those with other types of disability, particularly in the areas of mobility, dexterity, and cognition; they were also more likely to report having multiple caregivers. People with MS also reported more unmet health-care needs than did those with other forms of disability, particularly with respect to meal preparation, housework, shopping, and chores. Despite their more negative health status and greater reliance on caregivers, people with MS reported participation in society comparable to that of people without MS. Thus, people with MS report greater needs than do people with other forms of health-related disability and utilize supportive services more often. However, they also report higher levels of unmet needs. The substantial needs of people with MS are only partially addressed by existing services.

scholarly journals Unmet Health Care Needs among Cancer Patients in Baghdad, National Centre for Cancer Diseases in 2018.

2020 ◽  
Vol 2 (1) ◽  
pp. 32-41
Author(s):  
Mustafa Majid ◽  
Sara Ahmad ◽  
Ali Abdulmortafea ◽  
Manwar Al-Naqqash
Keyword(s):  
Health Care ◽  
Cancer Patients ◽  
Medical Information ◽  
Unmet Needs ◽  
Family Doctor ◽  
Health Care Needs ◽  
Care Needs ◽  
National Centre ◽  
Unmet Health Care Needs ◽  
Cancer Diseases

Background: Identifying the unmet health care needs of cancer patients represents the first step in making health care provided to these patients better. Being able to accurately estimate the extent of these unmet needs and whether there are certain factors affecting their prevalence and distribution can give helpful information to healthcare providers guiding them on how to solve these problems. This study aims to identify the unmet health care needs and find out whether there is a possible association between theses unmet needs and some demographic factors such as age gender and occupation. Patients and Methods: A cross-sectional study was conducted on 200 cancer patients in The National Centre for cancer diseases in Baghdad selected by convenient sampling. The data was collected by interviewing patients with a preformed questionnaire (SUNS questionnaire, Access and Continuity Domain). Data was analyzed by using SPSS v20. Results: The highest prevalence of unmet needs was related to having family doctor items, while the lowest was related to having access to the patients’ medical information when planning services for them. 30.34% of a sample of patients were fully satisfied with the National Center for cancer diseases and said that there are no changes needed to be done while 17.39% complained about the unavailability of therapy at the center. Conclusion: This Study reveals that there is a low level of unmet needs among cancer patients indicating a good quality of provided care in the center with highest unmet needs for the family doctor and lowest for accessibility of health team to medical files and information. Keywords: Cancer, Unmet Needs, Health Care

scholarly journals Use of Synchronous Digital Health Technologies for the Care of Children With Special Health Care Needs and Their Families: Scoping Review (Preprint)

2019 ◽  
Author(s):  
Marissa Bird ◽  
Lin Li ◽  
Carley Ouellette ◽  
Kylie Hopkins ◽  
Michael H McGillion ◽  
...  
Keyword(s):  
Health Care ◽  
Scoping Review ◽  
Digital Health ◽  
Special Health Care Needs ◽  
Health Programs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Health Technologies ◽  
Special Health

BACKGROUND Use of synchronous digital health technologies for care delivery to children with special health care needs (having a chronic physical, behavioral, developmental, or emotional condition in combination with high resource use) and their families at home has shown promise for improving outcomes and increasing access to care for this medically fragile and resource-intensive population. However, a comprehensive description of the various models of synchronous home digital health interventions does not exist, nor has the impact of such interventions been summarized to date. OBJECTIVE We aim to describe the various models of synchronous home digital health that have been used in pediatric populations with special health care needs, their outcomes, and implementation barriers. METHODS A systematic scoping review of the literature was conducted, guided by the Arksey and O’Malley Scoping Review Framework. MEDLINE, CINAHL, and EMBASE databases were searched from inception to June 2018, and the reference lists of the included systematic reviews and high-impact journals were hand-searched. RESULTS A total of 38 articles were included in this review. Interventional articles are described as feasibility studies, studies that aim to provide direct care to children with special health care needs, and studies that aim to support family members to deliver care to children with special health care needs. End-user involvement in the design and implementation of studies is evaluated using a human-centered design framework, and factors affecting the implementation of digital health programs are discussed in relation to technological, human, and systems factors. CONCLUSIONS The use of digital health to care for children with special health care needs presents an opportunity to leverage the capacity of technology to connect patients and their families to much-needed care from expert health care providers while avoiding the expenses and potential harms of the hospital-based care system. Strategies to scale and spread pilot studies, such as involving end users in the co-design techniques, are needed to optimize digital health programs for children with special health care needs.

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