scholarly journals COVID-19 and the Long-Term Care Ombudsman Program: Findings From a National Study

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 87-87
Author(s):  
Lori Smetanka ◽  
Chenguang Du ◽  
Pamela Teaster ◽  
Kathryn Ratliff
Keyword(s):  
Research Team ◽  
Long Term Care ◽  
National Study ◽  
Term Care ◽  
Study Team ◽  
The Media ◽  
State And Local

Abstract The purpose of our study was to explore changes for long-term care ombudsman programs across the country in response to the COVID-19 pandemic. The study team explored the effect of COVID-19 on programs: cases, resident engagement, complaint Investigation and resolution, services, complaints, changes in visitation, and preparedness plans. The research team developed survey items and beta-tested them with state and local LTCOs prior to distributing the survey nationally to State Long-Term Care Ombudsman and Local Long-Term Care Ombudsman in order to characterize experiences of the participants. From 62 state LLTC respondents we learned there were 81.0% fewer cases received, 97.36% were less able to engage with residents, 78.95% were less involved in the engagement of residents in complaint investigation and resolution and there were 71.05% fewer activities involved in investigations. Not surprisingly, there was an 80.0% increase in information that the LTCO provided to the media.

scholarly journals THE STUDY OF AGING A SEARCH FOR MEANINGFUL PATIENT AND PUBLIC INVOLVEMENT IN GERONTOLOGICAL QUALITATIVE DATA ANALYSIS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S802-S803
Author(s):  
Barbara Hanratty ◽  
Rachel Stocker ◽  
Katie Brittain
Keyword(s):  
Data Analysis ◽  
Research Team ◽  
Qualitative Data ◽  
Public Involvement ◽  
Long Term Care ◽  
Patient And Public Involvement ◽  
Term Care ◽  
The Public ◽  
Care Research

Abstract Patients and the public are involved in health and social care research more than ever before. Much effort has been put into developing patient and public involvement (PPI), and promoting co-production of research with patients and the public. Yet there is little guidance for researchers on how to involve PPI partners in the research process, or how involvement can be judged as meaningful. This presentation has its origins in the attempts of one research team to question and navigate a way of involving PPI in long term care research. In this presentation, we describe our model of collaborative qualitative data analysis with PPI partners, in a study exploring primary care services for older adults living in long-term care facilities in England. Anonymised interview transcript excerpts were presented in written, audio, and role-play format to our PPI partners. PPI partners derived meaning from interview data, identifying, confirming and critiquing emerging themes. Their input at this critical stage of the study deepened our initial analysis and prompted the research team to new and different interpretations of the data. This talk addresses ways of engaging PPI partners in innovative ways during data analysis, and offers other researchers some questions, challenges and potential principles for effective practice. We conclude that in areas such as long term care, with multiple stakeholders and a dynamic environment, effective PPI may be flexible, messy and difficult to define.

scholarly journals Advance Directives State Requirements, Center Practices, and Participant Prevalence in Adult Day Services Centers: Findings From the 2016 National Study of Long-Term Care Providers

2020 ◽  
Author(s):  
Jessica Penn Lendon ◽  
Christine Caffrey ◽  
Denys T Lau
Keyword(s):  
Advance Directives ◽  
Long Term Care ◽  
National Study ◽  
Care Providers ◽  
Term Care ◽  
Adult Day Services ◽  
Advance Care ◽  
Day Services ◽  
State Requirement

Abstract Objectives Adult day services centers (ADSCs) may serve as an entrée to advance care planning. This study examined state requirements for ADSCs to provide advance directives (ADs) information to ADSC participants, ADSCs’ awareness of requirements, ADSCs’ practice of providing AD information, and their associations with the percentage of participants with ADs. Methods Using the 2016 National Study of Long-Term Care Providers, analyses included 3,305 ADSCs that documented ADs in participants’ files. Bivariate and linear regression analyses were conducted. Results Nine states had a requirement to provide AD information. About 80.8% of ADSCs provided AD information and 41.3% of participants had documented ADs. There were significant associations between state requirements, awareness, and providing information with AD prevalence. State requirement was mediated by awareness. Discussion This study found many ADSCs provided AD information, and ADSCs that thought their state had a requirement and provided information was associated with AD prevalence, regardless of state requirements.

Modeling trajectories of long-term care needs at old age: A Japanese-Swedish comparison

2017 ◽  
Vol 3 (1) ◽  
pp. 79 ◽  
Author(s):  
Marten Lagergren ◽  
Noriko Kurube ◽  
Yasuhiko Saito
Keyword(s):  
Long Term Care ◽  
Transition Probabilities ◽  
Functional Limitations ◽  
Matrix Multiplication ◽  
National Study ◽  
Initial State ◽  
Term Care ◽  
Future State ◽  
Over Time

A simulation model has been developed, which looks at the future state of functional limitations and provision of long-term care from the individual’s point of view and compares the prospects of Japanese and Swedish old persons. The model calculates the distribution on level of functional limitations combined with level of long-term care (LTC) for a 78-year-old man or woman after 3, 6, 9, 12 and 15 years given the initial state expressed in those terms. Longitudinal data for the model has been taken from the Nihon University Japanese Longitudinal Study of Aging (NUJLSOA) study, two waves three years apart, and the Swedish National Study of Aging and Care (SNAC) study, baseline and three-year follow up. Transition probabilities are calculated by relating individual states between waves. Changes over time are then calculated in the model by matrix multiplication using the Markov assumption. The results are in most respects similar for Japan and Sweden. A difference is that institutional care in Sweden is a much more definite stage reflecting differences in end-of-life care policy. Future state and mortality depends to a great degree on the initial state, both in terms of dependency and level of LTC. Thus, 78-year-old people who have no functional dependency and no LTC have a much higher probability of surviving the coming 10–15 years than people of the same age who already are dependent and in need of LTC services. Not a few of the initially independent 78-year-old persons will retain that state even after 15 years. However, the effect of the initial state seems to decrease over time.

Multiple perspectives on quality of life for residents with dementia in long term care facilities: protocol for a comprehensive Australian study

2015 ◽  
Vol 27 (10) ◽  
pp. 1739-1747 ◽  
Author(s):  
Elizabeth Beattie ◽  
Maria O’Reilly ◽  
Wendy Moyle ◽  
Lynn Chenoweth ◽  
Deirdre Fetherstonhaugh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Long Term Care ◽  
Self Report ◽  
Care Staff ◽  
National Study ◽  
Term Care ◽  
People With Dementia ◽  
Care Facilities

ABSTRACTBackground:Dementia is a chronic illness without cure or effective treatment, which results in declining mental and physical function and assistance from others to manage activities of daily living. Many people with dementia live in long term care facilities, yet research into their quality of life (QoL) was rare until the last decade. Previous studies failed to incorporate important variables related to the facility and care provision or to look closely at the daily lives of residents. This paper presents a protocol for a comprehensive, multi-perspective assessment of QoL of residents with dementia living in long term care in Australia. A secondary aim is investigating the effectiveness of self-report instruments for measuring QoL.Methods:The study utilizes a descriptive, mixed methods design to examine how facility, care staff, and resident factors impact QoL. Over 500 residents with dementia from a stratified, random sample of 53 facilities are being recruited. A sub-sample of 12 residents is also taking part in qualitative interviews and observations.Conclusions:This national study will provide a broad understanding of factors underlying QoL for residents with dementia in long term care. The present study uses a similar methodology to the US-based Collaborative Studies of Long Term Care (CS-LTC) Dementia Care Study, applying it to the Australian setting.

Long-Term Care Planning, Preparedness, and Response Among Rural Long-Term Care Providers

2020 ◽  
pp. 1-4
Author(s):  
Tiffany A. Radcliff ◽  
Jennifer A. Horney ◽  
Aram Dobalian ◽  
Blanca O. Macareno ◽  
Umar Y. Kabir ◽  
...  
Keyword(s):  
Rural Communities ◽  
Rural Areas ◽  
Long Term Care ◽  
Local Level ◽  
Federal State ◽  
Care Providers ◽  
Term Care ◽  
State And Local ◽  
Communication And Coordination

Abstract Objective: Rural Long-term Care (LTC) providers face unique challenges when planning, preparing for, and responding to disasters. We sought to better understand challenges and identify best practices for LTC in rural areas. Methods: Case studies including key informant interviews and site visits were conducted with LTC staff and emergency planning, preparedness, and response partners in three rural communities. Themes were identified across sites using inductive coding. Results: Communication across disaster phases continues to be a challenge for LTC providers in rural communities for all disaster types. Communication challenges limit LTC providers’ ability to address patient needs during emergencies and limit the resilience of providers and patients to future disasters. Limited coordination among local leadership and LTC providers prevents dissemination of information, resources, and services, and slows response and recovery time. Including LTC providers as stakeholders in planning and exercises may improve communication and coordination. Conclusion: More than two decades into efforts to increase preparedness of health care systems to all hazards, rural LTC facilities still face challenges related to communication and coordination. Agencies at the federal, state, and local level should include input from rural LTC stakeholders to address gaps in communication and coordination and increase their disaster resilience.

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