scholarly journals WHAT MATTERS AT END OF LIFE: EARLY RESULTS RELATED TO GOALS FOR CHRONIC ILLNESS CARE

2015 ◽  
Vol 55 (Suppl_2) ◽  
pp. 216-217
Keyword(s):  
Chronic Illness ◽  
End Of Life ◽  
Chronic Illness Care ◽  
Early Results ◽  
What Matters

Respecting and Promoting Patient Autonomy in Research, End-of-Life Care, and Chronic Illness Care

2016 ◽  
Author(s):  
Mark D. Sullivan
Keyword(s):  
Informed Consent ◽  
Chronic Illness ◽  
Clinical Research ◽  
End Of Life ◽  
End Of Life Care ◽  
Patient Autonomy ◽  
Chronic Illness Care ◽  
Life Care ◽  
General Ability ◽  
A Value

Bioethics teaches us to respect patients as persons by respecting their decisional autonomy. We respect patient autonomy by seeking patients’ informed consent, a policy was first developed for clinical research, where it has worked reasonably well. In other areas, most notably end-of-life care, it has not worked as well. Respecting patient autonomy is not adequate respect for them as ill persons. Rather than opposing physician beneficence and patient autonomy, as is customary in bioethics, we should consider the promotion of patient autonomy as a part of physician beneficence. This recasts the conflict between beneficence and autonomy as the conflict between respecting and promoting patient autonomy. This autonomy needs to be understood not just as the ability to make decisions but also as the general ability to do and be things of value (i.e. agency). This autonomy is not just a value that qualifies care, but is a goal of care.

scholarly journals Self-compassion as predictor of daily physical symptoms and chronic illness across older adulthood

2021 ◽  
pp. 135910532110023
Author(s):  
Heather Herriot ◽  
Carsten Wrosch
Keyword(s):  
Older Adults ◽  
Longitudinal Study ◽  
Chronic Illness ◽  
End Of Life ◽  
Old Age ◽  
Physical Symptoms ◽  
Older Adulthood ◽  
Self Compassion ◽  
Early Old Age

This study examined whether self-compassion could benefit daily physical symptoms and chronic illness in early and advanced old age. The hypotheses were evaluated in a 4-year longitudinal study of 264 older adults. Results showed that self-compassion predicted lower levels of daily physical symptoms across the study period in advanced, but not early, old age ( T-ratio = −1.93, p = 0.05). In addition, self-compassion was associated with fewer increases in chronic illness in advanced, but not early, old age ( T-ratio = − 2.45, p < 0.02). The results of this study suggest that self-compassion may be particularly adaptive towards the end of life.

scholarly journals Exploring the impact of pharmacist comprehensive annual care plans on perceived quality of chronic illness care by patients in Alberta, Canada

2021 ◽  
pp. 171516352110203
Author(s):  
Candace Necyk ◽  
Jeffrey A. Johnson ◽  
Ross T. Tsuyuki ◽  
Dean T. Eurich
Keyword(s):  
Quality Of Care ◽  
Chronic Illness ◽  
Care Plan ◽  
Short Version ◽  
Chronic Illness Care ◽  
Online Questionnaire ◽  
Care Plans ◽  
Funding Program ◽  
The Impact

Background: In 2012, the Government of Alberta introduced a funding program to remunerate pharmacists to develop a comprehensive annual care plan (CACP) for patients with complex needs. The objective of this study is to explore patients’ perceptions of the care they received through the pharmacist CACP program in Alberta. Methods: We invited 3442 patients who received a pharmacist-billed CACP within the previous 3 months and 6888 matched controls across Alberta to complete an online questionnaire. The questionnaire consisted of the short version Patient Assessment of Chronic Illness Care (PACIC-11), with 3 additional pharmacy-specific assessment questions added. Additional questions related to health status and demographics were also included. Results: Overall, most patients indicated a low level of chronic illness care by pharmacists, with few differences noted between CACP patients and non-CACP controls. Of note, controls reported higher quality of care for 5 domains within the adapted PACIC-like tool compared with CACP patients ( p < 0.05 for all). Interestingly, only 79 (44%) of CACP patients reported that they had received a CACP, whereas only 192 (66%) of control patients reported that they did not receive a care plan. In a sensitivity analysis including only these respondents, individuals who received a CACP perceived a significantly higher quality of chronic illness care across all PACIC domains. Conclusion: Overall, chronic illness care incentivized by the pharmacist CACP program in Alberta is perceived to be moderate to low. When limited to respondents who explicitly recognized receiving the service or not, the perceptions of quality of care were more positive. This suggests that better implementation of CACP by pharmacists may be associated with improved quality of care and that some redesign is needed to engage patients more. Can Pharm J (Ott) 2021;154:xx-xx.

scholarly journals Seen through the patients’ eyes: Safety of chronic illness care

2017 ◽  
Vol 29 (7) ◽  
pp. 916-921 ◽  
Author(s):  
Melissa Desmedt ◽  
Mirko Petrovic ◽  
Jochen Bergs ◽  
Dominique Vandijck ◽  
Hubertus Vrijhoef ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Chronic Illness Care

scholarly journals Beyond Fighting Fires and Chasing Tails? Chronic Illness Care Plans in Ontario, Canada

2008 ◽  
Vol 6 (2) ◽  
pp. 146-153 ◽  
Author(s):  
G. Russell ◽  
P. Thille ◽  
W. Hogg ◽  
J. Lemelin
Keyword(s):  
Chronic Illness ◽  
Chronic Illness Care ◽  
Care Plans

End-Of-Life Care for the Dying Child: What Matters Most to Parents

2011 ◽  
Vol 27 (4) ◽  
pp. 279-286 ◽  
Author(s):  
Norbert J. Weidner ◽  
Marcella Cameron ◽  
Rebecca C. Lee ◽  
Judy McBride ◽  
Emily J. Mathias ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
What Matters

scholarly journals Autoeficacia y satisfacción de los usuarios con diabetes tipo 2 de un centro de salud chileno

2020 ◽  
Vol 11 (2) ◽  
Author(s):  
Carlos Alberto Fernández Silva ◽  
Betty Antiñirre Mansilla ◽  
Viviana Carolina De La Hoz Chávez
Keyword(s):  
Diabetes Mellitus ◽  
Chronic Illness ◽  
Chronic Illness Care ◽  
Patient Assessment ◽  
Diabetes Tipo 2

Introducción: La diabetes mellitus es un problema de salud pública que ocasiona afecciones biopsicosociales en los individuos que la padecen, conllevando a la necesidad de valorar aspectos que pueden incidir en su compensación tal como la autoeficacia y la satisfacción usuaria. Materiales y métodos: Se desarrolló una investigación cuantitativa de tipo correlacional que tuvo como referente el Modelo de Promoción de la Salud, y que incluyó  por muestreo aleatorio simple a 86 individuos con diabetes mellitus tipo 2, en quienes se pudo establecer su perfil, percepción de autoeficacia y satisfacción usuaria  a través del instrumento para la evaluación de autoeficacia en Diabetes tipo 2 (alfa de Cronbach de 0,85) y el PACIC(Patient Assessment of Chronic Illness Care) (alfa de Cronbach de 0,88). Resultados: Los usuarios en su mayoría son mujeres (65%), en etapa de adulto medio (65,1%), se perciben como autoeficaces(82,6%) y muestran satisfacción por el servicio ofrecido(76,7%), presentando descompensación metabólica (57%). Se pudo apreciar asociación entre la autoeficacia y el grupo etario (p=0,002), contar con pareja (p=0,029), la hemoglobina glicosilada (p=0,007) y el estado cognitivo de los adultos mayores (p=0,017), al igual que entre la satisfacción y el grupo etario (p=0,033), el sexo (<0,001), y la situación laboral (p=0,005). Discusión: El perfil establecido coincide con el reportado en otras publicaciones. La autoeficacia y satisfacción usuaria son aspectos que se relacionan con la compensación de los usuarios. Conclusiones: Se requiere potenciar aspectos como la autoeficacia y la satisfacción usuaria,  siendo pertinente la aplicación del Modelo de Promoción de la Salud. Como citar este artículo: Fernández-Silva Carlos Alberto, Antiñirre Mansilla Betty, De La Hoz Chávez Viviana Carolina. Autoeficacia y satisfacción de los usuarios con diabetes tipo 2 de un centro de salud chileno. Revista Cuidarte. 2020; 11(2): e933. http://dx.doi.org/10.15649/cuidarte.933

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