scholarly journals Living Well at the End of Life: Adapting Health Care to Serious Chronic Illness in Old Age

10.7249/wp137 ◽  
2003 ◽  
Author(s):  
Joanne Lynn ◽  
David Adamson
Keyword(s):  
Health Care ◽  
Chronic Illness ◽  
End Of Life ◽  
Old Age ◽  
Living Well

scholarly journals Self-compassion as predictor of daily physical symptoms and chronic illness across older adulthood

2021 ◽  
pp. 135910532110023
Author(s):  
Heather Herriot ◽  
Carsten Wrosch
Keyword(s):  
Older Adults ◽  
Longitudinal Study ◽  
Chronic Illness ◽  
End Of Life ◽  
Old Age ◽  
Physical Symptoms ◽  
Older Adulthood ◽  
Self Compassion ◽  
Early Old Age

This study examined whether self-compassion could benefit daily physical symptoms and chronic illness in early and advanced old age. The hypotheses were evaluated in a 4-year longitudinal study of 264 older adults. Results showed that self-compassion predicted lower levels of daily physical symptoms across the study period in advanced, but not early, old age ( T-ratio = −1.93, p = 0.05). In addition, self-compassion was associated with fewer increases in chronic illness in advanced, but not early, old age ( T-ratio = − 2.45, p < 0.02). The results of this study suggest that self-compassion may be particularly adaptive towards the end of life.

Post Your Journey: Instagram as a Support Community for People With Fibromyalgia

2018 ◽  
Vol 29 (2) ◽  
pp. 237-247 ◽  
Author(s):  
Ashley A. Berard ◽  
André P. Smith
Keyword(s):  
Health Care ◽  
Social Capital ◽  
Social Media ◽  
Content Analysis ◽  
Chronic Illness ◽  
Health Care Systems ◽  
Virtual Community ◽  
Widespread Pain ◽  
Care Systems ◽  
Media Applications

Fibromyalgia is a chronic illness with primary symptoms of widespread pain and fatigue. Social media applications have become a recent resource allowing individuals with fibromyalgia to interact in a virtual community devoted to the illness. This study explores how such a community develops and maintains itself on Instagram and the ways it creates social capital for its users. Data are derived from Instagram posts and open-ended questionnaires completed by users living with fibromyalgia who use the application. Using content analysis and semiotic methodology, the study analyzes the diverse ways in which users shared their experiences with fibromyalgia, the management of its symptoms, and issues encountered in accessing health care systems. Instagram aids in the development of a community by facilitating intimate and supportive interactions about the illness and the creation of personalized day-to-day narratives accessible to all. Norms of trust, acceptance, and reciprocity characterize the diversity of interactions in this community.

Mapping end-of-life and anticipatory medications in palliative care patients using a longitudinal general practice database

2021 ◽  
pp. 1-7
Author(s):  
H. Khalil ◽  
M. Garett ◽  
A. Byrne ◽  
P. Poon ◽  
K. Gardner ◽  
...  
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
General Practice ◽  
End Of Life ◽  
Nurse Practitioners ◽  
Hospital Admissions ◽  
Population Level ◽  
Screening Tools ◽  
Care Needs ◽  
Stakeholder Consultation

Abstract Objective End-of-life and anticipatory medications (AMs) have been widely used in various health care settings for people approaching end-of-life. Lack of access to medications at times of need may result in unnecessary hospital admissions and increased patient and family distress in managing palliative care at home. The study aimed to map the use of end-of-life and AM in a cohort of palliative care patients through the use of the Population Level Analysis and Reporting Data Space and to discuss the results through stakeholder consultation of the relevant organizations. Methods A retrospective observational cohort study of 799 palliative care patients in 25 Australian general practice health records with a palliative care referral was undertaken over a period of 10 years. This was followed by stakeholders’ consultation with palliative care nurse practitioners and general practitioners who have palliative care patients. Results End-of-life and AM prescribing have been increasing over the recent years. Only a small percentage (13.5%) of palliative care patients received medications through general practice. Stakeholders’ consultation on AM prescribing showed that there is confusion about identifying patients needing medications for end-of-life and mixed knowledge about palliative care referral pathways. Significance of results Improved knowledge and information around referral pathways enabling access to palliative care services for general practice patients and their caregivers are needed. Similarly, the increased utility of screening tools to identify patients with palliative care needs may be useful for health care practitioners to ensure timely care is provided.

scholarly journals Palliative Care as Response to Suffering at End of Life

2014 ◽  
Vol 6 (2) ◽  
pp. 227-245
Author(s):  
Daniela Moşoiu
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
End Of Life ◽  
Health Care System ◽  
Spiritual Distress ◽  
History Of Development ◽  
History Of ◽  
Hospice And Palliative Care ◽  
Care System

Abstract Persons suffering from chronic and life limiting illnesses often have unrelieved symptoms such as pain, depression, fatigue, and psychosocial and spiritual distress. In Romania they are frequently left in the care of their families with little support from the health care system. It seems a paradox that those who are the sickest persons in a country find little place in the health care system. This article presents palliative care as a solution to the suffering for these patients and their families by describing the concept, models of services, its beneficiaries and benefits and presenting the history of development of hospice and palliative care worldwide and in Romania.

scholarly journals Interpretation for Discussions about End-of-Life Issues: Results from a National Survey of Health Care Interpreters

2012 ◽  
Vol 15 (9) ◽  
pp. 1019-1026 ◽  
Author(s):  
Yael Schenker ◽  
Alicia Fernandez ◽  
Kathleen Kerr ◽  
David O'Riordan ◽  
Steven Z. Pantilat
Keyword(s):  
Health Care ◽  
End Of Life ◽  
National Survey ◽  
Life Issues ◽  
End Of Life Issues
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