scholarly journals QLIF-44. SLEEP DISTURBANCE IN ADULTS WITH PRIMARY BRAIN TUMORS AND THEIR FAMILY CAREGIVERS

2017 ◽  
Vol 19 (suppl_6) ◽  
pp. vi210-vi210
Author(s):  
Lin Lin ◽  
Lung-Chang Chien ◽  
Kathryn Lee ◽  
Steven Paul ◽  
Christine Miaskowski
Keyword(s):  
Brain Tumors ◽  
Sleep Disturbance ◽  
Family Caregivers ◽  
Primary Brain Tumors

scholarly journals QOLP-41. ASSESSING CAREGIVERS’ OF PATIENTS WITH PRIMARY BRAIN TUMORS EXPERIENCES WITH AND NEEDS RELATED TO SEIZURE MANAGEMENT

2019 ◽  
Vol 21 (Supplement_6) ◽  
pp. vi207-vi207
Author(s):  
Paula Warren ◽  
Deborah Ejem ◽  
Richard Taylor ◽  
Rebecca Edwards ◽  
James Dionne-Odom ◽  
...  
Keyword(s):  
Brain Tumors ◽  
Family Caregivers ◽  
College Graduates ◽  
Care Recipient ◽  
Full Time ◽  
Predominately White ◽  
Primary Brain Tumors ◽  
Other Information ◽  
Qualitative Descriptive ◽  
Written Materials

Abstract Family caregivers of persons with primary brain tumors report high levels of distress. Information is limited, however, regarding family caregivers’ experiences and needs concerning the risk and management of seizures in this population. In this qualitative descriptive study, we conducted one-on-one interviews to describe the experiences of family caregivers’ of persons with primary brain tumors who have had and who have not yet had a seizure. We sought information on how they coped with this issue and what information they needed regarding management of out-of-the-hospital seizures. We conducted 15 interviews using study-specific interview protocols; 10 caregivers with seizure experience and 5 caregivers without seizure experience. Caregivers were, on average, 52 years old, predominately white (93.3%), college graduates (66.7%), and were employed full-time (53.3%). The relationship between caregiver and care recipient was spouse (46.7%), other family member (46.7%), and friend (6.6%). Most caregivers provided care everyday (46.7%) and for more than 8 hours per day (33.3%). Themes emerged around three major domains: 1) caregiver challenges regarding seizures, 2) desired resources/information about seizures, and 3) timing of delivery of these resources. Caregivers often reported being fearful of seizures and the majority (93%) expressed difficulty with knowing when to call EMS. In terms of desired resources, opinions were split between preferring written materials versus online resources with most participants (87%) stating that videos or graphics detailing seizures would be helpful. In terms of delivery timing, most (66.7%) thought that training should come after diagnosis versus at the time of diagnosis citing reasons such as too much other information to absorb and overall inability to focus. Future studies will use this information to develop and pilot a seizure-focused supportive caregiver intervention that is tailored and caregiver-directed and that can be incorporated into standard neuro-oncology clinical practice.

scholarly journals Use of telehealth platforms for delivering supportive care to adults with primary brain tumors and their family caregivers: A systematic review

2020 ◽  
Author(s):  
Tamara Ownsworth ◽  
Raymond J. Chan ◽  
Stephanie Jones ◽  
Julia Robertson ◽  
Mark B. Pinkham
Keyword(s):  
Systematic Review ◽  
Brain Tumors ◽  
Supportive Care ◽  
Family Caregivers ◽  
Primary Brain Tumors

Pathologic Analysis of Primary Brain Tumors

1985 ◽  
Vol 3 (4) ◽  
pp. 711-728 ◽  
Author(s):  
Rodney D. McComb ◽  
Peter C. Burger
Keyword(s):  
Brain Tumors ◽  
Primary Brain Tumors ◽  
Pathologic Analysis

Use of Fluorescence to Guide Resection or Biopsy of Primary Brain Tumors and Brain Metastases

2014 ◽  
Vol 75 (S 02) ◽  
Author(s):  
S. Marbacher ◽  
E. Klinger ◽  
L. Schwzer ◽  
I. Fischer ◽  
E. Nevzati ◽  
...  
Keyword(s):  
Brain Tumors ◽  
Brain Metastases ◽  
Primary Brain Tumors

Programmed Cell Death Ligand 1 and Venous Thromboembolism in Patients with Primary Brain Tumors

2019 ◽  
Author(s):  
P. Seyed Mir ◽  
A.-S. Berghoff ◽  
M. Preusser ◽  
G. Ricken ◽  
J. Riedl ◽  
...  
Keyword(s):  
Cell Death ◽  
Venous Thromboembolism ◽  
Programmed Cell Death ◽  
Brain Tumors ◽  
Primary Brain Tumors
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