Are globals for health, well-being and quality of life interchangeable? A mixed methods study in ankylosing spondylitis patients and controls

Abstract BackgroundOverweight and obesity are public concerns with risk of adverse health outcomes. Health-related quality of life (HRQoL) is lower in adolescents than children in general. An increase in body mass index (BMI) is associated with a decrease in HRQoL. The purpose of this study was to measure and explore the HRQoL among adolescents with overweight or obesity who had participated in an intervention study with the aim of increasing PA, reducing BMI and promoting HRQoL.Methods Mixed methods, with a convergent design, were used to investigate how different methodological approaches could expand our understanding of the adolescents’ HRQoL. Quantitative post-intervention data on HRQoL were collected among the 84 intervention participants, aged 13–14 years, using the KIDSCREEN 52 questionnaire. The data were compared with a Norwegian reference population of 244 individuals, and analysed using a non-parametric Mann-Whitney test. Qualitative semi-structured interviews were conducted with 21 adolescents from the intervention. A directed approach to content analysis was adopted, using the ten sub-scales from KIDSCREEN 52.ResultsHRQoL in the intervention sample was significantly reduced on the sub-scale of physical well-being compared to the reference population. The reference population scored significantly lower than the intervention sample on the sub-scale of parent relation and home life. No significant differences were found on the other sub-scales. The qualitative data supported the quantitative findings on the sub-scale of physical well-being, but showed that perceptions of fitness, energy level or health could vary. Regarding parent relations, the interviewees extended this to include relationships to other family members as equally important. Most of the interviewees expressed a negative view of their bodies, but not their clothing or accessories. This may explain why no statistically significant differences were found on these aspects in the results from the KIDSCREEN questionnaire. ConclusionThe use of the KIDSCREEN 52 instrument gave important indications about the adolescents’ HRQoL. Combining methods enabled a comprehensive approach to research on HRQoL, indicating better ways of providing help. More research using the benefits of mixed methods approaches is needed to further elucidate these findings.

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Health-related quality of life and needs of care and support of adult Tanzanians with cancer: a mixed-methods study

Health and Quality of Life Outcomes ◽

10.1186/1477-7525-10-133 ◽

2012 ◽

Vol 10 (1) ◽

pp. 133 ◽

Cited By ~ 9

Author(s):

Golden M Masika ◽

Lena Wettergren ◽

Thecla W Kohi ◽

Louise von Essen

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Mixed Methods Study ◽

Health Related Quality ◽

Care And Support ◽

Related Quality ◽

Health Related

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Perceptions of Stress, Mindfulness, and Occupational Engagement Among Graduate-Level OT Students

American Journal of Occupational Therapy ◽

10.5014/ajot.2021.75s2-rp140 ◽

2021 ◽

Vol 75 (Supplement_2) ◽

pp. 7512505140p1-7512505140p1

Author(s):

Patricia A. Henton ◽

Acacia Gambrel ◽

Jerome Klah ◽

Catherine Rink ◽

Caroline Targonski ◽

...

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Graduate Students ◽

Coping Strategies ◽

Mixed Methods Study ◽

Coping Mechanism ◽

Occupational Engagement ◽

Graduate Level ◽

Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The exploratory mixed-methods study of 490 OT graduate students revealed that high levels of reported stress along with limited coping strategies impacted students’ perceived occupational engagement and quality of life. Students identified mindfulness as an effective coping mechanism; however, its reported use did not appear to alter quality of life. The study supported a link between mindfulness and occupational engagement and has broad implications for the field of OT. Primary Author and Speaker: Patricia A. Henton Additional Authors and Speakers: Acacia Gambrel, Jerome Klah, Catherine Rink, Caroline Targonski, and Sarah Wirtz

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Quality of life among survivors of prolonged critical illness; a mixed methods study

Critical Care ◽

10.1186/cc6729 ◽

2008 ◽

Vol 12 (Suppl 2) ◽

pp. P508

Author(s):

P Ramsay ◽

G Huby ◽

A Thompson ◽

T Walsh

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Critical Illness ◽

Mixed Methods Study

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Health-related quality of life in adult CHD surgical patients in a low middle-income country: a mixed-methods study

Cardiology in the Young ◽

10.1017/s1047951120001663 ◽

2020 ◽

Vol 30 (8) ◽

pp. 1126-1137

Author(s):

Laila A. Ladak ◽

Robyn Gallagher ◽

Babar S. Hasan ◽

Khadija Awais ◽

Ahmed Abdullah ◽

...

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Mixed Methods Study ◽

Income Country ◽

Surgical Patients ◽

Health Related Quality ◽

Middle Income ◽

Related Quality ◽

Health Related

AbstractBackground and objectives:This mixed-methods study aimed to assess health-related quality of life in young adults with CHD following surgery in a low middle-income country, Pakistan. Despite the knowledge that geographic, cultural and socio-economic factors may shape the way health and illness is experienced and managed and consequently determine a person’s health-related quality of life, few health-related quality of life studies are conducted in low middle-income countries. This deficit is pronounced in CHD, so there is little guidance for patient care.Methods:The study utilised concurrent, mixed methods. Adults with CHD (n = 59) completed health-related quality of life surveys (PedsQLTM 4.0 Generic Core Scale, PedsQLTM Cognitive Functioning Scale and PedsQLTM 3.0 Cardiac Module). Semi-structured interview data were collected from a nested sub-sample of 17 participants and analysed using qualitative content analysis, guided by the revised Wilson–Cleary model of health-related quality of life.Results:The lowest health-related quality of life domain was emotional with the mean score (71.61 ± 20.6), followed by physical (78.81 ± 21.18) and heart problem (79.41 ± 18.05). There was no statistical difference in general or cardiac-specific health-related quality of life between mild, moderate or complex CHD. Qualitative findings suggested low health-related quality of life arose from a reduced capacity to contribute to family life including family income and gender. A sense of reduced marriageability and fear of dependency were important socio-cultural considerations.Conclusions:CHD surgical patients in this low-income country experience poor health-related quality of life, and contributing factors differ to those reported for high-income countries. Socio-cultural understandings should underpin assessment, management and care-partnering with young adults with CHD following surgical correction.

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A mixed-methods pilot study of ‘LIFEView’ audiovisual technology: Virtual travel to support well-being and quality of life in palliative and end-of-life care patients

Palliative Medicine ◽

10.1177/0269216320918514 ◽

2020 ◽

Vol 34 (7) ◽

pp. 954-965

Author(s):

Monisha Kabir ◽

Jill L Rice ◽

Shirley H Bush ◽

Peter G Lawlor ◽

Colleen Webber ◽

...

Keyword(s):

Quality Of Life ◽

Palliative Care ◽

Mixed Methods ◽

Pilot Study ◽

Preliminary Data ◽

Psychological Symptoms ◽

Well Being ◽

Assessment System ◽

Spiritual Well Being

Background: There is evidence that psychosocial and spiritual interventions of short duration, such as reminiscence therapy, provide positive impacts on quality of life and emotional and existential well-being in adults receiving palliative care. Aim: To determine (1) the feasibility of integrating ‘LIFEView’, a video-based software with >1600 videos of world destinations, in palliative care settings, and (2) positive, neutral or harmful effects of using ‘LIFEView’ videos. Design: A mixed-methods pre–post intervention pilot study was conducted to collect feasibility and preliminary data on physical and psychological symptoms, physiological indicators, spiritual well-being and aspects of quality of life. Setting/participants: Adult patients on an inpatient palliative care unit or receiving care from a community palliative care consultation team who were capable of providing consent and completing the outcome measures were eligible participants. Results: Overall, 27/41 (66%) participants took part in the study. Feasibility criteria, including participant acceptability, low participant burden, tool completion rate and retention rate, were fulfilled, though challenges were experienced with recruitment. Modest improvements, though non-significant, were shown on preliminary data collected on physical and psychological symptoms using the Edmonton Symptom Assessment System–revised, spiritual well-being assessed by the 12-item Functional Assessment of Chronic Illness Therapy – Spiritual Well-Being scale and physiological measurements. Qualitative analysis revealed five themes: motivations for using ‘LIFEView’, perceptions of the technology, reminiscence, ‘LIFEView’ as an adaptable technology and ongoing or future use. Conclusion: A future adequately powered study to investigate the impacts of ‘LIFEView’ on patient well-being and quality of life appears to be feasible.

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