scholarly journals Quality of life among survivors of prolonged critical illness; a mixed methods study

Critical Care ◽  
2008 ◽  
Vol 12 (Suppl 2) ◽  
pp. P508
Author(s):  
P Ramsay ◽  
G Huby ◽  
A Thompson ◽  
T Walsh
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Critical Illness ◽  
Mixed Methods Study

SPLIT ENZ: Survivorship of Patients post Long Intensive care stay, Exploration/Experience in a New Zealand cohort (A mixed methods study protocol) (Preprint)

2021 ◽  
Author(s):  
Lynsey Sutton-Smith ◽  
Elliot Bell ◽  
Susanna Every-Palmer ◽  
Mark Weatherall ◽  
Paul Skirrow
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
New Zealand ◽  
Critical Illness ◽  
Unmet Needs ◽  
Mixed Methods Study ◽  
Long Term Outcomes ◽  
Published Research

BACKGROUND ‘Post Intensive Care Syndrome’ (PICS) was defined by the Society of Critical Care Medicine in 2012 with subsequent international research highlighting the poor long-term outcomes, reduced quality of life, and ongoing impairments, activity limitations, and participation restrictions for survivors of critical illness. However, to date, there has been no published research about long-term outcomes for New Zealand survivors of critical illness. OBJECTIVE This mixed methods study will be the first to explore long-term outcomes after critical illness in New Zealand. It will also be done in the context of the global COVID pandemic. The primary objectives are to describe and quantify symptoms and disability in survivors of critical illness, to explore possible risk factors for their development, and to identify longer-term unmet needs for those who survive for a year. METHODS This will be a mixed methods study. There will be a prospective cohort study of 100 critically ill patients followed up one, six- and 12-months after hospital discharge. The primary outcome for the cohort study will be disability assessed with the World Health Organization’s Disability Assessment Scale: WHODAS 2.0. Secondary outcomes will focus on mental health using the Hospital Anxiety and Depression scale (HADS) and the Impact of Events Scale-revised (IES-r), cognitive function using the Montreal Cognitive Assessment (MOCA- blind), and Health related Quality of Life by the EQ-5D-5L. A second element of the study will use qualitative grounded theory methods to explore patients’ experiences of recovery, highlight their unmet needs and develop a model of barriers and facilitators to coping. This will use a sample from the main cohort with interviews conducted six months after discharge. RESULTS This study has received full ethics approval from the New Zealand Northern A Health and Disability Ethics Committee on the 16/8/21 (21/NTA/107) and has been registered with ANZCTR on 5/10/21 (12621001335886). SPLIT ENZ is due to start recruitment in early 2022 and will continue recruitment for up to two years aiming to enroll approximately 125 patients. Data collection is estimated to be completed by 2024–20255 and will be published once all data is available for reporting. CONCLUSIONS Although International research identifies the prevalence of PICS and the extent of disability in survivors of critical illness there is no published research in New Zealand. Research in this field is particularly pressing in the context of COVID, an illness which may include PICS in its sequelae. To understand the extent of disability and the survival journey in New Zealand, would be of benefit not only to patients and families making sense of their recovery, but to clinicians and health care workers wanting to understand how best to support these patients once they have left hospital. CLINICALTRIAL Ethics ID: 21/NTA/107. Australia and New Zealand Clinical trials registration (ANZCTR) no: 1262100133588

Perceptions of Stress, Mindfulness, and Occupational Engagement Among Graduate-Level OT Students

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505140p1-7512505140p1
Author(s):  
Patricia A. Henton ◽  
Acacia Gambrel ◽  
Jerome Klah ◽  
Catherine Rink ◽  
Caroline Targonski ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Graduate Students ◽  
Coping Strategies ◽  
Mixed Methods Study ◽  
Coping Mechanism ◽  
Occupational Engagement ◽  
Graduate Level ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The exploratory mixed-methods study of 490 OT graduate students revealed that high levels of reported stress along with limited coping strategies impacted students’ perceived occupational engagement and quality of life. Students identified mindfulness as an effective coping mechanism; however, its reported use did not appear to alter quality of life. The study supported a link between mindfulness and occupational engagement and has broad implications for the field of OT. Primary Author and Speaker: Patricia A. Henton Additional Authors and Speakers: Acacia Gambrel, Jerome Klah, Catherine Rink, Caroline Targonski, and Sarah Wirtz

scholarly journals Are globals for health, well-being and quality of life interchangeable? A mixed methods study in ankylosing spondylitis patients and controls

Rheumatology ◽  
2018 ◽  
Vol 57 (9) ◽  
pp. 1555-1562 ◽  
Author(s):  
Astrid van Tubergen ◽  
Anouk Gulpen ◽  
Robert Landewé ◽  
Annelies Boonen
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Ankylosing Spondylitis ◽  
Well Being ◽  
Mixed Methods Study

Health-related quality of life in adult CHD surgical patients in a low middle-income country: a mixed-methods study

2020 ◽  
Vol 30 (8) ◽  
pp. 1126-1137
Author(s):  
Laila A. Ladak ◽  
Robyn Gallagher ◽  
Babar S. Hasan ◽  
Khadija Awais ◽  
Ahmed Abdullah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Income Country ◽  
Surgical Patients ◽  
Health Related Quality ◽  
Middle Income ◽  
Related Quality ◽  
Health Related

AbstractBackground and objectives:This mixed-methods study aimed to assess health-related quality of life in young adults with CHD following surgery in a low middle-income country, Pakistan. Despite the knowledge that geographic, cultural and socio-economic factors may shape the way health and illness is experienced and managed and consequently determine a person’s health-related quality of life, few health-related quality of life studies are conducted in low middle-income countries. This deficit is pronounced in CHD, so there is little guidance for patient care.Methods:The study utilised concurrent, mixed methods. Adults with CHD (n = 59) completed health-related quality of life surveys (PedsQLTM 4.0 Generic Core Scale, PedsQLTM Cognitive Functioning Scale and PedsQLTM 3.0 Cardiac Module). Semi-structured interview data were collected from a nested sub-sample of 17 participants and analysed using qualitative content analysis, guided by the revised Wilson–Cleary model of health-related quality of life.Results:The lowest health-related quality of life domain was emotional with the mean score (71.61 ± 20.6), followed by physical (78.81 ± 21.18) and heart problem (79.41 ± 18.05). There was no statistical difference in general or cardiac-specific health-related quality of life between mild, moderate or complex CHD. Qualitative findings suggested low health-related quality of life arose from a reduced capacity to contribute to family life including family income and gender. A sense of reduced marriageability and fear of dependency were important socio-cultural considerations.Conclusions:CHD surgical patients in this low-income country experience poor health-related quality of life, and contributing factors differ to those reported for high-income countries. Socio-cultural understandings should underpin assessment, management and care-partnering with young adults with CHD following surgical correction.

scholarly journals A mixed methods study of physical activity and quality of life in adolescents with Turner syndrome

2019 ◽  
Vol 182 (2) ◽  
pp. 386-396
Author(s):  
Talia Thompson ◽  
Brianna Zieba ◽  
Susan Howell ◽  
William Karakash ◽  
Shanlee Davis
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Mixed Methods ◽  
Turner Syndrome ◽  
Mixed Methods Study

scholarly journals A Mixed-Methods Study of Pain-related Quality of Life in Sickle Cell Vaso-Occlusive Crises

Hemoglobin ◽  
2015 ◽  
Vol 39 (5) ◽  
pp. 305-309 ◽  
Author(s):  
Richard J. Lin ◽  
Arthur T. Evans ◽  
Kerri Wakeman ◽  
Michelle Unterbrink
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Sickle Cell ◽  
Mixed Methods Study ◽  
Related Quality

scholarly journals Preference-based disease-specific health-related quality of life instrument for glaucoma: a mixed methods study protocol

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012732 ◽  
Author(s):  
Sergei Muratov ◽  
Dominik W Podbielski ◽  
Susan M Jack ◽  
Iqbal Ike K Ahmed ◽  
Levine A H Mitchell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

Social participation and quality-of-life of patients with traumatic brain injury living in the community: A mixed methods study

Brain Injury ◽  
2016 ◽  
Vol 30 (13-14) ◽  
pp. 1590-1598 ◽  
Author(s):  
Kaoruko Takada ◽  
Hironobu Sashika ◽  
Hidetaka Wakabayashi ◽  
Yoshio Hirayasu
Keyword(s):  
Quality Of Life ◽  
Traumatic Brain Injury ◽  
Mixed Methods ◽  
Brain Injury ◽  
Social Participation ◽  
Mixed Methods Study
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