The Malone Antegrade Continence Enema Procedure: Quality of Life and Family Perspective

2003 ◽  
pp. 320-323 ◽  
Author(s):  
ELIZABETH B. YERKES ◽  
MARK P. CAIN ◽  
SHELLY KING ◽  
TIMOTHY BREI ◽  
MARTIN KAEFER ◽  
...  
2003 ◽  
Vol 169 (1) ◽  
pp. 320-323 ◽  
Author(s):  
ELIZABETH B. YERKES ◽  
MARK P. CAIN ◽  
SHELLY KING ◽  
TIMOTHY BREI ◽  
MARTIN KAEFER ◽  
...  

2016 ◽  
Vol 6 (1) ◽  
pp. 28-31
Author(s):  
KM Didarul Islam ◽  
Md Ruhul Amin ◽  
Abu Saleh Md Oliullah ◽  
AKM Khairul Basher ◽  
Amitava Biswas ◽  
...  

Intractable fecal and urinary incontinence, often associated with myelomeningocele (MMC), usually prevents children from achieving physical and social independence. The Malone Antegrade Continence Enema (MACE) procedure, often performed in conjunction with a Mitrofanoff procedure to gain fecal & urinary continence, can help these patients to attain a better quality of life. In patients, who underwent the combined Mitrofanoff and MACE procedures simultaneously, the success rate is- 83% satisfactory for both bowel & urinary continence. With this procedure we report here, for the first time in Bangladesh, to the best of our knowledge, an association between two previously described techniques (the Mitrofanoff principle and MACE), that can solve the problem of dual incontinence in children with MMC. The case involved a 14 years old boy with total neurogenic feco-urinary incontinence following excision & repair of MMC at the age of 4 months. After the surgery, the boy is continent with normal renalfunction.J. Paediatr. Surg. Bangladesh 6(1): 28-31, 2015 (Jan)


2020 ◽  
pp. 105477382094798
Author(s):  
Leire Ambrosio ◽  
M Victoria Navarta-Sánchez ◽  
Ana Carvajal ◽  
Cristina Garcia-Vivar

Living with chronic illness has an impact on the family’s wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.


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