scholarly journals Effects of Familial Relationships on School Adjustment of Adolescents and Young Adults With Congenital Heart Disease

2022 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Youngji Moon ◽  
Jo Won Jung ◽  
Sunhee Lee
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
School Adjustment ◽  
Adolescents And Young Adults ◽  
Familial Relationships

Between invisible defects and visible impact: the life experiences of adolescents and young adults with congenital heart disease

2014 ◽  
Vol 71 (3) ◽  
pp. 599-608 ◽  
Author(s):  
Yueh-Tao Chiang ◽  
Chi-Wen Chen ◽  
Wen-Jen Su ◽  
Jou-Kou Wang ◽  
Chun-Wei Lu ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Life Experiences ◽  
Adolescents And Young Adults

Growing up with congenital heart disease: the dilemmas of adolescents and young adults

1998 ◽  
Vol 8 (3) ◽  
pp. 303-309 ◽  
Author(s):  
Elizabeth M. Tong ◽  
Patricia S.A. Sparacino ◽  
DeAnne K.H. Messias ◽  
Dru Foote ◽  
Catherine A. Chesla ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adolescents And Young Adults ◽  
Clinical Population ◽  
Subjective Experiences ◽  
Convenience Sample ◽  
Dependence Versus ◽  
Psychosocial Concerns

AbstactAdvances in diagnosis, medical management and surgical intervention have improved the longevity and quality of life for children with congenital heart disease. Despite this, research studies specifically examining the psychosocial concerns of adolescents and young adults with congenital heart disease are few. To explore the subjective experiences and dilemmas of this population during the transition from adolescence to young adulthood, we interviewed, using a semi-structured protocol, a convenience sample of nine adolescents and young adults. Using analytic procedures inherent in Grounded Theory methodology, seven themes were identified: the dilemma of normality; dilemmas in disclosure; dilemmas in strategies for management of illness; the challenge of social integration versus social isolation; the challenge of dependence versus independence; the challenge of uncertainty; and strategies for coping. An understanding of these experiences by health professionals can be beneficial in helping this clinical population as they grow up and face the challenges of an uncertain, yet promising, future.

Sports Participation and Quality of Life in Adolescents and Young Adults with Congenital Heart Disease

2014 ◽  
Vol 10 (2) ◽  
pp. 169-179 ◽  
Author(s):  
Peter N. Dean ◽  
Catherine W. Gillespie ◽  
Elizabeth Anne Greene ◽  
Gail D. Pearson ◽  
Adelaide S. Robb ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Sports Participation ◽  
Adolescents And Young Adults

scholarly journals Estimates of Life Expectancy by Adolescents and Young Adults With Congenital Heart Disease

2006 ◽  
Vol 48 (2) ◽  
pp. 349-355 ◽  
Author(s):  
Graham J. Reid ◽  
Gary D. Webb ◽  
Mor Barzel ◽  
Brian W. McCrindle ◽  
M. Jane Irvine ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Life Expectancy ◽  
Congenital Heart ◽  
Adolescents And Young Adults
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