scholarly journals Bloom syndrome in a Mexican American family with rhabdomyosarcoma: evidence of a Mexican founder mutation

2021 ◽  
Vol 7 (2) ◽  
pp. a005751
Author(s):  
Erin H. Sybouts ◽  
Adam D. Brown ◽  
Maria G. Falcon-Cantrill ◽  
Martha H. Thomas ◽  
Thomas DeNapoli ◽  
...  

2006 ◽  
Vol 22 (4) ◽  
pp. 331-336 ◽  
Author(s):  
Donna M. Lehman ◽  
Jeanette Hamlington ◽  
Kelly J. Hunt ◽  
Robin J. Leach ◽  
Rector Arya ◽  
...  


Author(s):  
Christina Chavez

The debate on insider/outsider positionality has raised issues about the methodological advantages and liabilities between the two, yet no clear account exists for what insider scholars can expect when they enter the field. First, I conceptualize how insider positionality can dually benefit and disadvantage the insider. Using a partial review of insider studies, including my study of my multigenerational Mexican American family, I also present a practical discussion on specific insider advantages and complications. In conclusion, I present a new approach to training novice insider scholars that will help them mediate between insider perspective and researcher position, an approach that promises greater rigor to insider research that will serve the goals of qualitative research for social justice in minority and indigenous communities.



2010 ◽  
Vol 112 (12) ◽  
pp. 3074-3101 ◽  
Author(s):  
Margy Mcclain

Background/Context This article explores the experiences of one Mexican American family as they make a key curriculum choice for their 9-year-old son. Relatively little attention has been paid to parents’ beliefs, attitudes, and, in particular, experiences as they actively engage in—and sometimes affect—their children's schooling. Parents’ agency in utilizing various kinds of educational strategizing, especially immigrant and urban working-class parents, has been overlooked. Deficit theories of low-income families have a long history in educational thought. Although more recent scholarship has debunked these theories, they remain pervasive across the country. Educators often do not recognize the many ways in which urban parents may be involved in their children's schooling. Voices of parents themselves speaking to their experiences with schools are just beginning to emerge. Purpose This article offers a rich example of the educational decision-making process of one Mexican American family. I take a phenomenological approach to examine human agency in specific familial decisions about this child's schooling that support the parents’ own vision of education. Here is a story of thoughtful, reflective decision-making that took place over a period of several years, when the parents finally decided to move their son from a transitional bilingual program at a public school to a parochial school taught in English. Research Design This is a narrative inquiry based on interviews and observations that took place with one family and one focal child through the course of a calendar year. It is situated within the frame of an ethnographic study on the educational life worlds of the family. The analysis draws on van Manen's use of phenomenology to examine how parents reflected upon experience to better understand a situation, resulting in “lived experience,” an understanding of the meanings a particular person finds in an event. Conclusions/Recommendations Immigrant and other urban parents may be actively engaged in their children's education, asking important and valid curriculum questions in ways that remain invisible to educators. I suggest alternatives to deficit theories that render parents’ perspectives invisible. Terms usually reserved for teachers can also be applied to parents: “knowledgeable observers” who make “pedagogically thoughtful” decisions about “curriculum.” This perspective would recommend that educational practice and policy use theoretical frameworks stressing parents’ roles as strong, positive, and active agents on behalf of their children and the need to develop dialogue based on respect. Further qualitative research in particular can provide needed depth in our understanding of parents’ struggles to negotiate the boundaries of culture, history and biography as they guide their children through the complex maze of school.



1996 ◽  
Vol 30 (1) ◽  
pp. 342-344
Author(s):  
Mary Elizabeth Brown


1988 ◽  
Vol 10 (1) ◽  
pp. 39-53 ◽  
Author(s):  
Walter R. Schumm ◽  
Eric E. Mccollum ◽  
Margaret A. Bugaighis ◽  
Anthony P. Jurich ◽  
Stephan R. Bollman ◽  
...  


2008 ◽  
Vol 27 (2) ◽  
pp. 141-165 ◽  
Author(s):  
Angelica P. Herrera ◽  
Jerry Lee ◽  
Guadalupe Palos ◽  
Isabel Torres-Vigil


2012 ◽  
Vol 43 (2) ◽  
pp. 17-24 ◽  
Author(s):  
Michael D. Becerra ◽  
Stella Michael-Makri

An illustration of one Mexican-American family headed by a single-parent mother is explored to depict the application of Structural Family Therapy. Familism and marianismo are examined as factors impacting healthy family functioning of Mexican and Mexican-American families. Interventions used with the family were joining, structural mapping, enactment and addressing disability and medical related concerns. Learning to create healthy boundaries between parent and children, addressing maternal depression and family economic stressors, and nurturing sibling relationships were areas that impacted this family. Further research is suggested into the application of Structural Family Therapy as a model when working with Mexican and Mexican-American families who have a child with a disability.





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