The need to engender high-quality clinical outcomes for a rare and lethal disease is best served by specialist referral centres with a high patient volume, although the volume–outcome relationship has not been shown specifically for pulmonary hypertension. The link between access to information and successful pulmonary arterial hypertension management is well established. Healthcare professionals report that patients who receive comprehensive guidance at the beginning of treatment have better outcomes. Information is understood to motivate patients to participate in their own care, thereby improving outcomes.
The Volume-Outcome Relationship Revisited: Practice Indeed Makes Perfect
